Leon
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leonw.bsky.social
Leon
@leonw.bsky.social
Severe ME sufferer | let’s see what the blue sky has to offer 🔵
I have been in contact with a patient who is one of the very few on the #BC007 trial. She recently received the first infusion (BC007 or placebo) and reports: "I can't believe it, already yesterday I felt better. My head is totally clear, brain fog almost barely there. Sensitivity to sound hardly..
November 1, 2023 at 12:54 PM
I believe that one day I’ll heal from #MECFS. But what I don’t know is whether that belief is realistic or just a protective mechanism of my body not to give up. Is my mind playing tricks on me?
September 22, 2023 at 11:53 AM
Ich habe das große Privileg, dass meine Familie mit einer Zahnärztin befreundet ist und ich so nach ihrem Feierabend zu ihr kann. Die meisten schweren ME/CFS Patienten sehen jahrelang keinen Zahnarzt. Zugang zu guter Krankenversorgung darf nicht von Glück abhängen.
August 30, 2023 at 4:30 PM