Konepone
@konepone.bsky.social
Austrian expat in Norway. Loving life!
Spreading optimism whenever I can.
#LongCovid #ME/CFS #POTS
Spreading optimism whenever I can.
#LongCovid #ME/CFS #POTS
On my way to the hardware store with my brand-new wheelchair! 🤩 This is my first chair and I am super happy! Finally some freedom to go further than 700 steps. 😊 This is a chair for good days and travels. Freedom here I come! 🤩 🎉
#LongCovid #wheelchairlove #movementaid #positiv #invisibledesease
#LongCovid #wheelchairlove #movementaid #positiv #invisibledesease
July 26, 2024 at 10:39 AM
On my way to the hardware store with my brand-new wheelchair! 🤩 This is my first chair and I am super happy! Finally some freedom to go further than 700 steps. 😊 This is a chair for good days and travels. Freedom here I come! 🤩 🎉
#LongCovid #wheelchairlove #movementaid #positiv #invisibledesease
#LongCovid #wheelchairlove #movementaid #positiv #invisibledesease
#LongCovid #LongCovidawareness #15march is coming closer. Does anybody know what is planned in different countries? Any interest in doing the same thing in all major cities or sth?
Like the #millionsmissing that #ME/CFS did with the shoes in front of parliaments?
Just wondering as we start planning.
Like the #millionsmissing that #ME/CFS did with the shoes in front of parliaments?
Just wondering as we start planning.
February 1, 2024 at 6:53 PM
#LongCovid #LongCovidawareness #15march is coming closer. Does anybody know what is planned in different countries? Any interest in doing the same thing in all major cities or sth?
Like the #millionsmissing that #ME/CFS did with the shoes in front of parliaments?
Just wondering as we start planning.
Like the #millionsmissing that #ME/CFS did with the shoes in front of parliaments?
Just wondering as we start planning.
Things I can do now, I could not do if healthy #10
It's winter. I hate winter.
I don't have to go outside!
Sure my conditions worsen cause of it.
BUT
no need to fall on the ice, no need to get wet, no need to stumble from ice block to ice block.
#LongCovid #ME OPTIMIST #FUCKwinter
It's winter. I hate winter.
I don't have to go outside!
Sure my conditions worsen cause of it.
BUT
no need to fall on the ice, no need to get wet, no need to stumble from ice block to ice block.
#LongCovid #ME OPTIMIST #FUCKwinter
January 31, 2024 at 2:56 PM
Things I can do now, I could not do if healthy #10
It's winter. I hate winter.
I don't have to go outside!
Sure my conditions worsen cause of it.
BUT
no need to fall on the ice, no need to get wet, no need to stumble from ice block to ice block.
#LongCovid #ME OPTIMIST #FUCKwinter
It's winter. I hate winter.
I don't have to go outside!
Sure my conditions worsen cause of it.
BUT
no need to fall on the ice, no need to get wet, no need to stumble from ice block to ice block.
#LongCovid #ME OPTIMIST #FUCKwinter
Reposted by Konepone
longcovid lifehack: pretend that your brain fog and horrible headaches are not due to a public health failure, but because you are under psychic attack by a powerful thamaturge. then every time you can do things like respond to emails or mark up student writing is a small victory over dire magics
January 30, 2024 at 6:25 PM
longcovid lifehack: pretend that your brain fog and horrible headaches are not due to a public health failure, but because you are under psychic attack by a powerful thamaturge. then every time you can do things like respond to emails or mark up student writing is a small victory over dire magics
Things I can do now, I could not do if healthy #9
While this might not be the most positive thing, it's definitely helping me. I bought a caravan and moved from the house into the garden. I deteriorated with the stress and kids. Now that stopped and I stabilize.
#LongCovid #ME #optimist
While this might not be the most positive thing, it's definitely helping me. I bought a caravan and moved from the house into the garden. I deteriorated with the stress and kids. Now that stopped and I stabilize.
#LongCovid #ME #optimist
December 14, 2023 at 12:16 PM
Things I can do now, I could not do if healthy #9
While this might not be the most positive thing, it's definitely helping me. I bought a caravan and moved from the house into the garden. I deteriorated with the stress and kids. Now that stopped and I stabilize.
#LongCovid #ME #optimist
While this might not be the most positive thing, it's definitely helping me. I bought a caravan and moved from the house into the garden. I deteriorated with the stress and kids. Now that stopped and I stabilize.
#LongCovid #ME #optimist
Things I can do now, I could not do if healthy #8
I made a friend do yoga with me every day. Online. We never found the time before. Now it's clear ww can't meet, let's do it from our own flats and spend time that way while stretching a little. 😊
#LongCovid #ME #optimist
I made a friend do yoga with me every day. Online. We never found the time before. Now it's clear ww can't meet, let's do it from our own flats and spend time that way while stretching a little. 😊
#LongCovid #ME #optimist
December 13, 2023 at 7:38 PM
Things I can do now, I could not do if healthy #8
I made a friend do yoga with me every day. Online. We never found the time before. Now it's clear ww can't meet, let's do it from our own flats and spend time that way while stretching a little. 😊
#LongCovid #ME #optimist
I made a friend do yoga with me every day. Online. We never found the time before. Now it's clear ww can't meet, let's do it from our own flats and spend time that way while stretching a little. 😊
#LongCovid #ME #optimist
Things I learned since I got my chronic illness #11
The perception of time changes. I just traveled and thought while traveling I'll not focus on bluesky. Puff, weeks later I still feel I just came home.
Well, here I am, back for not until the next awareness break happens 😅😊
#LongCovid #MECFS
The perception of time changes. I just traveled and thought while traveling I'll not focus on bluesky. Puff, weeks later I still feel I just came home.
Well, here I am, back for not until the next awareness break happens 😅😊
#LongCovid #MECFS
December 7, 2023 at 12:00 AM
Things I learned since I got my chronic illness #11
The perception of time changes. I just traveled and thought while traveling I'll not focus on bluesky. Puff, weeks later I still feel I just came home.
Well, here I am, back for not until the next awareness break happens 😅😊
#LongCovid #MECFS
The perception of time changes. I just traveled and thought while traveling I'll not focus on bluesky. Puff, weeks later I still feel I just came home.
Well, here I am, back for not until the next awareness break happens 😅😊
#LongCovid #MECFS
Things I learned since I got my chronic illness #10
I can no longer do the things I want. But I can change the pov and make different memories instead . Trip to acropolis wasn't possible. But I did a goddess photo experience instead to create memories of Athén 😊 I loved it!
#LongCovid #ME/CFS
I can no longer do the things I want. But I can change the pov and make different memories instead . Trip to acropolis wasn't possible. But I did a goddess photo experience instead to create memories of Athén 😊 I loved it!
#LongCovid #ME/CFS
November 7, 2023 at 7:53 PM
Things I learned since I got my chronic illness #10
I can no longer do the things I want. But I can change the pov and make different memories instead . Trip to acropolis wasn't possible. But I did a goddess photo experience instead to create memories of Athén 😊 I loved it!
#LongCovid #ME/CFS
I can no longer do the things I want. But I can change the pov and make different memories instead . Trip to acropolis wasn't possible. But I did a goddess photo experience instead to create memories of Athén 😊 I loved it!
#LongCovid #ME/CFS
Things I learned since I got my chronic illness #9
Making my disability visible for people makes it possible to build down barriers for both of us. People are mostly kind and wanne do a nice thing. By telling them my needs I get help and make them feel good about themselfs too.
#LongCovid #ME/CFS
Making my disability visible for people makes it possible to build down barriers for both of us. People are mostly kind and wanne do a nice thing. By telling them my needs I get help and make them feel good about themselfs too.
#LongCovid #ME/CFS
November 5, 2023 at 2:28 PM
Things I learned since I got my chronic illness #9
Making my disability visible for people makes it possible to build down barriers for both of us. People are mostly kind and wanne do a nice thing. By telling them my needs I get help and make them feel good about themselfs too.
#LongCovid #ME/CFS
Making my disability visible for people makes it possible to build down barriers for both of us. People are mostly kind and wanne do a nice thing. By telling them my needs I get help and make them feel good about themselfs too.
#LongCovid #ME/CFS
Things I can do now, I could not do if healthy #8
I don't have to blow up my own inflatable pool equipment. People know I struggle and I am thankful for their help. Now I have tons of time to enjoy floating in the pool
I really like it actually. 😊🏊
#LongCovid #ME #optimist
I don't have to blow up my own inflatable pool equipment. People know I struggle and I am thankful for their help. Now I have tons of time to enjoy floating in the pool
I really like it actually. 😊🏊
#LongCovid #ME #optimist
November 1, 2023 at 11:42 AM
Things I can do now, I could not do if healthy #8
I don't have to blow up my own inflatable pool equipment. People know I struggle and I am thankful for their help. Now I have tons of time to enjoy floating in the pool
I really like it actually. 😊🏊
#LongCovid #ME #optimist
I don't have to blow up my own inflatable pool equipment. People know I struggle and I am thankful for their help. Now I have tons of time to enjoy floating in the pool
I really like it actually. 😊🏊
#LongCovid #ME #optimist
Things I can do now, I could not do if healthy #7
I can now leave situations I am uncomfortable with. Don't even have to explain myself anymore.
#LongCovid #ME #optimist
I can now leave situations I am uncomfortable with. Don't even have to explain myself anymore.
#LongCovid #ME #optimist
November 1, 2023 at 11:40 AM
Things I can do now, I could not do if healthy #7
I can now leave situations I am uncomfortable with. Don't even have to explain myself anymore.
#LongCovid #ME #optimist
I can now leave situations I am uncomfortable with. Don't even have to explain myself anymore.
#LongCovid #ME #optimist
I am in Crete atm visiting a friend. Sadly this friend passed away in his sleep two days ago. After a rather traumatic day, finding my friend, with police interrogation and feeling alone on an island, a fellow #longcovid pasient I met online, just the day before, came over to give me a hug. ❤️
October 28, 2023 at 8:06 PM
I am in Crete atm visiting a friend. Sadly this friend passed away in his sleep two days ago. After a rather traumatic day, finding my friend, with police interrogation and feeling alone on an island, a fellow #longcovid pasient I met online, just the day before, came over to give me a hug. ❤️
Things I can do now, I could not do if healthy #6
I now visit people different. I need to stay for longer periods due to resting needs. It gives us the oppertunity for building friendships on a deeper more understanding level. All my friends welcomed me with open arms. ❤️🤗
#LongCovid #ME #optimist
I now visit people different. I need to stay for longer periods due to resting needs. It gives us the oppertunity for building friendships on a deeper more understanding level. All my friends welcomed me with open arms. ❤️🤗
#LongCovid #ME #optimist
October 25, 2023 at 10:51 AM
Things I can do now, I could not do if healthy #6
I now visit people different. I need to stay for longer periods due to resting needs. It gives us the oppertunity for building friendships on a deeper more understanding level. All my friends welcomed me with open arms. ❤️🤗
#LongCovid #ME #optimist
I now visit people different. I need to stay for longer periods due to resting needs. It gives us the oppertunity for building friendships on a deeper more understanding level. All my friends welcomed me with open arms. ❤️🤗
#LongCovid #ME #optimist
Things I learned since I got my chronic illness #8
The world manages just fine without me following the news. I can no longer follow everything I am interested in. It's OK to read up on things a few weeks after they happened. Or let sbd tell me about it. My friends understand 😁
#LongCovid #ME/CFS
The world manages just fine without me following the news. I can no longer follow everything I am interested in. It's OK to read up on things a few weeks after they happened. Or let sbd tell me about it. My friends understand 😁
#LongCovid #ME/CFS
October 25, 2023 at 10:49 AM
Things I learned since I got my chronic illness #8
The world manages just fine without me following the news. I can no longer follow everything I am interested in. It's OK to read up on things a few weeks after they happened. Or let sbd tell me about it. My friends understand 😁
#LongCovid #ME/CFS
The world manages just fine without me following the news. I can no longer follow everything I am interested in. It's OK to read up on things a few weeks after they happened. Or let sbd tell me about it. My friends understand 😁
#LongCovid #ME/CFS
Reposted by Konepone
After a brief pause, I'm ready for more invitation codes to send out to members of the chronic illness/disability communities! About 3700 codes have gone out so far. Please fill out this form to donate codes, or send it to friends in this community in need of one. forms.gle/G7kRALEvha2o...
October 21, 2023 at 3:14 PM
After a brief pause, I'm ready for more invitation codes to send out to members of the chronic illness/disability communities! About 3700 codes have gone out so far. Please fill out this form to donate codes, or send it to friends in this community in need of one. forms.gle/G7kRALEvha2o...
Things I can do now, I could not do if healthy #4
I can now travel for longer periods as I don't have to take vacation days. Being able to do so I can rest a lot and actually see things and enjoy myself. One or two sights a week are more than I hoped for. Life is good too me atm ❤️
#LC #ME #optimist
I can now travel for longer periods as I don't have to take vacation days. Being able to do so I can rest a lot and actually see things and enjoy myself. One or two sights a week are more than I hoped for. Life is good too me atm ❤️
#LC #ME #optimist
October 21, 2023 at 11:16 AM
Things I can do now, I could not do if healthy #3
I have now time to sit and observe my environment more. I've seen more bugs, bumblebees and birds than I ever did before. I am more aware of my surroundings as it's necessary now. But it's also making my world richer.
#LC #ME #optimist
I have now time to sit and observe my environment more. I've seen more bugs, bumblebees and birds than I ever did before. I am more aware of my surroundings as it's necessary now. But it's also making my world richer.
#LC #ME #optimist
October 21, 2023 at 11:13 AM
Things I learned since I got my chronic illness #7
The low fodmap diet is hard. IBS symptoms are harder.
#lowfodmap saved my everyday life. After many years of struggle I managed to get some tolerance to sorbitol and mannitol! Sometimes I even find good on restaurant manues! ❤️😍
#LC #ME/CFS #IBS
The low fodmap diet is hard. IBS symptoms are harder.
#lowfodmap saved my everyday life. After many years of struggle I managed to get some tolerance to sorbitol and mannitol! Sometimes I even find good on restaurant manues! ❤️😍
#LC #ME/CFS #IBS
October 21, 2023 at 11:12 AM
Things I learned since I got my chronic illness #7
The low fodmap diet is hard. IBS symptoms are harder.
#lowfodmap saved my everyday life. After many years of struggle I managed to get some tolerance to sorbitol and mannitol! Sometimes I even find good on restaurant manues! ❤️😍
#LC #ME/CFS #IBS
The low fodmap diet is hard. IBS symptoms are harder.
#lowfodmap saved my everyday life. After many years of struggle I managed to get some tolerance to sorbitol and mannitol! Sometimes I even find good on restaurant manues! ❤️😍
#LC #ME/CFS #IBS
Reposted by Konepone
Wie mache ich Umfragen bei Bluesky? Das ist zum Beispiel über die Seite poll.blue/post möglich. Die Umfrage könnt ihr dort erstellen, müsst euren Account Namen eintragen sowie ein APP Passwort das ihr bei Bluesky nur für diese App unter “App passwords”anlegt.
October 20, 2023 at 10:33 AM
Wie mache ich Umfragen bei Bluesky? Das ist zum Beispiel über die Seite poll.blue/post möglich. Die Umfrage könnt ihr dort erstellen, müsst euren Account Namen eintragen sowie ein APP Passwort das ihr bei Bluesky nur für diese App unter “App passwords”anlegt.
Things I learned since I got my chronic illness #6
Not to feel ashamed needing to use equipment like a wheelchair or a shower chair. It makes my life so much easier. They are my tools to get through the day without having to be bedridden constantly. Don't wait using them!
#LC #ME/CFS #POTS
Not to feel ashamed needing to use equipment like a wheelchair or a shower chair. It makes my life so much easier. They are my tools to get through the day without having to be bedridden constantly. Don't wait using them!
#LC #ME/CFS #POTS
October 19, 2023 at 8:46 AM
Reposted by Konepone
So glad you made it! And yes, hashtags are a thing here, though they work a bit differently. Seeing them requires clicking the big # sign on the left of the screen, and then following a feed for that hashtag.
October 16, 2023 at 3:49 PM
So glad you made it! And yes, hashtags are a thing here, though they work a bit differently. Seeing them requires clicking the big # sign on the left of the screen, and then following a feed for that hashtag.