More tapes for cleaning my apartment to

More good stuff!

lol. as my 7yo would say (incorrectly in all regards), oh he cooked you up

so far I've called kohl's and lego directly and they both just shrugged and said yeah we don't do that. lots of lost sales I'd imagine?? why wouldn't more companies just have that feature be a default option? you can share the lists but not edit any settings for them. anybody have any ideas?

punkles?

Thank you. I know it will, there’s just so much fear right now. Congrats to her!

fuck that shit! universal healthcare! federal cancer funding and programming! we have so much work to do. it's so heartbreaking to live everyday watching children battle not only cancer but real live human beings who have joined the battle on its side 13/13

and if they beat it then they have to get up and deal with a lifetime of side effects and secondary conditions (and cancers!) and the toll such intense treatment takes on growing bodies. which also means they now have pre-existing conditions and that roadblock to getting insured 12/

there are comparatively very few medications approved for childhood cancer treatment and those that are are decades old. childhood cancer research funding gets (got) only 4% of all federal cancer research funding. these kids get kicked to the curb and then kicked again 11/

and just as importantly please do anything within your means to never allow the people cutting childhood cancer research funding and gutting medicare and starving people and encouraging the suffering of kids like mine and our friends' to ever know peace ever again 10/

i guess i just need a space to say that sometimes everything fucking sucks especially cancer especially in children fuck that shit man what the fuck. please keep the family in your thoughts 9/

i've cautiously (and superstitiously) not allowed myself to put too much weight on end-of-treatment and ringing the bell, but now it doesn't feel like it's anything to even look forward to at all. stopping treatment–despite how difficult the treatment has been–is almost a deeper-set fear 8/

a lot of support groups talk about how much you feel like your life is tethered to the next set of lab results. just... go about your day and then come in for a routine thing, maybe your world will come crashing down again maybe it won't. it's... a lot 7/

aside from the cancer itself and its physical treatment and logistics and side effects, the anxiety that engulfs a childhood cancer journey is unlike anything I've ever experienced, and we knew it would never go away but now I worry it won't not only never go away but will intensify 6/

every diagnosis is different, but it's sadly impossible not to also apply all this to our own son, who is due to ring the bell himself in 2 months. just a month ago after the family had gotten their 1st month post-treatment labs they text us to say all looked good and "to give us hope" 5/

he's headed to the ICU to begin again, a different treatment plan this time by the sound of it but no matter what it will completely dictate a couple more years of their lives, best case. the thought of it seems insurmountable, but of course there's no choice but to just gets on with such things 4/

his white blood cell count was 230,000, higher than the original diagnosis. no fatigue, no bruising, no symptoms, within the space of a single month, after 2 ½ years of intense treatment, the cancer returned more aggressively. the pain in our hearts is overwhelming 3/

2 months ago they celebrated end-of-treatment and rang the bell. he's been back playing soccer and has in their words never been stronger and healthier. well today was their 2nd monthly post-treatment labs, the results of which revealed that he'd relapsed 2/