Les Turner ALS Foundation
@lesturnerals.bsky.social
The leader in comprehensive #ALS care in Chicagoland
By joining the National ALS Registry and taking the risk factor surveys, individuals living with ALS can help provide a better picture of who gets ALS and the risk factors associated with this disease. Join today! cdc.gov/als
#ALSRegistry #ALS
#ALSRegistry #ALS
November 22, 2025 at 6:03 PM
By joining the National ALS Registry and taking the risk factor surveys, individuals living with ALS can help provide a better picture of who gets ALS and the risk factors associated with this disease. Join today! cdc.gov/als
#ALSRegistry #ALS
#ALSRegistry #ALS
“It is ok to cross the rainbow,” Michael Margelewski-Hall told their mother, Pam. “She had more than earned her wings.”
A moment of strength and love in their ALS journey.
#NationalFamilyCaregiversMonth
A moment of strength and love in their ALS journey.
#NationalFamilyCaregiversMonth
November 20, 2025 at 6:02 PM
“It is ok to cross the rainbow,” Michael Margelewski-Hall told their mother, Pam. “She had more than earned her wings.”
A moment of strength and love in their ALS journey.
#NationalFamilyCaregiversMonth
A moment of strength and love in their ALS journey.
#NationalFamilyCaregiversMonth
Catch every moment from the Les Turner Symposium on ALS — now live on YouTube.
Thank you, to Mitsubishi Tanabe Pharma America, Biogen and Numotion for supporting this event.
Watch now: www.youtube.com/watch?v=W7zb...
Thank you, to Mitsubishi Tanabe Pharma America, Biogen and Numotion for supporting this event.
Watch now: www.youtube.com/watch?v=W7zb...
November 19, 2025 at 9:30 PM
Catch every moment from the Les Turner Symposium on ALS — now live on YouTube.
Thank you, to Mitsubishi Tanabe Pharma America, Biogen and Numotion for supporting this event.
Watch now: www.youtube.com/watch?v=W7zb...
Thank you, to Mitsubishi Tanabe Pharma America, Biogen and Numotion for supporting this event.
Watch now: www.youtube.com/watch?v=W7zb...
Our no-cost webinar on Thursday, November 20 at 12 pm CT will provide you with expert tips and strategies to navigate ALS and digestive health challenges. Whether it's fiber, hydration, or daily wellness routines, we’ve got you covered!
Register now: us02web.zoom.us/webinar/regi...
Register now: us02web.zoom.us/webinar/regi...
November 19, 2025 at 6:03 PM
Our no-cost webinar on Thursday, November 20 at 12 pm CT will provide you with expert tips and strategies to navigate ALS and digestive health challenges. Whether it's fiber, hydration, or daily wellness routines, we’ve got you covered!
Register now: us02web.zoom.us/webinar/regi...
Register now: us02web.zoom.us/webinar/regi...
This National Family Caregivers Month, we honor the strength and heart of ALS caregivers like Jenny Hernandez.
“Caregiving is a lot to balance, and every day can bring it's challenges... Being a caregiver for my dad will forever be the greatest accomplishment for me.”
“Caregiving is a lot to balance, and every day can bring it's challenges... Being a caregiver for my dad will forever be the greatest accomplishment for me.”
November 18, 2025 at 6:03 PM
This National Family Caregivers Month, we honor the strength and heart of ALS caregivers like Jenny Hernandez.
“Caregiving is a lot to balance, and every day can bring it's challenges... Being a caregiver for my dad will forever be the greatest accomplishment for me.”
“Caregiving is a lot to balance, and every day can bring it's challenges... Being a caregiver for my dad will forever be the greatest accomplishment for me.”
Meet Dominique Kosk, Advanced Dietitian at Northwestern Memorial Hospital and the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She has been supporting people living with ALS since 2016.
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
November 17, 2025 at 6:02 PM
Meet Dominique Kosk, Advanced Dietitian at Northwestern Memorial Hospital and the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She has been supporting people living with ALS since 2016.
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
Meet Brittany M. Hitson, an Advanced Dietitian at Northwestern Memorial Hospital and Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She’s been supporting people living with ALS since 2020.
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
November 15, 2025 at 6:02 PM
Meet Brittany M. Hitson, an Advanced Dietitian at Northwestern Memorial Hospital and Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She’s been supporting people living with ALS since 2020.
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
Register for her webinar on November 20: us02web.zoom.us/webinar/regi...
For the Rooney and Creen families, ALS is personal — affecting both sides of their family. Still, they “choose to rally around hope…and live life with joy and love.”
Read more: www.chicagotribune.com/2025/11/07/v...
Read more: www.chicagotribune.com/2025/11/07/v...
November 14, 2025 at 6:02 PM
For the Rooney and Creen families, ALS is personal — affecting both sides of their family. Still, they “choose to rally around hope…and live life with joy and love.”
Read more: www.chicagotribune.com/2025/11/07/v...
Read more: www.chicagotribune.com/2025/11/07/v...
Join our no-cost webinar on Thursday, November 20 at 12:00 pm CT about managing constipation in ALS. Learn about fiber, hydration, and strategies to improve bowel health.
Register: us02web.zoom.us/webinar/regi...
#ALS #DigestiveHealth #LesTurnerALS
Register: us02web.zoom.us/webinar/regi...
#ALS #DigestiveHealth #LesTurnerALS
November 13, 2025 at 8:01 PM
Join our no-cost webinar on Thursday, November 20 at 12:00 pm CT about managing constipation in ALS. Learn about fiber, hydration, and strategies to improve bowel health.
Register: us02web.zoom.us/webinar/regi...
#ALS #DigestiveHealth #LesTurnerALS
Register: us02web.zoom.us/webinar/regi...
#ALS #DigestiveHealth #LesTurnerALS
Honoring Sharon Miller, who loved the ocean deeply. Her daughter brought her to the beach one last time — toes in the sand, joy in her smile.
#Celebrationoflife #LesTurner #HonorAndRemember
#Celebrationoflife #LesTurner #HonorAndRemember
November 12, 2025 at 6:03 PM
Honoring Sharon Miller, who loved the ocean deeply. Her daughter brought her to the beach one last time — toes in the sand, joy in her smile.
#Celebrationoflife #LesTurner #HonorAndRemember
#Celebrationoflife #LesTurner #HonorAndRemember
The 2025 Les Turner Symposium on ALS brought together Northwestern scientists, clinicians, and people living with ALS to share discoveries, explore research, and celebrate progress in patient care.
Read the full story here: news.feinberg.northwestern.edu/2025/11/07/l...
Read the full story here: news.feinberg.northwestern.edu/2025/11/07/l...
November 12, 2025 at 3:30 PM
The 2025 Les Turner Symposium on ALS brought together Northwestern scientists, clinicians, and people living with ALS to share discoveries, explore research, and celebrate progress in patient care.
Read the full story here: news.feinberg.northwestern.edu/2025/11/07/l...
Read the full story here: news.feinberg.northwestern.edu/2025/11/07/l...
Clinical decisions in ALS are complex—but the My ALS Decision Tool™ helps bring clarity.
Co-developed with neurologists, genetic counselors, and people living with ALS, this free online resource helps your patients make informed choices: buff.ly/PYGHMy4
Co-developed with neurologists, genetic counselors, and people living with ALS, this free online resource helps your patients make informed choices: buff.ly/PYGHMy4
November 11, 2025 at 9:30 PM
Clinical decisions in ALS are complex—but the My ALS Decision Tool™ helps bring clarity.
Co-developed with neurologists, genetic counselors, and people living with ALS, this free online resource helps your patients make informed choices: buff.ly/PYGHMy4
Co-developed with neurologists, genetic counselors, and people living with ALS, this free online resource helps your patients make informed choices: buff.ly/PYGHMy4
Veterans face a higher risk of ALS—and the VA is leading the way in care. Join Dr. Ileana Howard this Thursday, November 13 at 12:00 p.m. CT to learn how the VA is transforming ALS care.
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
November 11, 2025 at 7:04 PM
Veterans face a higher risk of ALS—and the VA is leading the way in care. Join Dr. Ileana Howard this Thursday, November 13 at 12:00 p.m. CT to learn how the VA is transforming ALS care.
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
This Veterans Day, we honor those who served — and recognize that U.S. military veterans are twice as likely to develop ALS as non-veterans.
Hear from veteran Bob Ives, diagnosed with ALS in 2014, who shares how his relationship with the VA has supported his journey: www.youtube.com/watch?v=7lFj...
Hear from veteran Bob Ives, diagnosed with ALS in 2014, who shares how his relationship with the VA has supported his journey: www.youtube.com/watch?v=7lFj...
November 11, 2025 at 4:00 PM
This Veterans Day, we honor those who served — and recognize that U.S. military veterans are twice as likely to develop ALS as non-veterans.
Hear from veteran Bob Ives, diagnosed with ALS in 2014, who shares how his relationship with the VA has supported his journey: www.youtube.com/watch?v=7lFj...
Hear from veteran Bob Ives, diagnosed with ALS in 2014, who shares how his relationship with the VA has supported his journey: www.youtube.com/watch?v=7lFj...
Dehydration can affect your energy, focus, and overall well-being. Recognizing the signs early can help you stay hydrated and feel your best.
Learn more in our ALS & Nutrition Guide here: lesturnerals.org/als-nutritio...
Learn more in our ALS & Nutrition Guide here: lesturnerals.org/als-nutritio...
November 10, 2025 at 6:02 PM
Dehydration can affect your energy, focus, and overall well-being. Recognizing the signs early can help you stay hydrated and feel your best.
Learn more in our ALS & Nutrition Guide here: lesturnerals.org/als-nutritio...
Learn more in our ALS & Nutrition Guide here: lesturnerals.org/als-nutritio...
Meet Dr. Ileana Howard, National Associate Director of Neurology for ALS, Veterans Health Administration.
Join her this Thursday, November 13 at 12:00 p.m. CT to hear how the VA is improving care for Veterans with ALS.
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
Join her this Thursday, November 13 at 12:00 p.m. CT to hear how the VA is improving care for Veterans with ALS.
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
November 7, 2025 at 6:03 PM
Meet Dr. Ileana Howard, National Associate Director of Neurology for ALS, Veterans Health Administration.
Join her this Thursday, November 13 at 12:00 p.m. CT to hear how the VA is improving care for Veterans with ALS.
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
Join her this Thursday, November 13 at 12:00 p.m. CT to hear how the VA is improving care for Veterans with ALS.
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
The Dan Nelson Respite Grant Program promotes well-being for both the caregiver and person with ALS and helps prevent caregiver burnout. Participants in the program also receive a visit from one of our Support Services coordinators.
For more info, please contact: supportservices@lesturnerals.org
For more info, please contact: supportservices@lesturnerals.org
November 5, 2025 at 6:03 PM
The Dan Nelson Respite Grant Program promotes well-being for both the caregiver and person with ALS and helps prevent caregiver burnout. Participants in the program also receive a visit from one of our Support Services coordinators.
For more info, please contact: supportservices@lesturnerals.org
For more info, please contact: supportservices@lesturnerals.org
Join us Thursday, November 13 at 12:00 p.m. CT for a live webinar on how the VA is transforming ALS care for Veterans with Dr. Ileana Howard.
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
November 4, 2025 at 6:04 PM
Join us Thursday, November 13 at 12:00 p.m. CT for a live webinar on how the VA is transforming ALS care for Veterans with Dr. Ileana Howard.
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
Register: us02web.zoom.us/webinar/regi...
#ALS #Veterans #LesTurnerALS
Why do nerve cells overfire in #ALS? In a new study supported by the Les Turner ALS Foundation, Dr. Evangelos Kiskinis uncovers how a key disease protein, TDP-43, drives overactive nerve cells — and highlights a promising new drug to slow or prevent progression. lesturnerals.org/a-new-clue-t...
November 4, 2025 at 3:01 PM
Why do nerve cells overfire in #ALS? In a new study supported by the Les Turner ALS Foundation, Dr. Evangelos Kiskinis uncovers how a key disease protein, TDP-43, drives overactive nerve cells — and highlights a promising new drug to slow or prevent progression. lesturnerals.org/a-new-clue-t...
Our ALS & Mobility Guide is here to help you navigate mobility changes and learn about durable medical equipment (DME) that can support your independence at home and in the community.
Learn more: lesturnerals.org/als-mobility...
Learn more: lesturnerals.org/als-mobility...
October 30, 2025 at 5:03 PM
Our ALS & Mobility Guide is here to help you navigate mobility changes and learn about durable medical equipment (DME) that can support your independence at home and in the community.
Learn more: lesturnerals.org/als-mobility...
Learn more: lesturnerals.org/als-mobility...
2026 registrations are now open! Run with us on October 11, 2026 in Grant Park.
Sign up: buff.ly/zXqgcBk
Sign up: buff.ly/zXqgcBk
October 29, 2025 at 5:05 PM
2026 registrations are now open! Run with us on October 11, 2026 in Grant Park.
Sign up: buff.ly/zXqgcBk
Sign up: buff.ly/zXqgcBk
With a grant from the Les Turner ALS Foundation, a Northwestern Medicine study has revealed a key mechanism underlying the development of ALS and other motor neuron diseases — offering new insights into potential treatment options.
Learn more: news.feinberg.northwestern.edu/2025/10/16/u...
Learn more: news.feinberg.northwestern.edu/2025/10/16/u...
October 28, 2025 at 5:06 PM
With a grant from the Les Turner ALS Foundation, a Northwestern Medicine study has revealed a key mechanism underlying the development of ALS and other motor neuron diseases — offering new insights into potential treatment options.
Learn more: news.feinberg.northwestern.edu/2025/10/16/u...
Learn more: news.feinberg.northwestern.edu/2025/10/16/u...
Learn about mobility changes in ALS and how to partner with your healthcare team. Topics include transfers, walking aids, wheelchair evaluations, and caregiver training.
Join us Thursday, Oct 30 at 12 p.m. CT
Register: us02web.zoom.us/webinar/regi...
#ALS #FunctionalMobility #LesTurnerALS
Join us Thursday, Oct 30 at 12 p.m. CT
Register: us02web.zoom.us/webinar/regi...
#ALS #FunctionalMobility #LesTurnerALS
October 27, 2025 at 5:06 PM
Learn about mobility changes in ALS and how to partner with your healthcare team. Topics include transfers, walking aids, wheelchair evaluations, and caregiver training.
Join us Thursday, Oct 30 at 12 p.m. CT
Register: us02web.zoom.us/webinar/regi...
#ALS #FunctionalMobility #LesTurnerALS
Join us Thursday, Oct 30 at 12 p.m. CT
Register: us02web.zoom.us/webinar/regi...
#ALS #FunctionalMobility #LesTurnerALS
Meet Hannah Redd, PT, DPT, NCS, neuromuscular specialist at Shirley Ryan AbilityLab. She’ll discuss functional mobility changes with ALS in our Oct 30 live webinar.
Register: us02web.zoom.us/webinar/regi...
#ALS #PhysicalTherapy #LesTurnerALS
Register: us02web.zoom.us/webinar/regi...
#ALS #PhysicalTherapy #LesTurnerALS
October 23, 2025 at 5:07 PM
Meet Hannah Redd, PT, DPT, NCS, neuromuscular specialist at Shirley Ryan AbilityLab. She’ll discuss functional mobility changes with ALS in our Oct 30 live webinar.
Register: us02web.zoom.us/webinar/regi...
#ALS #PhysicalTherapy #LesTurnerALS
Register: us02web.zoom.us/webinar/regi...
#ALS #PhysicalTherapy #LesTurnerALS
Whether you’re adding a ramp, remodeling, or moving, planning ahead can make your home safer and more accessible.
The right home modifications can help reduce costs and create a space that truly works for your needs.
Learn more: lesturnerals.org/als-home-mod...
The right home modifications can help reduce costs and create a space that truly works for your needs.
Learn more: lesturnerals.org/als-home-mod...
October 22, 2025 at 5:05 PM
Whether you’re adding a ramp, remodeling, or moving, planning ahead can make your home safer and more accessible.
The right home modifications can help reduce costs and create a space that truly works for your needs.
Learn more: lesturnerals.org/als-home-mod...
The right home modifications can help reduce costs and create a space that truly works for your needs.
Learn more: lesturnerals.org/als-home-mod...