Jen King
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kingjen.bsky.social
Jen King
@kingjen.bsky.social
Expert of data privacy, algo manipulation (dark patterns), & artificial intelligence. Privacy & Data Policy Fellow, Stanford HAI. Outdoors fanatic and nuts enough to swim in the SF bay. I bleed blue & gold (Berkeley I-School). Former trust & safety Yahoo!
I get zero 'I told you so' pleasure out of this whole mess (at least for the users!). That is very interesting (but not good) that you are locked out--I've been wondering whether they will continue to staff enough to honor the surge in deletion requests I assume they are getting.
March 26, 2025 at 6:34 PM
If the genetic data stays in CA and another business attempts to work with the data I assume those rights to access and delete are still in force. No idea if a bankruptcy court has any discretion to consider the impact of a sale on Californians' legal rights over that data. If you know, chime in!
March 26, 2025 at 6:08 PM
CalGIPA was written with a functional business in mind; the statute has no mention of bankruptcy assets. What if the company is sold for parts and the genetic data leaves CA or even the US? privacyrights.org/resources-to...
Genetic Information Privacy Act (California) | Privacy Rights Clearinghouse
The Genetic Information Privacy Act is a California law that places data collection, use, security and disclosure requirements on direct-to-consumer genetic testing companies and provides consumers wi...
privacyrights.org
March 26, 2025 at 6:08 PM
And none of this excuses the core fact that using Signal in this context was way outside standard procedure!
March 26, 2025 at 5:50 PM
I'm in a large group chat on the app. My only usability critique is that the app could offer a confirmation step when adding users to a group, either one by one or en masse. Even so, navigating a large group on a small mobile screen has its inherent challenges.
March 26, 2025 at 5:50 PM
Now the company is now bankrupt--and our Attorney General is reminding customers that you can request to delete your data before you completely lose control over it in bankruptcy proceedings: oag.ca.gov/news/press-r...
March 25, 2025 at 5:02 PM
These early adopters felt very assured that there was no way the company could fail, and that their data was well protected, even though at the time there were no laws at all that specifically protected their consumer-collected genetic data in this context.
March 25, 2025 at 5:02 PM
"I read though enough of their disclosure information on their initial website that I felt comfortable that their objectives were clear and true, and they couldn't be bought."
I conducted these interviews already eight years ago.
March 25, 2025 at 5:02 PM
"I trust them as a company. I trust them to keep my data secure."
"The most brilliant people are working at that company."
"I had a level of trust in their integrity."
March 25, 2025 at 5:02 PM
Most could not foresee such a risk. Here's a few quotes:
"I guess that I felt like I knew that this company was related to Google, and it it wasn't a company I knew nothing about. . . it was like a it's a company next door."
"They're well-established, they have protocols to protect their services."
March 25, 2025 at 5:02 PM
I used Twitter for work: both connecting with others in my area of expertise and to find info that would otherwise be lost to me or buried on a mailing list that I might not even know about. LI doesn’t facilitate conversation like Twitter or Bluesky.
November 22, 2024 at 6:01 PM
Linked In is a job/ career networking site. It works well enough for that. But as a Twitter replacement (which is how I tried to use it for the past year) it was terrible. This site is already 1000x better.
November 22, 2024 at 5:58 PM
It is from the 18th century?
November 20, 2024 at 8:57 PM
If you ever elect to become a parent, you'll be ultra-radicalized on the topic of child care affordability.
November 18, 2024 at 7:39 PM
Agreed it’s not a magic health solution. I do feel better standing compared to sitting all day, which I can barely tolerate now after years of standing. I have eyed an under desk treadmill to up the ante …
November 14, 2024 at 7:43 PM