I have ME and migraines that started a few years in. I thought headaches were fairly common? But also so many symptoms are different for different people, so who knows

Love this! I remember seeing it going around before, but wasn't sure where it originated. Was it you?

Of course, since it varies so much which types of exertion and activities cause PEM for different people, it makes sense for personal rules to be individualized

I give myself rules, like no leaving the house more than once a week (& trying to have at least one weekend a month that's just for rest—so nothing social, no errands or appts, etc.), giving myself mornings just to rest cause it's my worst time, never going out in the evenings, bedtime always early