Yes! I have been so grateful to learn from the clinicians here. The feedback loop between researchers and clinicians is woefully lacking.

And if you're here in Boston, please say hi! I'm the person with purple hair wearing my mask of choice, the Dräger :)

Just the concrete tips of David Keegan from University of Calgary on how to use “familiar” data in clinical practice could be game changing for patients. #lcwsymposium

Dr. Yonkers: “I do think this [testing for POTS, PEM, LC] can be done in the primary care office…keep it close to home.” #lcwsymposium #longcovidkids

Part of this includes ruling out other symptoms, as well as assessing for PEM and testing for POTS, other autonomic issues. #lcwsymposium #longcovidkids

Dr. Yonkers: “We want kids to get better, but we can’t wish it upon them.” #lcwsymposium #longcovidkids

“We need to be careful” when we discuss and diagnose children. #LCWSymposium #longcovidkids

My take: if you think your kid has Long COVID—ask your kid’s doctor!! #lcwsymposium

AND she stresses: kids are more likely to be diagnosed *if their provider is asked about Long COVID.* #lcwsymposium #longcovidkids

For example, there is little in the LC literature about getting back to work. In clinical practice, getting back to work is found to be incredibly important for LC patients.

My take: it’s not just guidelines and protocols that matter in LC healthcare.
We know that LC presents heterogeneously.
Personalized care with compassionate clinicians who are knowledgeable and can appreciate the “unknowns” is essential for symptom management. #LCWSymposium

After 3 months, patients reported they were more likely to engage in usual activities, fewer missed workdays, and lower private health care expenses.

Intervention tested was compassionate care paired with individualized self-management plans. Immediately post-intervention, patients felt more able to participate in daily activities compared to a control group.