Kat Greacen
@katgreacen.bsky.social
Parent of lgmd2b/r2. Love my family including fur babies. Advocate for accessibility and healthcare for all. 💚🧡💚🧡💚🧡
Hello
My daughter has lgmd2b. How can we help? The Jain foundation is a registry for lgmd2b patients. They also fund research. We also have an international lgmd conference in July in Orlando Florida. Would love to have you attend and speak? How can we further a clinical trial? Thank you!!!
My daughter has lgmd2b. How can we help? The Jain foundation is a registry for lgmd2b patients. They also fund research. We also have an international lgmd conference in July in Orlando Florida. Would love to have you attend and speak? How can we further a clinical trial? Thank you!!!
January 9, 2025 at 5:39 PM
Hello
My daughter has lgmd2b. How can we help? The Jain foundation is a registry for lgmd2b patients. They also fund research. We also have an international lgmd conference in July in Orlando Florida. Would love to have you attend and speak? How can we further a clinical trial? Thank you!!!
My daughter has lgmd2b. How can we help? The Jain foundation is a registry for lgmd2b patients. They also fund research. We also have an international lgmd conference in July in Orlando Florida. Would love to have you attend and speak? How can we further a clinical trial? Thank you!!!