I recently wrote a reflective piece for the Polyphony blog @the-polyphony.bsky.social explaining the motivations behind my work on ME, and what I think a medical humanities approach has to offer this field - and health research more generally

thepolyphony.org/2025/10/09/p...

The aim of this year's Big Survey is to illustrate the impact of ME. I will spend three months in early 2026 analysing the data full-time, and we have big plans to make sure we can get the survey responses in front of new audiences (including clinicians, policy makers, academics).

Find out more (and a link to the Big Survey - including a version for adults and another for children and young people) here: www.actionforme.org.uk/research-cam...

The Big Survey will be open until 27th January 2026

I'm really glad to hear this, Sally - thank you for sharing. These harmful beliefs are so insidious, I can really empathise.

I'm sure I'll be able to track it down!

Thanks, Carole - it really was.

Thank you so much, @valerieeliotsmith.bsky.social

This is brilliant! Exactly what I was looking (and, in fact, am still looking) for - thank you ever so much for sending it over

Thank you so much, Veronica! 💜 (Also, did you see the reference to dangerous narratives in the final paragraph of the Opinion piece? I didn’t have enough words to address it in my response - perhaps something for another time…)

ALT TEXT - apologies, part of the alt text had been cut off in the original image/post. I've included it again, in two parts.

Thank you so much for letting me know! Sorry about that - I'll add to the thread and insert it again