Kernow Fishy
@kernowfishy.bsky.social
Cornish, Software Dev, Guitar player (ish), Gamer, Living with Ankylosing Spondylitis #axialspondyloarthritis disability. Now a Wheelchair and Scooter user. Shares home with cats, dogs and humans.
Gosh yes. Similar , it's changing me a lot. I was always more "us" than "me" in my world view but it's making me both softer and harder at the same time.
November 27, 2025 at 7:05 PM
Gosh yes. Similar , it's changing me a lot. I was always more "us" than "me" in my world view but it's making me both softer and harder at the same time.
Yep, good advice cheers. Not easy but I'm having to.
November 27, 2025 at 7:04 PM
Yep, good advice cheers. Not easy but I'm having to.
Yes that's so true. I am so grateful for the 29 years we've been married. She's a lovely human being, really is.
November 27, 2025 at 7:03 PM
Yes that's so true. I am so grateful for the 29 years we've been married. She's a lovely human being, really is.
I'll vote Labour if it stops reform or the tories, because we face a serious risk of no support given what they are both promising now.
November 27, 2025 at 6:08 PM
I'll vote Labour if it stops reform or the tories, because we face a serious risk of no support given what they are both promising now.
Myself and my dog Arthur are very grateful to have my wife , who retired early to help care for me and took over walking duties for him.
She’s met new friends through it that have been a lovely outlet for her. It can’t be at all easy having this happen to your partner.
She’s met new friends through it that have been a lovely outlet for her. It can’t be at all easy having this happen to your partner.
November 27, 2025 at 4:37 PM
Myself and my dog Arthur are very grateful to have my wife , who retired early to help care for me and took over walking duties for him.
She’s met new friends through it that have been a lovely outlet for her. It can’t be at all easy having this happen to your partner.
She’s met new friends through it that have been a lovely outlet for her. It can’t be at all easy having this happen to your partner.
Yep, spot on.
There is so much I wish I could do. I had so many plans for travelling and enjoying life with my wife when we retired and so many things I hoped to do.
It all involved mobility though so this has blown it away. Getting out at all is very hard now. You have to learn a new life.
There is so much I wish I could do. I had so many plans for travelling and enjoying life with my wife when we retired and so many things I hoped to do.
It all involved mobility though so this has blown it away. Getting out at all is very hard now. You have to learn a new life.
November 27, 2025 at 4:35 PM
Yep, spot on.
There is so much I wish I could do. I had so many plans for travelling and enjoying life with my wife when we retired and so many things I hoped to do.
It all involved mobility though so this has blown it away. Getting out at all is very hard now. You have to learn a new life.
There is so much I wish I could do. I had so many plans for travelling and enjoying life with my wife when we retired and so many things I hoped to do.
It all involved mobility though so this has blown it away. Getting out at all is very hard now. You have to learn a new life.
lol! Super power! We speak in code.
November 27, 2025 at 3:52 PM
lol! Super power! We speak in code.
“Lost feeling in my feet”. Brain fog moment.
November 27, 2025 at 3:26 PM
“Lost feeling in my feet”. Brain fog moment.
Yes so true! People who know what it actually means to be vulnerable, to suffer and to be political footballs!
November 27, 2025 at 3:23 PM
Yes so true! People who know what it actually means to be vulnerable, to suffer and to be political footballs!
It was that which lead to a diagnosis. I went from a fit cyclist and daily dog walker to hardly being able to in two years as my body got worse rapidly. So fast.
November 27, 2025 at 3:23 PM
It was that which lead to a diagnosis. I went from a fit cyclist and daily dog walker to hardly being able to in two years as my body got worse rapidly. So fast.
So true, I wish they could see that.
Goodness , I’m so sorry.
You must have been a decent and compassionate official. The world definitely needs more of that.
Our lives can change so quickly. I was out cycling three years ago and fell off my bike as I lost feeling only feet.
Goodness , I’m so sorry.
You must have been a decent and compassionate official. The world definitely needs more of that.
Our lives can change so quickly. I was out cycling three years ago and fell off my bike as I lost feeling only feet.
November 27, 2025 at 3:21 PM
So true, I wish they could see that.
Goodness , I’m so sorry.
You must have been a decent and compassionate official. The world definitely needs more of that.
Our lives can change so quickly. I was out cycling three years ago and fell off my bike as I lost feeling only feet.
Goodness , I’m so sorry.
You must have been a decent and compassionate official. The world definitely needs more of that.
Our lives can change so quickly. I was out cycling three years ago and fell off my bike as I lost feeling only feet.
Something I'm learning a lot about . A club you never think you'll join but one full of supportive , strong and brilliant people .
November 27, 2025 at 3:08 PM
Something I'm learning a lot about . A club you never think you'll join but one full of supportive , strong and brilliant people .
Thank you, likewise. It's vital we care for each others because it's all too obvious there are powerful people who'd really rather we did not exist.
Screw them hey.
Screw them hey.
November 27, 2025 at 3:07 PM
Thank you, likewise. It's vital we care for each others because it's all too obvious there are powerful people who'd really rather we did not exist.
Screw them hey.
Screw them hey.
Gosh , that is so much my experience.
It's incredibly hard . I didn't realise how much of my identity was wrapped up in my profession and how much I got my sense of achievement from it.
Yep the horrible pain , fatigue , exhaustion killed it
So upsetting to hear politicians utterly dismiss it.
It's incredibly hard . I didn't realise how much of my identity was wrapped up in my profession and how much I got my sense of achievement from it.
Yep the horrible pain , fatigue , exhaustion killed it
So upsetting to hear politicians utterly dismiss it.
November 27, 2025 at 3:05 PM
Gosh , that is so much my experience.
It's incredibly hard . I didn't realise how much of my identity was wrapped up in my profession and how much I got my sense of achievement from it.
Yep the horrible pain , fatigue , exhaustion killed it
So upsetting to hear politicians utterly dismiss it.
It's incredibly hard . I didn't realise how much of my identity was wrapped up in my profession and how much I got my sense of achievement from it.
Yep the horrible pain , fatigue , exhaustion killed it
So upsetting to hear politicians utterly dismiss it.
They are great !
I used to run warm and not need much covering but not anymore.
Now I know how great they are!
She's brilliant , thank you. I'm very grateful, I really am.
I used to run warm and not need much covering but not anymore.
Now I know how great they are!
She's brilliant , thank you. I'm very grateful, I really am.
November 27, 2025 at 3:03 PM
They are great !
I used to run warm and not need much covering but not anymore.
Now I know how great they are!
She's brilliant , thank you. I'm very grateful, I really am.
I used to run warm and not need much covering but not anymore.
Now I know how great they are!
She's brilliant , thank you. I'm very grateful, I really am.
That is very kind thank you. Same for you. I'm so sorry you also go through this and I hope you get through care, kindness and support you deserve.
November 27, 2025 at 3:00 PM
That is very kind thank you. Same for you. I'm so sorry you also go through this and I hope you get through care, kindness and support you deserve.
Thank you . You're absolutely right. We really shouldn't feel the need to justify ourselves whilst simply existing is so incredibly difficult.
November 27, 2025 at 2:58 PM
Thank you . You're absolutely right. We really shouldn't feel the need to justify ourselves whilst simply existing is so incredibly difficult.
That comes across constantly. She's so angry and downright nasty.
November 27, 2025 at 1:47 PM
That comes across constantly. She's so angry and downright nasty.
I truly hope so. Any message that hate isn’t welcome would be very appreciated.
November 27, 2025 at 12:38 PM
I truly hope so. Any message that hate isn’t welcome would be very appreciated.
not safe to do so as my AS is getting into my key organs now not just my skeleton... though apparently this is perfectly fine in the world of some execrable Tory leader.
November 27, 2025 at 12:12 PM
not safe to do so as my AS is getting into my key organs now not just my skeleton... though apparently this is perfectly fine in the world of some execrable Tory leader.
Thank you. Yeah, Helen was brilliant. As soon as she heard me slurring though sober and shaking like mad she knew what was up.
Now i can't move without her throwing heated things all over me lol. I won't be leaving the house when the temp drops much more than this throughout this winter.
Now i can't move without her throwing heated things all over me lol. I won't be leaving the house when the temp drops much more than this throughout this winter.
November 27, 2025 at 12:11 PM
Thank you. Yeah, Helen was brilliant. As soon as she heard me slurring though sober and shaking like mad she knew what was up.
Now i can't move without her throwing heated things all over me lol. I won't be leaving the house when the temp drops much more than this throughout this winter.
Now i can't move without her throwing heated things all over me lol. I won't be leaving the house when the temp drops much more than this throughout this winter.
Managed to get hypothermia sitting in a warm room. But I didn't realise I need to be very wrapped up now.
I knew something was up when my old eye double vision returned and I felt very drowsy. I was at a friend's. I was shaking like mad when Helen got me and 34 degrees hugging the radiator.
I knew something was up when my old eye double vision returned and I felt very drowsy. I was at a friend's. I was shaking like mad when Helen got me and 34 degrees hugging the radiator.
November 27, 2025 at 11:59 AM
Managed to get hypothermia sitting in a warm room. But I didn't realise I need to be very wrapped up now.
I knew something was up when my old eye double vision returned and I felt very drowsy. I was at a friend's. I was shaking like mad when Helen got me and 34 degrees hugging the radiator.
I knew something was up when my old eye double vision returned and I felt very drowsy. I was at a friend's. I was shaking like mad when Helen got me and 34 degrees hugging the radiator.
Hi Cookie! Lovely to hear from you. Gosh it's been a while? How are you doing ?
Yeah I'm ok. Just getting complications as I progress. Struggling badly to maintain my core temp and battling bradycardia at the same time.
Helen is a star and keeping me wrapped up like a caterpillar.
Yeah I'm ok. Just getting complications as I progress. Struggling badly to maintain my core temp and battling bradycardia at the same time.
Helen is a star and keeping me wrapped up like a caterpillar.
November 27, 2025 at 11:57 AM
Hi Cookie! Lovely to hear from you. Gosh it's been a while? How are you doing ?
Yeah I'm ok. Just getting complications as I progress. Struggling badly to maintain my core temp and battling bradycardia at the same time.
Helen is a star and keeping me wrapped up like a caterpillar.
Yeah I'm ok. Just getting complications as I progress. Struggling badly to maintain my core temp and battling bradycardia at the same time.
Helen is a star and keeping me wrapped up like a caterpillar.
That’s a really good point. Very diverse , from many groups in society and with lots of friends and family.
Her lack of understanding of us is palpable. Sheltered away from us in private schools she seems to have “learned” we are all life long Stella drinking sickness fakers. She’s got no idea.
Her lack of understanding of us is palpable. Sheltered away from us in private schools she seems to have “learned” we are all life long Stella drinking sickness fakers. She’s got no idea.
November 27, 2025 at 11:38 AM
That’s a really good point. Very diverse , from many groups in society and with lots of friends and family.
Her lack of understanding of us is palpable. Sheltered away from us in private schools she seems to have “learned” we are all life long Stella drinking sickness fakers. She’s got no idea.
Her lack of understanding of us is palpable. Sheltered away from us in private schools she seems to have “learned” we are all life long Stella drinking sickness fakers. She’s got no idea.