Lab of Lived Experience (Lab OLE)
@laboflivedexp.bsky.social
Community-powered health equity, change and innovation through business intelligence and new ventures.
By @catsocialintel.bsky.social
Substack:
https://laboflivedexperience.substack.com
By @catsocialintel.bsky.social
Substack:
https://laboflivedexperience.substack.com
3/ How do we scale something that's so fundamentally broken at the source?
#10YearPlan #TransformNHS #HealthcareInnovation #PublicHealth #HealthPolicy
www.thetimes.com/article/72d9...
#10YearPlan #TransformNHS #HealthcareInnovation #PublicHealth #HealthPolicy
www.thetimes.com/article/72d9...
Simple blood test could provide first reliable diagnosis for ME
Discovery of signature patterns of molecules in the blood of ME patients may signify a turning point in diagnosis, typically made by ruling out other illnesses
www.thetimes.com
June 20, 2025 at 3:42 PM
3/ How do we scale something that's so fundamentally broken at the source?
#10YearPlan #TransformNHS #HealthcareInnovation #PublicHealth #HealthPolicy
www.thetimes.com/article/72d9...
#10YearPlan #TransformNHS #HealthcareInnovation #PublicHealth #HealthPolicy
www.thetimes.com/article/72d9...
2/ .. for multi-system, multi-organ diseases affecting millions of patients)
...while burning through £££ billions on treatments that don't work and creating massive workforce impact when we get this wrong...
Shouldn't we maybe fix the science first?
...while burning through £££ billions on treatments that don't work and creating massive workforce impact when we get this wrong...
Shouldn't we maybe fix the science first?
June 20, 2025 at 3:41 PM
2/ .. for multi-system, multi-organ diseases affecting millions of patients)
...while burning through £££ billions on treatments that don't work and creating massive workforce impact when we get this wrong...
Shouldn't we maybe fix the science first?
...while burning through £££ billions on treatments that don't work and creating massive workforce impact when we get this wrong...
Shouldn't we maybe fix the science first?
This is exactly why we have started to build new models and frameworks at Lab of Lived Experience to protect our human biosystems and energy as a new-urgent, sustainability practice.
Here’s Violet Affleck telling the adults what they need to do!⚡️⚡️⚡️ yaleglobalhealthreview.com/2025/05/18/a...
Here’s Violet Affleck telling the adults what they need to do!⚡️⚡️⚡️ yaleglobalhealthreview.com/2025/05/18/a...
A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles
BY VIOLET AFFLECK I spent the January fires in Los Angeles arguing with my mother in a hotel room. She was shell-shocked, astonished at the scale of destruction in the neighborhood where she raised…
yaleglobalhealthreview.com
May 20, 2025 at 2:49 PM
This is exactly why we have started to build new models and frameworks at Lab of Lived Experience to protect our human biosystems and energy as a new-urgent, sustainability practice.
Here’s Violet Affleck telling the adults what they need to do!⚡️⚡️⚡️ yaleglobalhealthreview.com/2025/05/18/a...
Here’s Violet Affleck telling the adults what they need to do!⚡️⚡️⚡️ yaleglobalhealthreview.com/2025/05/18/a...
May 9, 2025 at 4:18 PM
8/ Our final part of the Data Science for Resistance Series: Part 3 - Community-powered health equity, features work:
@catherinehale.bsky.social
@johnpring.bsky.social
@abrokenbattery.bsky.social
@catsocialintel.bsky.social
@longcovidadvoc.com
@nicolajeffery.bsky.social
@catherinehale.bsky.social
@johnpring.bsky.social
@abrokenbattery.bsky.social
@catsocialintel.bsky.social
@longcovidadvoc.com
@nicolajeffery.bsky.social
May 9, 2025 at 4:18 PM
8/ Our final part of the Data Science for Resistance Series: Part 3 - Community-powered health equity, features work:
@catherinehale.bsky.social
@johnpring.bsky.social
@abrokenbattery.bsky.social
@catsocialintel.bsky.social
@longcovidadvoc.com
@nicolajeffery.bsky.social
@catherinehale.bsky.social
@johnpring.bsky.social
@abrokenbattery.bsky.social
@catsocialintel.bsky.social
@longcovidadvoc.com
@nicolajeffery.bsky.social
7/Let’s help business make human biosystems protection society's #1 sustainability goal. 💥💥
Immediate next steps: a convening with impact investors, systems thinkers and business leaders to design our starting point.
Immediate next steps: a convening with impact investors, systems thinkers and business leaders to design our starting point.
May 9, 2025 at 4:18 PM
7/Let’s help business make human biosystems protection society's #1 sustainability goal. 💥💥
Immediate next steps: a convening with impact investors, systems thinkers and business leaders to design our starting point.
Immediate next steps: a convening with impact investors, systems thinkers and business leaders to design our starting point.
6/ Our digital-first community-led lab-designed with and inspired by people with severe ME and Long Covid will be accessible to all.
Clean air standards, bio futures funding, energy-aware workplaces – we'll be co-creating it ALL this year-making it a strategic use of your limited time and energy.
Clean air standards, bio futures funding, energy-aware workplaces – we'll be co-creating it ALL this year-making it a strategic use of your limited time and energy.
May 9, 2025 at 4:18 PM
6/ Our digital-first community-led lab-designed with and inspired by people with severe ME and Long Covid will be accessible to all.
Clean air standards, bio futures funding, energy-aware workplaces – we'll be co-creating it ALL this year-making it a strategic use of your limited time and energy.
Clean air standards, bio futures funding, energy-aware workplaces – we'll be co-creating it ALL this year-making it a strategic use of your limited time and energy.
5/ This is how we unlock powerful allies and £20Bn in private funding OUTSIDE the broken healthcare system.
We’ll be bringing in all the systems changemakers across the pyramid - from clean air advocates to social finance and biomed innovators to collab…
We’ll be bringing in all the systems changemakers across the pyramid - from clean air advocates to social finance and biomed innovators to collab…
May 9, 2025 at 4:18 PM
5/ This is how we unlock powerful allies and £20Bn in private funding OUTSIDE the broken healthcare system.
We’ll be bringing in all the systems changemakers across the pyramid - from clean air advocates to social finance and biomed innovators to collab…
We’ll be bringing in all the systems changemakers across the pyramid - from clean air advocates to social finance and biomed innovators to collab…
4/ Read how we got here: bit.ly/4jcm6uZ
Data Science as Resistance: Community-Powered Health Equity
Part 3: Energy-Aware Design and Human BioSustainability
bit.ly
May 9, 2025 at 4:18 PM
4/ Read how we got here: bit.ly/4jcm6uZ
3/ In the final part of our Data Science as Resistance series, after analysing and deconstructing our broken economic, social & health systems, the conclusion is clear:
We need to build a new system that we design and own with our unmet needs as the foundation.
We need to build a new system that we design and own with our unmet needs as the foundation.
May 9, 2025 at 4:18 PM
3/ In the final part of our Data Science as Resistance series, after analysing and deconstructing our broken economic, social & health systems, the conclusion is clear:
We need to build a new system that we design and own with our unmet needs as the foundation.
We need to build a new system that we design and own with our unmet needs as the foundation.
2/ #HumanBioSystems: takes us from "disease & disability" to “human biosustainability”
A strategic repositioning that puts OUR energy and health crisis at the foundation of global business strategy and priorities, where it belongs.
A strategic repositioning that puts OUR energy and health crisis at the foundation of global business strategy and priorities, where it belongs.
May 9, 2025 at 4:18 PM
2/ #HumanBioSystems: takes us from "disease & disability" to “human biosustainability”
A strategic repositioning that puts OUR energy and health crisis at the foundation of global business strategy and priorities, where it belongs.
A strategic repositioning that puts OUR energy and health crisis at the foundation of global business strategy and priorities, where it belongs.
Correct URL: petition.parliament.uk/petitions/70...
Petition: Introduce new air quality and PPE rules for health and social care settings
We want the Government to set new rules on air quality and infection control in health and social care settings, to prevent and control airborne infections, with new ventilation and filtration require...
petition.parliament.uk
May 3, 2025 at 4:24 AM
Correct URL: petition.parliament.uk/petitions/70...
4/ ..We’re still just following this almost blindly at the moment..”
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Read the full analysis at: laboflivedexperience.substack.com/p/data-scien...
- END
Read the full analysis at: laboflivedexperience.substack.com/p/data-scien...
laboflivedexperience.substack.com
April 30, 2025 at 2:32 PM
4/ ..We’re still just following this almost blindly at the moment..”
- END
Read the full analysis at: laboflivedexperience.substack.com/p/data-scien...
- END
Read the full analysis at: laboflivedexperience.substack.com/p/data-scien...
3/ And In Dec 23, there was a Canadian research paper that looked at the population level of Long Covid and they discovered that after 3 infections (which could be known or unknown due to the asymptomatic features of this virus), that 38% have or have had Long Covid…
April 30, 2025 at 2:32 PM
3/ And In Dec 23, there was a Canadian research paper that looked at the population level of Long Covid and they discovered that after 3 infections (which could be known or unknown due to the asymptomatic features of this virus), that 38% have or have had Long Covid…
2/ …happening at least once every year now.
By Mar 24, Long Covid had doubled in children and this repeated infection model should worry every economist, business leader and policy maker
By Mar 24, Long Covid had doubled in children and this repeated infection model should worry every economist, business leader and policy maker
April 30, 2025 at 2:32 PM
2/ …happening at least once every year now.
By Mar 24, Long Covid had doubled in children and this repeated infection model should worry every economist, business leader and policy maker
By Mar 24, Long Covid had doubled in children and this repeated infection model should worry every economist, business leader and policy maker
2/ …happening at least once every year now.
By Mar 24, Long Covid had doubled in children and this repeated infection model should worry every economist, business leader and policy maker.
By Mar 24, Long Covid had doubled in children and this repeated infection model should worry every economist, business leader and policy maker.
April 30, 2025 at 2:21 PM
2/ …happening at least once every year now.
By Mar 24, Long Covid had doubled in children and this repeated infection model should worry every economist, business leader and policy maker.
By Mar 24, Long Covid had doubled in children and this repeated infection model should worry every economist, business leader and policy maker.