Kyle
kylofone.bsky.social
Kyle
@kylofone.bsky.social
carer for my partner with very severe ME / long covid
i like loud guitars and tiramisu
lmao you have my attention
May 24, 2025 at 2:02 PM
too many DM points to respond to, the servers finally gave up
May 24, 2025 at 1:27 PM
And also my partner has recently just started being able to tolerate having her mum take over some of the simpler care duties, which is huge as I've been exclusively doing all of her direct care for almost 2 years now. So she's starting to come stay with us occasionally to help out!
November 21, 2024 at 11:56 PM
Ain't that the truth! Yeah, thankfully we moved in spring to be closer to our families, and so my parents are nearby to help with some of the practical stuff like picking up groceries, which is super helpful because I can't really leave the house because of the care responsibilities.
November 21, 2024 at 11:53 PM
They're not totally terrible at the moment thanks. Today was kinda rough but my partner has seen some small improvements recently. Tiny in the grand scheme but monumental for her. We had a bunch of snow here Monday and she managed to tolerate watching it out the window from her bed for a while.
November 21, 2024 at 11:35 PM
Naur not the technical issues. This digital world is really not kind to old people. Godspeed with helping him there 🫡 And that's great re: your improvement - sounds like the right approach for sure though I can only imagine how frustrating it is to have to be so patient and diligent all the time!
November 21, 2024 at 11:28 PM
It's an honour. Hope your dad's doing ok, given... everything. And you too! I was really happy to read about your recent improvement, hope that's still the case and long may it continue if so!
November 21, 2024 at 11:14 PM
Thank you for imparting your hard-earned wisdom, sage Kira! This really resonated. Hell I nearly didnt send this reply (ew earnestness) but like...I'm just a guy scrolling on his phone while biting his already shredded nails. Who gives a fuck?
November 21, 2024 at 10:31 PM
Same, I genuinely wouldn't have any idea it was even a thing were it not for all the complaints about how much it sucks from other people
October 19, 2024 at 9:17 PM