The LEITH Lab
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leithlab.bsky.social
The LEITH Lab
@leithlab.bsky.social
LEITH Lab strives for compassionate care and humanizing research in rare diseases among historically underrepresented communities
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Our mission at The LEITH Lab is a clear one: to continue a legacy of pushing for equitable healthcare for historically marginalized communities! #EndALS #AntiRacism #TheLEITHLab
This Hispanic Heritage Month, we celebrate Dr. Yomaira C. Figueroa-Vásquez, whose scholarship and organizing uplift Afro-Latinx voices and create space for Black feminist digital humanities.
#ALS #Research #HispanicHeritageMonth
September 16, 2025 at 3:12 PM
Brad Lomax, a member of the Black Panther Party and leader in the disability rights movement, played a key role in the historic 504 Sit-ins. His work brought together Black liberation and disability justice, showing that true freedom must include access for all. #BradLomax #504SitIn
July 22, 2025 at 2:42 PM
July is Disability Pride Month!

1 in 4 adults in the US has a disability that is over 70 million people! This month we want to spotlight just a couple of people who have been instrumental in the ongoing efforts for disability justice!
July 21, 2025 at 2:41 AM
Today is World ALS Day! We want to continue to shine light on the communities who are so often overlooked in the ALS sphere!

#EndALS #WorldALSday
June 22, 2025 at 3:20 AM
Today is Juneteenth! A day where we celebrate Black liberation and recommit to the ongoing fights for justice among all oppressed peoples!
#juneteenth #ENDALS
June 19, 2025 at 3:57 PM
Happy Pride Month from the LEITH Lab to you! This month we are excited to highlight the experiences of and stories of our LGBTQ+ community members!

#PrideMonth #EndALS
June 12, 2025 at 5:27 PM
ALS support groups can be a great way to connect with people who have similar experiences to you or learn new strategies of care! However finding the right support group for you isn’t always easy! We hope this post can help out!

All organizations are linked below!
linktr.ee/theleithlab
The LEITH Lab | Instagram | Linktree
Compassionate care & humanizing research in rare diseases
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May 28, 2025 at 10:37 PM
On May 16th our PI, Dr. Chelsey R. Carter, will be speaking with the Les Turner ALS Foundation about what it means to build an equitable path toward making ALS a livable condition for everyone. Registration is linked below!

us02web.zoom.us/webinar/regi...
May 8, 2025 at 2:31 PM
It’s ALS Awareness Month! Every Friday we will be sharing ALS topics with you all. We’re starting off by breaking down some key ALS terms to help make the connection between people living with ALS and their care teams a little clearer. #ENDALS #MayALSawareness
May 4, 2025 at 3:28 PM
Reposted by The LEITH Lab
I brought the nice weather with me to New Haven to talk about my book ☀️☀️

I really enjoyed being in community with other anthros about my work. Ashley of the @leithlab.bsky.social was a great host and thanks to her diligent organizing, I had a wonderful visit!
April 18, 2025 at 5:40 PM
Happy Birthday to the Amazing Dr. Leith Mullings!
April 9, 2025 at 12:12 AM
Roberta Flack left us this February, but her legacy still echoes around the world. She lived with ALS, a truth often overlooked, and we’re proud to honor both her artistry and her journey. #ALS #RobertaFlack
March 28, 2025 at 2:10 PM
Reposted by The LEITH Lab
It's from @uminnpress.bsky.social and features @audretaughtme.bsky.social, David McDermott Hughes, Stephanie Delise Jones, @ratnagiri77.bsky.social, Katy Overstreet, Michelle Parsons, Adair Rounthwaite, Damien M. Sojoyner and @eyatesd.bsky.social. Recommend it to your friends and family!
March 18, 2025 at 1:17 PM
Reposted by The LEITH Lab
A friend drove two hours today for her breast cancer chemotherapy only to learn it was canceled due to NIH cuts. Clinical trial ended midstream. No treatment, no restart, no plan, no information. Her bro-in-law's chemo was also canceled.
March 20, 2025 at 8:24 PM
Reposted by The LEITH Lab
“I am a Black Feminist. I mean I recognize that my power as well as my primary oppressions come as a result of my blackness as well as my womaness, and therefore my struggles on both of these fronts are inseparable.” – Audre Lorde ✊🏾🌸🌸
March 21, 2025 at 11:21 AM
✨Women’s History Month✨
This month we want to spotlight Lisa Carlton! A mother, rare disease advocate, and rare disease biotech consultant!
March 21, 2025 at 4:17 PM
✨✨BHM SPOTLIGHT✨✨

The amazing anthropologist Aimee Meredith Cox!
#endALS
February 26, 2025 at 10:13 PM
✨Friday Spotlight✨

This Friday we want to spotlight the amazing Audre Lorde whose words and teachings continue to resonate. #EndALS #AudreLorde
February 7, 2025 at 11:07 PM
We are excited to share the Black Genome project! for more information, go to www.blackgenomeproject.org!
#EndALS #Genomics
February 7, 2025 at 1:07 AM
Black voices, especially Black women’s, have been systematically undervalued and actively erased, a reality rooted in a long history of oppression and marginalization. #EndALS

www.forbes.com/sites/janice...
The Erasure Of Black Women’s Contributions: From Past To Present
This article unpacks the erasure of Black women's contributions from past to present and explores what can be done to prevent this phenomenon from continuing.
www.forbes.com
February 5, 2025 at 11:07 PM
Happy Black History Month LEITH Lab family! This month we are so excited to honor the many Black voices who have done so much for us! #EndALS
February 1, 2025 at 3:03 PM
Thrilled to host a Fireside Chat with Maceo Carter! Join us on February 11th for a workshop where we’ll hear from Maceo about his journey navigating ALS. Sign up now! #ENDALS
January 31, 2025 at 2:09 PM
Reposted by The LEITH Lab
2025 W. Montague Cobb Institute Health Disparities Symposium
Lester Henry Auditorium, Howard University, Washington DC
7:00am – 1:00pm PM ET, Saturday, Jan 25
Register: www.pathlms.com/cobb-institu...
December 30, 2024 at 8:36 PM
This Martin Luther King Jr. Day, let's take a second to remember Dr. King's contributions and our role in continuing his work!

The quote below is from Dr. King's 1967 book "Where Do We Go from Here: Chaos or Community?" Where Dr. King calls for a radical restructuring of systems of power. #ENDALS
January 20, 2025 at 5:07 PM
We are excited to announce that Dr. Chelsey R. Carter and Brett Maricque’s Genetic Frontiers (@geneticfrontiers.bsky.social) episode is out now!!

To listen to this new episode go to: geneticfrontiers.org/episode8-che...
January 14, 2025 at 12:13 PM