Laila 🌻
banner
lailamourthe.bsky.social
Laila 🌻
@lailamourthe.bsky.social
Hipermobility Spectrum Disorder (HSD) 🦓
Craniocervical Instability (CCI)
Atlantoaxial Instability (AAI)
POTS
Neurodivergent 🌻

Architect/researcher from Brazil.

Homebound and bedbound most of the time.
Reposted by Laila 🌻
KEY POINTS (1/3)
~ Subset of individuals with ME have anatomic abnormalities such as Chiari malformation, cranio-cervical instability (CCI), Atlanto axial instability (AAI), spinal stenosis & tethered cord syndromes

#myalgicencephalomyelitis
#Chiari #CCI #Tetheredcord #spinalstenosis
December 9, 2025 at 6:44 AM
Reposted by Laila 🌻
i do not recommend having craniocervical instability. that shit hurty
April 24, 2025 at 3:51 PM
Reposted by Laila 🌻
I was labeled a hypochondriac and had my strange symptoms constantly dismissed. however my persistence eventually rewarded me with a legitimate diagnosis. what was initially written off as panic attacks turned out to be brain stem compression brought on by craniocervical instability.
October 10, 2025 at 12:55 AM