@kallmann-syndrome.bsky.social
Going to restart using Nebido (testosterone undecanoate)
Going to take it every 8 weeks. Hopefully it should give a slightly higher and more stable testosterone level.
#kallmann #hypogonadism #hypogonadotropic #testosterone #hormonereplacementtherapy #nebido #undecanoate #puberty #latebloomer
Going to take it every 8 weeks. Hopefully it should give a slightly higher and more stable testosterone level.
#kallmann #hypogonadism #hypogonadotropic #testosterone #hormonereplacementtherapy #nebido #undecanoate #puberty #latebloomer
March 16, 2025 at 9:36 PM
Going to restart using Nebido (testosterone undecanoate)
Going to take it every 8 weeks. Hopefully it should give a slightly higher and more stable testosterone level.
#kallmann #hypogonadism #hypogonadotropic #testosterone #hormonereplacementtherapy #nebido #undecanoate #puberty #latebloomer
Going to take it every 8 weeks. Hopefully it should give a slightly higher and more stable testosterone level.
#kallmann #hypogonadism #hypogonadotropic #testosterone #hormonereplacementtherapy #nebido #undecanoate #puberty #latebloomer
We are creating a channel on You Tube where I will be asking a Kallmann medical expert some frequently asked questions on #Kallmann syndrome and #Hypogonadotropic Hypogonadism.
We aim to produce a series of 3 - 5 minute videos to help raise awareness of the condition.
youtu.be/QDfpA8NsoFY?...
We aim to produce a series of 3 - 5 minute videos to help raise awareness of the condition.
youtu.be/QDfpA8NsoFY?...
KS / CHH. FAQ. Video 1. What is puberty ?
YouTube video by plymouthlad38
youtu.be
March 8, 2025 at 8:14 PM
We are creating a channel on You Tube where I will be asking a Kallmann medical expert some frequently asked questions on #Kallmann syndrome and #Hypogonadotropic Hypogonadism.
We aim to produce a series of 3 - 5 minute videos to help raise awareness of the condition.
youtu.be/QDfpA8NsoFY?...
We aim to produce a series of 3 - 5 minute videos to help raise awareness of the condition.
youtu.be/QDfpA8NsoFY?...
We have patient groups on Reddit and Facebook where you can talk to other patients with #Kallmann syndrome and #Hypogonadotropic hypogonadism.
www.reddit.com/r/kallmann_s...
www.reddit.com/r/kallmann_s...
Kallmann's Syndrome
/r/kallmann_syndrome is a Subreddit dedicated to mutual support and aide of fellow Kallmann's patients. In addition, it serves as a point of public education, and discussion of the effects of Kallmann...
www.reddit.com
March 8, 2025 at 8:11 PM
We have patient groups on Reddit and Facebook where you can talk to other patients with #Kallmann syndrome and #Hypogonadotropic hypogonadism.
www.reddit.com/r/kallmann_s...
www.reddit.com/r/kallmann_s...
Kallmann syndrome is a rare genetic hormonal condition that affects puberty & fertility. Associated with a lack of sense of smell.
www.tiktok.com/@neilsmith38...
#rarediseaseday #rarediseaseday2025 #kallmann #puberty #hypogonadism #hypogonadotropic #hormone #infertility #anosmia #endocrinology
www.tiktok.com/@neilsmith38...
#rarediseaseday #rarediseaseday2025 #kallmann #puberty #hypogonadism #hypogonadotropic #hormone #infertility #anosmia #endocrinology
There is perhaps a reason I do not put myself in these videos often but I do like talking about Kallmann syndrome to help raise awareness of the condition. Kallmann syndrome is a rare genetic hormonal...
TikTok video by Neil Smith
www.tiktok.com
March 1, 2025 at 9:18 AM
Kallmann syndrome is a rare genetic hormonal condition that affects puberty & fertility. Associated with a lack of sense of smell.
www.tiktok.com/@neilsmith38...
#rarediseaseday #rarediseaseday2025 #kallmann #puberty #hypogonadism #hypogonadotropic #hormone #infertility #anosmia #endocrinology
www.tiktok.com/@neilsmith38...
#rarediseaseday #rarediseaseday2025 #kallmann #puberty #hypogonadism #hypogonadotropic #hormone #infertility #anosmia #endocrinology
Reposted
Behind every face is a unique and powerful story. This #RareDiseaseDay, read the stories behind the faces on our #FacesOfRare wall and add your own photo celebrating yourself or a loved one, living or in memory, here: bit.ly/4g6TEJa
#ShowYourStripes #RareDisease
#ShowYourStripes #RareDisease
February 18, 2025 at 10:01 PM
Behind every face is a unique and powerful story. This #RareDiseaseDay, read the stories behind the faces on our #FacesOfRare wall and add your own photo celebrating yourself or a loved one, living or in memory, here: bit.ly/4g6TEJa
#ShowYourStripes #RareDisease
#ShowYourStripes #RareDisease
Endocrinology appointment today. I am going to switch treatment from testosterone gel back the Nebido injection (testosterone undecanoate).
Starting with a 8 week injection interval.
#kallmannsyndrome #kallmann #puberty #infertility #anosmia #latebloomer #hormonereplacementtherapy #testosterone
Starting with a 8 week injection interval.
#kallmannsyndrome #kallmann #puberty #infertility #anosmia #latebloomer #hormonereplacementtherapy #testosterone
February 25, 2025 at 8:26 PM
Endocrinology appointment today. I am going to switch treatment from testosterone gel back the Nebido injection (testosterone undecanoate).
Starting with a 8 week injection interval.
#kallmannsyndrome #kallmann #puberty #infertility #anosmia #latebloomer #hormonereplacementtherapy #testosterone
Starting with a 8 week injection interval.
#kallmannsyndrome #kallmann #puberty #infertility #anosmia #latebloomer #hormonereplacementtherapy #testosterone
Kallmann syndrome - not a late bloomer.
#rarediseaseday2025 #rarediseaseday #rarediseaseawareness #kallmannsyndrome #kallmann #hypogonadotropichypogonadism #hypogonadism #puberty #infertility #anosmia #latebloomer #hormonereplacementtherapy #endocrinology #hypothalamus #testosterone #oestrogen
#rarediseaseday2025 #rarediseaseday #rarediseaseawareness #kallmannsyndrome #kallmann #hypogonadotropichypogonadism #hypogonadism #puberty #infertility #anosmia #latebloomer #hormonereplacementtherapy #endocrinology #hypothalamus #testosterone #oestrogen
February 24, 2025 at 10:05 PM
#rarediseaseday2025 #raredisease #kallmann #hypogonadotropic #hypogonadism #puberty #infertility #anosmia #gonadotropin
February 23, 2025 at 9:30 PM
There are patient groups for Kallmann syndrome / CHH on Reddit and Facebook.
Message from team of researchers from the University of Cambridge. A 15 min study on diversity and mental health in people with Kallmann syndrome
#kallmann #puberty #raredisease
www.reddit.com/r/kallmann_s...
Message from team of researchers from the University of Cambridge. A 15 min study on diversity and mental health in people with Kallmann syndrome
#kallmann #puberty #raredisease
www.reddit.com/r/kallmann_s...
February 22, 2025 at 1:08 PM
There are patient groups for Kallmann syndrome / CHH on Reddit and Facebook.
Message from team of researchers from the University of Cambridge. A 15 min study on diversity and mental health in people with Kallmann syndrome
#kallmann #puberty #raredisease
www.reddit.com/r/kallmann_s...
Message from team of researchers from the University of Cambridge. A 15 min study on diversity and mental health in people with Kallmann syndrome
#kallmann #puberty #raredisease
www.reddit.com/r/kallmann_s...
Kallmann syndrome - a form of hypogonadotropic hypogonadism.
Rare hormone condition that prevents normal puberty and fertility.
#rarediseaseday #rarediseaseday2025 #kallmannsyndrome #kallmann #hypogonadism #hypogonadotropichypogonadism #puberty #anosmia #hormonereplacementtherapy #endocrinology
Rare hormone condition that prevents normal puberty and fertility.
#rarediseaseday #rarediseaseday2025 #kallmannsyndrome #kallmann #hypogonadism #hypogonadotropichypogonadism #puberty #anosmia #hormonereplacementtherapy #endocrinology
February 19, 2025 at 11:15 PM
Kallmann syndrome - a form of hypogonadotropic hypogonadism.
Rare hormone condition that prevents normal puberty and fertility.
#rarediseaseday #rarediseaseday2025 #kallmannsyndrome #kallmann #hypogonadism #hypogonadotropichypogonadism #puberty #anosmia #hormonereplacementtherapy #endocrinology
Rare hormone condition that prevents normal puberty and fertility.
#rarediseaseday #rarediseaseday2025 #kallmannsyndrome #kallmann #hypogonadism #hypogonadotropichypogonadism #puberty #anosmia #hormonereplacementtherapy #endocrinology
nyaspubs.onlinelibrary.wiley.com/share/H6CMMN...
Kallmann syndrome / hypogonadotropic hypogonadism affects normal puberty and fertility in both males & females.
Fertility treatments are available in the form of gonadotropin therapy.
#kallmann #hypogonadotropic #infertility #puberty #gonadotropin
Kallmann syndrome / hypogonadotropic hypogonadism affects normal puberty and fertility in both males & females.
Fertility treatments are available in the form of gonadotropin therapy.
#kallmann #hypogonadotropic #infertility #puberty #gonadotropin
Current landscape of fertility induction in males with congenital hypogonadotropic hypogonadism
You have to enable JavaScript in your browser's settings in order to use the eReader.
nyaspubs.onlinelibrary.wiley.com
February 16, 2025 at 6:36 PM
nyaspubs.onlinelibrary.wiley.com/share/H6CMMN...
Kallmann syndrome / hypogonadotropic hypogonadism affects normal puberty and fertility in both males & females.
Fertility treatments are available in the form of gonadotropin therapy.
#kallmann #hypogonadotropic #infertility #puberty #gonadotropin
Kallmann syndrome / hypogonadotropic hypogonadism affects normal puberty and fertility in both males & females.
Fertility treatments are available in the form of gonadotropin therapy.
#kallmann #hypogonadotropic #infertility #puberty #gonadotropin
www.ncbi.nlm.nih.gov/books/NBK1334/
I have always found this to be a very helpful review on Kallmann syndrome / hypogonadotropic hypogonadism.
GnRH deficiency is probably a more accurate description of the condition that affects puberty and fertility.
#kallmannsyndrome #puberty #anosmia
I have always found this to be a very helpful review on Kallmann syndrome / hypogonadotropic hypogonadism.
GnRH deficiency is probably a more accurate description of the condition that affects puberty and fertility.
#kallmannsyndrome #puberty #anosmia
Isolated Gonadotropin-Releasing Hormone (GnRH) Deficiency
Isolated gonadotropin-releasing hormone (GnRH) deficiency (IGD) is characterized by inappropriately low serum concentrations of the gonadotropins LH (luteinizing hormone) and FSH (follicle-stimulating...
www.ncbi.nlm.nih.gov
February 16, 2025 at 6:28 PM
www.ncbi.nlm.nih.gov/books/NBK1334/
I have always found this to be a very helpful review on Kallmann syndrome / hypogonadotropic hypogonadism.
GnRH deficiency is probably a more accurate description of the condition that affects puberty and fertility.
#kallmannsyndrome #puberty #anosmia
I have always found this to be a very helpful review on Kallmann syndrome / hypogonadotropic hypogonadism.
GnRH deficiency is probably a more accurate description of the condition that affects puberty and fertility.
#kallmannsyndrome #puberty #anosmia
www.tiktok.com/@neilsmith38...
#kallmann #hypogonadotropic #puberty #latebloomer #rarediseaseday #raredisease #testosterone #anosmia #infertility
#kallmann #hypogonadotropic #puberty #latebloomer #rarediseaseday #raredisease #testosterone #anosmia #infertility
For Rare Disease Day. Kallmann syndrome is a hormone condition where puberty fails to start correctly. I also have no sense of smell and poor hearing. I was incorrectly labelled as a “late bloomer” a...
TikTok video by Neil Smith
www.tiktok.com
February 16, 2025 at 10:59 AM
I was diagnosed with #kallmannsyndrome when I was 23 years old, after being misdiagnosed as being a "late bloomer".
This is one of the first You Tube videos I created, 15 years ago.
youtu.be/NdugznakBGo?...
#puberty #kallmann #hypogonadotropic #infertility #anosmia
This is one of the first You Tube videos I created, 15 years ago.
youtu.be/NdugznakBGo?...
#puberty #kallmann #hypogonadotropic #infertility #anosmia
Kallmann Syndrome - basic introduction.
YouTube video by plymouthlad38
youtu.be
February 2, 2025 at 8:23 PM
I was diagnosed with #kallmannsyndrome when I was 23 years old, after being misdiagnosed as being a "late bloomer".
This is one of the first You Tube videos I created, 15 years ago.
youtu.be/NdugznakBGo?...
#puberty #kallmann #hypogonadotropic #infertility #anosmia
This is one of the first You Tube videos I created, 15 years ago.
youtu.be/NdugznakBGo?...
#puberty #kallmann #hypogonadotropic #infertility #anosmia
#RareDiseaseDay2025 is on 28th Feb.
A video made 8 years ago for Genetic Alliance UK.
#Kallmannsyndrome is a rare genetic endocrine condition that affects puberty and fertility. Patients are often mis diagnosed as "late bloomers".
youtu.be/K3hSC6t2T1U?...
A video made 8 years ago for Genetic Alliance UK.
#Kallmannsyndrome is a rare genetic endocrine condition that affects puberty and fertility. Patients are often mis diagnosed as "late bloomers".
youtu.be/K3hSC6t2T1U?...
Neil's Story
YouTube video by Genetic Alliance UK
youtu.be
February 2, 2025 at 11:37 AM
#RareDiseaseDay2025 is on 28th Feb.
A video made 8 years ago for Genetic Alliance UK.
#Kallmannsyndrome is a rare genetic endocrine condition that affects puberty and fertility. Patients are often mis diagnosed as "late bloomers".
youtu.be/K3hSC6t2T1U?...
A video made 8 years ago for Genetic Alliance UK.
#Kallmannsyndrome is a rare genetic endocrine condition that affects puberty and fertility. Patients are often mis diagnosed as "late bloomers".
youtu.be/K3hSC6t2T1U?...
#GnRH deficiency is perhaps a better term to describe both #Kallmann syndrome & #hypogonadotropic #hypogonadism.
Kallmann syndrome / HH is a secondary hypogonadism condition due to a disruption in GnRH production preventing correct gonadotropin release.
www.ncbi.nlm.nih.gov/books/NBK1334/
Kallmann syndrome / HH is a secondary hypogonadism condition due to a disruption in GnRH production preventing correct gonadotropin release.
www.ncbi.nlm.nih.gov/books/NBK1334/
Isolated Gonadotropin-Releasing Hormone (GnRH) Deficiency
Isolated gonadotropin-releasing hormone (GnRH) deficiency (IGD) is characterized by inappropriately low serum concentrations of the gonadotropins LH (luteinizing hormone) and FSH (follicle-stimulating...
www.ncbi.nlm.nih.gov
February 1, 2025 at 9:27 PM
#GnRH deficiency is perhaps a better term to describe both #Kallmann syndrome & #hypogonadotropic #hypogonadism.
Kallmann syndrome / HH is a secondary hypogonadism condition due to a disruption in GnRH production preventing correct gonadotropin release.
www.ncbi.nlm.nih.gov/books/NBK1334/
Kallmann syndrome / HH is a secondary hypogonadism condition due to a disruption in GnRH production preventing correct gonadotropin release.
www.ncbi.nlm.nih.gov/books/NBK1334/
Patients with #Kallmann syndrome / #hypogonadotropic hypogonadism do not experience #mini-puberty, the post natel hormone surge around 3 to 6 months of age.
Testing at this stage can offer a chance of early diagnosis and treatment for male patients.
pmc.ncbi.nlm.nih.gov/articles/PMC...
Testing at this stage can offer a chance of early diagnosis and treatment for male patients.
pmc.ncbi.nlm.nih.gov/articles/PMC...
Mini-Puberty, Physiological and Disordered: Consequences, and Potential for Therapeutic Replacement
There are 3 physiological waves of central hypothalamic-pituitary-gonadal (HPG) axis activity over the lifetime. The first occurs during fetal life, the second—termed “mini-puberty”—in the first month...
pmc.ncbi.nlm.nih.gov
February 1, 2025 at 8:50 PM
Patients with #Kallmann syndrome / #hypogonadotropic hypogonadism do not experience #mini-puberty, the post natel hormone surge around 3 to 6 months of age.
Testing at this stage can offer a chance of early diagnosis and treatment for male patients.
pmc.ncbi.nlm.nih.gov/articles/PMC...
Testing at this stage can offer a chance of early diagnosis and treatment for male patients.
pmc.ncbi.nlm.nih.gov/articles/PMC...
Reposted
Contributions of common genetic variants to constitutional delay of #puberty and idiopathic hypogonadotropic #hypogonadism.
doi.org/10.1210/clin...
Featured study in #JCEM. #FreeToView
#genetics #KallmanSyndrome
@endocrinesociety.bsky.social
doi.org/10.1210/clin...
Featured study in #JCEM. #FreeToView
#genetics #KallmanSyndrome
@endocrinesociety.bsky.social
Contributions of Common Genetic Variants to Constitutional Delay of Puberty and Idiopathic Hypogonadotropic Hypogonadism
AbstractContext. Constitutional delay of puberty (CDP) is highly heritable, but the genetic basis for CDP is largely unknown. Idiopathic hypogonadotropic h
doi.org
January 13, 2025 at 1:27 PM
Contributions of common genetic variants to constitutional delay of #puberty and idiopathic hypogonadotropic #hypogonadism.
doi.org/10.1210/clin...
Featured study in #JCEM. #FreeToView
#genetics #KallmanSyndrome
@endocrinesociety.bsky.social
doi.org/10.1210/clin...
Featured study in #JCEM. #FreeToView
#genetics #KallmanSyndrome
@endocrinesociety.bsky.social
youtube.com/shorts/9Po8L...
#Kallmann syndrome is a rare genetic hormone condition that affects puberty and fertility. Patients are often misdiagnosed as "late bloomers" or "late developers". It is not the same condition as late puberty.
#rarediseaseday #patientadvocacy #puberty #kallmann
#Kallmann syndrome is a rare genetic hormone condition that affects puberty and fertility. Patients are often misdiagnosed as "late bloomers" or "late developers". It is not the same condition as late puberty.
#rarediseaseday #patientadvocacy #puberty #kallmann
Rare Disease Day. #kallmann #puberty #hypogonadism #raredisease #rarediseaseawareness
YouTube video by plymouthlad38
youtube.com
January 19, 2025 at 5:03 PM
youtube.com/shorts/9Po8L...
#Kallmann syndrome is a rare genetic hormone condition that affects puberty and fertility. Patients are often misdiagnosed as "late bloomers" or "late developers". It is not the same condition as late puberty.
#rarediseaseday #patientadvocacy #puberty #kallmann
#Kallmann syndrome is a rare genetic hormone condition that affects puberty and fertility. Patients are often misdiagnosed as "late bloomers" or "late developers". It is not the same condition as late puberty.
#rarediseaseday #patientadvocacy #puberty #kallmann
Switching to Bluesky I think.
I am patient advocate for #Kallmann syndrome.
I post information about my rare endocrine condition in the hope to raise awareness and share information.
It is a condition that affects puberty and fertility. It is not the same condition as delayed puberty.
I am patient advocate for #Kallmann syndrome.
I post information about my rare endocrine condition in the hope to raise awareness and share information.
It is a condition that affects puberty and fertility. It is not the same condition as delayed puberty.
December 15, 2024 at 7:43 PM
Switching to Bluesky I think.
I am patient advocate for #Kallmann syndrome.
I post information about my rare endocrine condition in the hope to raise awareness and share information.
It is a condition that affects puberty and fertility. It is not the same condition as delayed puberty.
I am patient advocate for #Kallmann syndrome.
I post information about my rare endocrine condition in the hope to raise awareness and share information.
It is a condition that affects puberty and fertility. It is not the same condition as delayed puberty.