Lani
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Lani
@leilanie.bsky.social
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eng | es | pt
Reposted by Lani
I rarely post personal things. But I need to talk about my 4-year-old niece, Hope.

She has a rare disease. A drug called elamipretide has helped her survive.

But the FDA recently denied its approval.

Now, her health hangs in the balance.

Please share her story & urge the FDA to reconsider. 🧵
June 23, 2025 at 9:21 PM
No crown for the clown.
June 14, 2025 at 7:13 AM
todos os posts em português que vejo são iguais. socorro
September 16, 2024 at 5:01 PM