@kaleidoscope-lupus.bsky.social
Great Lupus News: Last week, the US House of Representatives approved $27M in lupus research and programs – the largest in history! Funding is directed to the CDC, DOD, and many other programs important for lupus research and patient support!
Link: https://ow.ly/Xj6Q50Y3oWK
Link: https://ow.ly/Xj6Q50Y3oWK
January 26, 2026 at 2:10 PM
Great Lupus News: Last week, the US House of Representatives approved $27M in lupus research and programs – the largest in history! Funding is directed to the CDC, DOD, and many other programs important for lupus research and patient support!
Link: https://ow.ly/Xj6Q50Y3oWK
Link: https://ow.ly/Xj6Q50Y3oWK
KFL is excited to announce the premier of “Catching the Butterfly: The OB-GYN’s Role in Early Lupus Diagnosis,” the first in our series - Catching the Butterfly: The Power of an Early Lupus Diagnosis!
Link: https://youtu.be/hSOBaAModIc
Link: https://youtu.be/hSOBaAModIc
January 24, 2026 at 8:00 PM
KFL is excited to announce the premier of “Catching the Butterfly: The OB-GYN’s Role in Early Lupus Diagnosis,” the first in our series - Catching the Butterfly: The Power of an Early Lupus Diagnosis!
Link: https://youtu.be/hSOBaAModIc
Link: https://youtu.be/hSOBaAModIc
Announcing KFL’s latest video series featuring the frontline providers who are often the first to recognize lupus symptoms.
Don’t miss the first video, Catching the Butterfly: The OB-GYN’s Role in Early Lupus Diagnosis, which premieres this Saturday.
Don’t miss the first video, Catching the Butterfly: The OB-GYN’s Role in Early Lupus Diagnosis, which premieres this Saturday.
January 22, 2026 at 10:59 PM
Announcing KFL’s latest video series featuring the frontline providers who are often the first to recognize lupus symptoms.
Don’t miss the first video, Catching the Butterfly: The OB-GYN’s Role in Early Lupus Diagnosis, which premieres this Saturday.
Don’t miss the first video, Catching the Butterfly: The OB-GYN’s Role in Early Lupus Diagnosis, which premieres this Saturday.
The connection between the Epstein-Barr virus (EBV) and lupus has been one of the biggest news stories over the past couple of months! What could it mean for you? Check out KFL's blog, "Epstein-Barr Virus and Lupus."
Link: https://kaleidoscopefightinglupus.org/epstein-barr-virus-ebv-and-lupus/
Link: https://kaleidoscopefightinglupus.org/epstein-barr-virus-ebv-and-lupus/
January 21, 2026 at 2:05 PM
The connection between the Epstein-Barr virus (EBV) and lupus has been one of the biggest news stories over the past couple of months! What could it mean for you? Check out KFL's blog, "Epstein-Barr Virus and Lupus."
Link: https://kaleidoscopefightinglupus.org/epstein-barr-virus-ebv-and-lupus/
Link: https://kaleidoscopefightinglupus.org/epstein-barr-virus-ebv-and-lupus/
The word "hug" comes from the word "hugga" meaning "to comfort" in the Old Norse language ... first appearing approximately 450 years ago. Here is a virtual hug from KFL!
January 21, 2026 at 2:00 PM
The word "hug" comes from the word "hugga" meaning "to comfort" in the Old Norse language ... first appearing approximately 450 years ago. Here is a virtual hug from KFL!
Join KFL in thanking those care partners who do so much in helping others!
January 20, 2026 at 12:00 PM
Join KFL in thanking those care partners who do so much in helping others!
Lupus in the News: We have been following the latest positive results of AstraZeneca’s Phase 3 trials on patients who self-administer Saphnelo!
Link to announcement: https://ow.ly/oz2Z50XZtVi
Link to announcement: https://ow.ly/oz2Z50XZtVi
January 19, 2026 at 2:05 PM
Lupus in the News: We have been following the latest positive results of AstraZeneca’s Phase 3 trials on patients who self-administer Saphnelo!
Link to announcement: https://ow.ly/oz2Z50XZtVi
Link to announcement: https://ow.ly/oz2Z50XZtVi
Fatigue is by FAR the number 1 debilitating issue - affecting at least 80% - for those living with lupus! Yet, there are many types of #fatigue.
To learn more, check out KFL's article about one kind, "Chronic Fatigue Syndrome and Lupus" with this link: https://ow.ly/14YU50XQr1a
To learn more, check out KFL's article about one kind, "Chronic Fatigue Syndrome and Lupus" with this link: https://ow.ly/14YU50XQr1a
January 14, 2026 at 2:35 PM
Fatigue is by FAR the number 1 debilitating issue - affecting at least 80% - for those living with lupus! Yet, there are many types of #fatigue.
To learn more, check out KFL's article about one kind, "Chronic Fatigue Syndrome and Lupus" with this link: https://ow.ly/14YU50XQr1a
To learn more, check out KFL's article about one kind, "Chronic Fatigue Syndrome and Lupus" with this link: https://ow.ly/14YU50XQr1a
Lupus in the News: The results of a recent Phase 2 study has found that nipocalimab ( Johnson and Johnson), which is FDA approved to treat myasthenia gravis, showed positive results for SLE.
Link: https://ow.ly/YOZN50XVgk1
Link: https://ow.ly/YOZN50XVgk1
January 12, 2026 at 2:05 PM
Lupus in the News: The results of a recent Phase 2 study has found that nipocalimab ( Johnson and Johnson), which is FDA approved to treat myasthenia gravis, showed positive results for SLE.
Link: https://ow.ly/YOZN50XVgk1
Link: https://ow.ly/YOZN50XVgk1
We are excited to re-release our educational video, “Entering the Rheum: Preparing for Your Doctor Visit and Beyond!” featuring rheumatologist Sharon Dowell, MD on how to best approach your next appointment!
Check it out by clicking on this link: https://ow.ly/mWNi50XQKcU
Check it out by clicking on this link: https://ow.ly/mWNi50XQKcU
January 10, 2026 at 10:00 PM
We are excited to re-release our educational video, “Entering the Rheum: Preparing for Your Doctor Visit and Beyond!” featuring rheumatologist Sharon Dowell, MD on how to best approach your next appointment!
Check it out by clicking on this link: https://ow.ly/mWNi50XQKcU
Check it out by clicking on this link: https://ow.ly/mWNi50XQKcU
Drug-induced lupus is one of the four main types that also include SLE, cutaneous lupus and neo-natal lupus.
January 9, 2026 at 2:01 PM
Drug-induced lupus is one of the four main types that also include SLE, cutaneous lupus and neo-natal lupus.
Are you one of the 25-75% of those with lupus who experience depression? What causes depression, and what can you do to feel better?
Check out KFL's article, "Dealing with a Lupus Depression: How Do You Cope?" with this link: https://kaleidoscopefightinglupus.org/dealing-lupus-depression-cope/
Check out KFL's article, "Dealing with a Lupus Depression: How Do You Cope?" with this link: https://kaleidoscopefightinglupus.org/dealing-lupus-depression-cope/
January 7, 2026 at 2:01 PM
Are you one of the 25-75% of those with lupus who experience depression? What causes depression, and what can you do to feel better?
Check out KFL's article, "Dealing with a Lupus Depression: How Do You Cope?" with this link: https://kaleidoscopefightinglupus.org/dealing-lupus-depression-cope/
Check out KFL's article, "Dealing with a Lupus Depression: How Do You Cope?" with this link: https://kaleidoscopefightinglupus.org/dealing-lupus-depression-cope/
Your mental health is just as important as your physical health!!
January 6, 2026 at 1:40 PM
Your mental health is just as important as your physical health!!
Lupus News: New studies have shown the importance of testing for hematuria (blood in urine) for those with lupus nephritis. Persistent hematuria can be a better indicator for kidney long-term kidney damage, than other lupus indicators.
Link: https://ow.ly/Kgaf50XS3jC
Link: https://ow.ly/Kgaf50XS3jC
January 5, 2026 at 5:10 PM
Lupus News: New studies have shown the importance of testing for hematuria (blood in urine) for those with lupus nephritis. Persistent hematuria can be a better indicator for kidney long-term kidney damage, than other lupus indicators.
Link: https://ow.ly/Kgaf50XS3jC
Link: https://ow.ly/Kgaf50XS3jC
We often start every year with this meme, and every year we hope it is the last time we have to use it!
January 2, 2026 at 2:01 PM
We often start every year with this meme, and every year we hope it is the last time we have to use it!
Happy New Year to everyone in the Lupus community!!!
January 1, 2026 at 1:02 PM
Happy New Year to everyone in the Lupus community!!!