We’ve had Evie the EV now for almost a week — and wow we really love her, even more than I expected. What I didn’t anticipate was how significant the smoothness and quiet would be. It feels like you’re just gliding along. John and I enthuse to one another each time we drive her.

I love you, Beth.

Roo loved her too. She showered Beth with kisses, asked for belly rubs, snuggled with her on the couch.

Beth loves animals, and she quickly bonded with Lao, our cat, and Roo, our dog. Lao is a friendly cat, but he rarely sits on the laps of visitors. The first time he settled in her lap, her jaw dropped and her eyes lit up with joy. I wish I had a pic, but I'll hold it in my heart.

Later, we gathered with Rivka Solomon, another powerhouse ME advocate and all-around amazing person, to celebrate Hanukkah and make latkes over Zoom.

On the plaza, we encountered a rabbi lighting a giant menorah for Hanukkah. He gave Beth a small tin menorah and a golden dollar coin. Beth tried to unwrap it for the chocolate inside, only to discover it was a *real* coin, not a chocolate one!

There were so many special moments. Mostly we were at my house, of course, but we were able to go to the plaza to see the Christmas lights and eat dinner out at the heated outdoor patio at the Plaza Cafe.

I'd like to share details of our time together so you know why I'm so confident that her last days were so wonderfully love-filled. Though we've known each other for 12 years, this was the first time she'd been to my home in Santa Fe, and she connected with this land too.

I was lucky to share the last couple of weeks of #BethMazur's life with her. I want you to know: She felt loved when she died. She died because her ME was unbearable. There's nothing more any of us could have done. Effective treatment is the only thing that could have saved her.

Last year, our village had six 100+ year floods. Martin Vigil coordinates emergency response for Santa Fe & knocked on doors checking on everyone, bringing folks sand bags, food, animal food, whatever was needed. Yesterday we had a community picnic and made this award for him.

Last year, six 100+ year floods ripped through our village. New Mexico is planning recovery efforts for us now. An archeologist just inspected it. She said that the acequia (irrigation ditch) that starts on our land likely fed a pueblo from 1000AD. This is what remains of it now.

Hey guys! Let's support our low-vision friends and prod Blue Sky to improve the functionality for screenreades. Email support@bluesky.com as Jaime and I have. Note that you can easily copy the text in the screenshot from the alt-text. #NEISVoid, #mecfs, #LongCovid

This may not look like a big deal, but it is. Me, out in the world! Just for fun! Sitting at a cafe doing some work! The cafe is new to me, too, having sprung up during the years when excursions like this weren’t an option.