Arnold D.
kidneyrebel.bsky.social
Arnold D.
@kidneyrebel.bsky.social
Kidney patient. Need more innovation in kidney care. Bring dialysis into the 21st century. Make tomorrow’s kidney care unrecognizable from today’s.
The Sunday plenary xenotransplantation session at #KidneyWk is worth watching on YouTube.

In addition to so many exciting developments, glad to hear the patient voice is helping drive innovation forward.
November 18, 2025 at 5:21 AM
“Everyone Lives” - Target ALS documentary worth watching.
Three operating principles:
• Impatient Optimism (urgency + belief)
• Deliberate Disruption (break what’s broken)
• Radical Collaboration (dissolve silos)

Time to get deliberately impatient about kidney health.
November 15, 2025 at 5:44 AM
Great #KidneyWk. Exciting developments in pharma and transplantation. But here’s what keeps me up: dialysis innovation has barely moved. It’s the third leg of the stool, and we’re pretending a two-legged stool is stable. Time to get serious about breakthrough dialysis technology.
November 9, 2025 at 10:29 PM
Surprised when basic science kidney researchers at #KidneyWk tell me they rarely talk with kidney patients. We need to flip this. Show researchers the real lives their work impacts. Motivation isn’t abstract — it’s human. Let’s build those connections systematically.
November 9, 2025 at 5:40 PM
Excellent #KidneyWk presentation by @glombandit.bsky.social on why kidney biopsies still matter in membranous nephropathy. Plus the integration of rigorous clinical thinking with her kidney artwork. Well done.
November 9, 2025 at 1:45 AM
Seeing @daniel-batlle.bsky.social and @jwaitz.bsky.social at #KidneyWk — always a reminder that nephrology’s strength is in its people. Leaders who engage, contribute, and elevate the conversation.
November 9, 2025 at 12:15 AM
#KidneyWk: Join us for a policy/advocacy/community health meetup. If you are interested in these topics, this conversation is for you. Today at 6pm. Open to all.
November 6, 2025 at 9:35 PM
Kidney Week. Here to connect with the people building nephrology’s unrecognizable future. DMs open. #KidneyWk
November 6, 2025 at 6:53 AM
Interested in policy, advocacy, and population health to benefit 850 million people with kidney disease? Stop by the meet up at #KidneyWk.
November 1, 2025 at 5:25 PM
Going to Kidney Week and interested in policy, advocacy, and population health?

Join us at the meet up at #KidneyWK!
October 25, 2025 at 7:11 PM
Kidney disease isn't keeping me down. Explored Toronto running a half marathon.
October 21, 2025 at 3:01 AM
Happy Diwali to everyone who is celebrating!
October 20, 2025 at 3:12 PM
Interested in policy, advocacy, and population health? Join us at the meet up at #KidneyWK!
October 19, 2025 at 2:00 AM
Hi #NephJC. If you or anyone you know are going to Kidney Week and have an interest in policy, advocacy, or population health, consider dropping by the meet-up below.
October 14, 2025 at 11:11 PM
Thank you to Orhi Esarte Palomero, PhD. for a tour of his advanced electron microscope lab at @nu-nephrology.bsky.social that is doing pioneering work in visualizing the molecular basis of kidney and other diseases.

news.feinberg.northwestern.edu/2025/08/12/n...
October 7, 2025 at 1:22 AM
Thank you to @nu-nephrology.bsky.social for hosting me at renal grand rounds today. Such a thrill to talk about creating an unrecognizable future for nephrology.
September 26, 2025 at 12:40 AM
Super excited to give renal grand rounds at @nu-nephrology.bsky.social. If you are interested in watching, DM me and I'll send you the Zoom link.
September 24, 2025 at 10:32 PM
Excited to give Renal Grand Rounds at @nu-nephrology.bsky.social The place where my kidney advocacy all started.
September 1, 2025 at 5:09 PM
First Triathlon done.
August 23, 2025 at 7:48 PM
My daughter in medical school evangelizing Nephrology as she moves apartments.
July 26, 2025 at 10:49 PM
Rough NIH Senate Appropriations Committee hearing. Let's keep the pressure on.

If you are impacted by NIH funding - which is basically all of us - contact your elected officials, speak up, and speak out.
June 12, 2025 at 11:06 PM
Let's support the courageous scientists who wrote the Bethesda Declaration!
June 9, 2025 at 3:45 PM
Great to see so many people at the NKF Illinois Walk who are working hard every day for kidney patients including @nu-nephrology.bsky.social.
June 1, 2025 at 4:36 PM
Tolvaptan for PKD went generic. The insurance company is making me go generic, but I'll always appreciate Otsuka Pharmaceuticals - you funded the drug trials, you stuck with it when times got tough, and you made sure I had access to the medication for almost 7 yrs. @ $10 /month max. 🙏
May 30, 2025 at 10:54 PM
Let’s not let the crisis at the NIH go to waste. Time to redouble our efforts.

Imagine the future research funding if every single member of the US Congress experienced dialysis patients sharing the horrors kidney disease puts on people, families, and government finances.
May 13, 2025 at 12:31 AM