Long COVID Campaign | www.longcovidcampaign.org
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Long COVID Campaign | www.longcovidcampaign.org
@lccampaign.bsky.social
220 followers 21 following 38 posts
Equitable, accessible & affordable treatment for all. The Long COVID Campaign advocates for accelerated research & expanded support programs in U.S. & globally.
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lccampaign.bsky.social
🚨THANK YOU #LONGCOVID PATIENT COMMUNITY 🚨 Because of you, NIH RECOVER grant terminations being reversed & restored! This win was only possible due to YOUR advocacy & support from our Hill bipartisan champions! THANK YOU to every person who called, emailed & took action! #NoLongCOVIDCuts
March 29, 2025 at 1:57 AM
lccampaign.bsky.social
🚨BREAKING: NIH RECOVER #LongCOVID GRANT CUTS HAVE STARTED🚨
The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding.
Can you make just 3⃣ calls & send 3⃣emails today?
☎️Call Congress Tool
bit.ly/NoLongCOVIDC...
📨Email Congress Tool
bit.ly/NoLongCOVIDC...
March 27, 2025 at 4:37 PM
lccampaign.bsky.social
The next 3⃣ DAYS are critical to ensuring #NoLongCOVIDCuts to U.S. government #LongCOVID clinical trials & clinic funding.
Can you make just3⃣ calls & send3⃣ emails to Congress today?
☎️Call Congress Tool☎️
bit.ly/NoLongCOVIDC...
📨 Email Congress Tool📨
bit.ly/NoLongCOVIDC...
Image of teal, positive-sign Long COVID Campaign logo overlayed on the U.S. Capitol building of Congress with text: "Action Alert: Long COVID funding at risk, action incoming"
March 26, 2025 at 8:11 PM
lccampaign.bsky.social
📣 #LongCOVID Community: With recent news, we're now hearing NIH RECOVER-TLC research & AHRQ Long COVID clinic funding could also be at risk. So LCC is launching a rapid-response campaign NOW to make it easier to call Congress & ask for #NoLongCOVIDCuts 1/x
bit.ly/NoLongCOVIDCutsCall
March 25, 2025 at 8:32 PM
lccampaign.bsky.social
From today's #HHS #RFKJrHearing, Q3 #LongCOVID:
Sen. Todd Young: Will you work with Congress so...Long COVID funding will be primarily funded toward trial or novel research—not replicating existing observational research?
Mr. Kennedy: Absolutely, Senator. With enthusiasm.
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Senator Young: Patient groups, experts, and industry publications have concerns around existing funding being spent on observational research. In particular, criticism were directed toward recover funding to duplicate existing findings instead of funding trials for potential treatments or diagnostics. If confirmed, will you work with congress so that going forward, long covid funding will be primarily funded toward trial or novel research—not replicating existing observational research? Mr. Kennedy: Absolutely, Senator. With enthusiasm.
January 29, 2025 at 8:19 PM
lccampaign.bsky.social
From today's #HHS #RFKJrHearing, Q2 of #LongCOVID questions & answers:
Sen. Todd Young: Will you commit to prioritizing Long COVID research & integrate that research into broader healthcare policies?
Mr. Kennedy: Yes.
(word-for-word transcript in alt text)
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Senator Young: Will you commit to prioritizing Long COVID research and integrate that research into broader healthcare policies? Mr. Kennedy: Yes.
January 29, 2025 at 8:18 PM
lccampaign.bsky.social
From today's #HHS #RFKJrHearing, transcript of the three #LongCOVID questions & answers between Sen. Todd Young (R-IN) & Mr. Kennedy: Q1
(alt text contains word-for-word transcript)
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Senator Young: With respect to COVID, it’s not over for a lot of Americans. I know the mission accomplished banner was convenient for the last administration, but as we continue to navigate the ongoing impacts of the COVID pandemic, we have many individuals in the US and around the world who are suffering from long-term health effects that significantly impact their quality of life, work, their daily activities, and they’ve been largely ignored. Long COVID research was appropriated by Congress in December of 2020 followed by additional funding by the Biden Administration in February 2024. Patient groups and industry publications have criticized the slow pace of clinical trial design and enrollment. If confirmed, will you collaborate with researchers and impacted communities to better understand and mitigate long COVID’s impact? Mr. Kennedy: Absolutely, there’s sixteen million Americans.
January 29, 2025 at 8:16 PM
lccampaign.bsky.social
Renowned cellist, composer & person living with #LongCOVID
Joshua Roman hit The Hill with Long COVID Campaign last week to advocate for critical research funding & care. Thanks to Senators Marshall & Mullin & Chair Aderholt senior staff for meeting on #LongCOVID patient community needs & support.
Photo of renowned cellist, composer and person living with Long COVID Joshua Roman standing in front of the U.S. Capitol with his cello, before meeting with key Congressional leaders to advocate for Long COVID research funding and patient support on December 12, 2024. Renowned cellist, composer and person living with Long COVID Joshua Roman and Long COVID Campaign's Meighan Stone with senior health policy staff from the office of Senate HELP Committee and Senate Armed Services Committee member Senator Mullin (R-OK). Thank you to Senator Mullin's team for meeting to discuss the critical need for continued and accelerated Long COVID research and support for the over 20 million Americans living with Long COVID. Renowned cellist, composer and person living with Long COVID Joshua Roman, Long COVID Campaign's Meighan Stone, and Chloe Shōko Rogers with a senior health policy staffer from the office of Senate HELP Committee member Senator Marshall (R-KS). Thank you to Senator Marshall's team for meeting to discuss the critical need for continued and accelerated Long COVID research and support for the over 20 million Americans living with Long COVID.
December 18, 2024 at 9:50 PM