Julie Ellis
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juliecarmel1.bsky.social
Julie Ellis
@juliecarmel1.bsky.social
15 followers 39 following 2 posts
Researcher with Cripping Breath, Uni of Sheffield https://www.sheffield.ac.uk/cripping-breath.

Illness & disability | death, dying & bereavement | relationships | everyday life.

https://www.sheffield.ac.uk/education/people/academic/edu/julie-ellis-0
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Reposted by Julie Ellis
crippingbreath.bsky.social
Come and join our next public event 🙌🏽

My life with ventilation: a Cripping Breath and Pathfinders event

#Online #BSL

www.eventbrite.co.uk/e/my-life-wi...

@pathfindersnma.bsky.social @kirstyliddiard1.bsky.social @respfutures.bsky.social @asthmaandlung.org.uk
My Life with Ventilation: a Cripping Breath and Pathfinders Event
An information evening exploring ventilation and respiration among people with muscle-weakening conditions.
www.eventbrite.co.uk
July 22, 2025 at 10:07 AM
Reposted by Julie Ellis
crippingbreath.bsky.social
A new blog post from our Community Researcher, Amanda, on living with rare disease:

"Having your disease announced as a question, or as a joke, as you lie in a hospital bed, unable to move, is upsetting. It is a trigger to the times you struggled to be believed."

sheffield.ac.uk/cripping-bre...
Blog post #13 Living with Rare Disease with Respiratory Involvement
By Amanda Jones, Community Researcher
sheffield.ac.uk
August 5, 2025 at 10:26 AM
Reposted by Julie Ellis
crippingbreath.bsky.social
Important new blog post: SMA Awareness Month: Personal reflections on mouthpiece ventilation

Check it out! 👍

@drsuzanneglover.bsky.social @pathfindersnma.bsky.social @kirstyliddiard1.bsky.social

sheffield.ac.uk/cripping-bre...
Blog post #14 SMA Awareness Month: Personal reflections on mouthpiece ventilation
By Dr Suzanne Glover, Lead Community Researcher and Research Associate
sheffield.ac.uk
August 11, 2025 at 11:41 AM
Reposted by Julie Ellis
crippingbreath.bsky.social
Do you use #ventilation (bipap/trach/NIV)? Are you interested in theatre? Are you within reach of London? Would you like to work on, or star in, a new adaption of Romeo & Juliet while adding to research on what it means to be ventilated? Find out more at www.cripticarts.org/R&J
A poster for the project, either black on a white background, or white on a black background. The text says: “www.cripticarts.org/R&J Casting: Romeo & Juliet - Title roles & design creative - London - 2025-2027 Seeking ventilation users who want to be paid to train, perform, or work on an adaptation of Romeo and Juliet while adding to research into what it means to be living ventilated. No theatre experience required. Deadline 26th August 2025 Open to anyone who uses bipap/NIV/tracheostomy” At the bottom are logos for CRIPtic Arts, the Wellcome Trust, University of Sheffield and Arts Council England The poster contains a photo of Jamie rehearsing or performing. They are wearing a hospital gown and ventilator mask.
August 6, 2025 at 8:05 AM
Reposted by Julie Ellis
openthanatology.bsky.social
Today we've released a new episode of Open Thanatology Talks! It's titled (How) does the public engage with Advance Care Planning? It's based on one of the panel discussions from our recent conference. open.spotify.com/show/1l3R8lJ... #ThanatologyThursday
Open Thanatology Talks!
Podcast · Open Thanatology Talks! · Welcome to Open Thanatology Talks! A podcast produced by Open Thanatology from The Open University in the United Kingdom. Open Thanatology is the Open…
open.spotify.com
July 10, 2025 at 3:12 PM
Reposted by Julie Ellis
asdsdeath.bsky.social
You're all invited to the next in our series of free online #deathstudies events on Weds 16 July. Hear from Maria Papalampropoulou on the invisibility of perinatal bereavement.

Book here. deathandsociety.org/etn/the-invi...
The invisibility of perinatal bereavement Wednesday 16 July, 09:00 BST Many parents who experience a perinatal loss feel they have no right to express the feeling of loss and grief, unlike those who mourn for socially recognized deaths. This talk explores how the recognition and acceptance of women’s perinatal loss constitutes the main stage of dealing with perinatal bereavement and how healthcare scientists can take center stage to contribute. Maria Papalampropoulou Maria is a social worker with women who have experienced gender-based or domestic violence. She is studying for a PhD in the Anthropolgy of Health. Book here: deathandsociety.org/online-events-series
July 10, 2025 at 3:47 PM
Reposted by Julie Ellis
crippingbreath.bsky.social
*New Blog Post!* Cripping Breath abroad: Conference attendance and considering access www.sheffield.ac.uk/cripping-bre...
Blog post #12 Cripping Breath abroad: Conference attendance and considering access
By Grace Joseph
www.sheffield.ac.uk
July 7, 2025 at 12:48 PM
Reposted by Julie Ellis
openthanatology.bsky.social
Looking for recordings from our past events? We have quite a few in our Open Thanatology Resources page on ORDO: ordo.open.ac.uk/projects/Ope...

#ThanatologyThursday
Open Thanatology Resources
cite all items
ordo.open.ac.uk
July 3, 2025 at 10:53 AM
juliecarmel1.bsky.social
🙌🏻
June 30, 2025 at 10:41 PM
Reposted by Julie Ellis
asdsdeath.bsky.social
📣 Check out our monthly online #deathstudies events from this month until the autumn. All free. All welcome. All available to book right here. deathandsociety.org/online-event...
Online events series. ASDS logo in light blue. The radical fact of death in contemporary political theory Wednesday 25 June, Tomás Speziale The invisibility of perinatal bereavement Wednesday 16 July 2025, Maria Papalampropoulou Bridging isolation: DeathTech and grief support in correctional settings Wednesday 17 September, Rolando Nooks Historic manipulations of American death and dying Wednesday 22 October, Aspen Huls Book here: deathandsociety.org/online-events-series
June 14, 2025 at 2:38 PM
Reposted by Julie Ellis
paul-ord.bsky.social
Good morning! A friendly wee reminder that The Algorithms + Miscarriage Project is now seeking participants for interview. See poster for details...

@tommyscharity.bsky.social @cendeathsociety.bsky.social @asdsdeath.bsky.social @bsatheory.bsky.social

#miscarriage #algorithms #onlinesafety
June 18, 2025 at 10:22 AM
Reposted by Julie Ellis
jen-studies-death.bsky.social
After enthusiastic feedback on the pilot, the
@asdsdeath.bsky.social PGR/ECR 2025-26 mentoring scheme is open for applications - closing 8/9/2025!

Further information is available at deathandsociety.org/mentoring/ - or feel free to get in touch by email.
A green and white advert for the Association for the Study of Death and Society (ASDS) early career mentoring scheme, featuring an enthusiastic quote from a former participant, and the new ASDS logo.
June 25, 2025 at 7:22 AM
juliecarmel1.bsky.social
Absolutely loved chatting about all things breath with my Cripping Breath colleagues ❤️ Read about how we are reimagining what ‘reading’ together looks like
crippingbreath.bsky.social crippingbreath.bsky.social @crippingbreath.bsky.social · Jun 26
Take a look at how our new project reading group went! Our Community Researchers, Artists-in-Residence, academic researchers and clinicians coming together to explore breathing in literature 🙌🏽

www.sheffield.ac.uk/cripping-bre...
Blog post #11 Our first Cripping Breath reading group!
By the Cripping Breath team
www.sheffield.ac.uk
June 26, 2025 at 2:44 PM
Reposted by Julie Ellis
deathandculture.bsky.social
Do get in touch with Paul if you feel able to contribute to his research
June 17, 2025 at 9:33 AM
Reposted by Julie Ellis
asdsdeath.bsky.social
Calling #deathstudies PGRs & Postdocs! Catch up with fellow researchers in a friendly online discussion & support group.
👉 Postdoc group, Wed 25 June, 9:00 BST
👉 PGR group, Thurs 26 June, 18:00 BST
Book here. deathandsociety.org/eventsandgro...
Events & Groups – The Association for the Study of Death and Society
deathandsociety.org
June 19, 2025 at 2:18 PM
Reposted by Julie Ellis
kirstyliddiard1.bsky.social
@fempsych.bsky.social
June 23, 2025 at 9:13 AM
Reposted by Julie Ellis
ericaborgstrom.bsky.social
New paper out - Home death as a conditional ideal: ethnographic insights from an English hospital. Written with Jennifer Rogerson, published in Mortality. www.tandfonline.com/doi/full/10....
Home death as a conditional ideal: ethnographic insights from an English hospital
Advance care planning is a process that involves ascertaining and documenting a patient’s preference for future care, especially in the context of end-of-life care. Based on an ethnographic study o...
www.tandfonline.com
June 23, 2025 at 9:37 AM
Reposted by Julie Ellis
crippingbreath.bsky.social
A great blog post about Revisiting access and inclusion in research methods by our project friends in the Wellcome Anti-Ableist Research Culture (WAARC) project at the University of Sheffield.

www.ncrm.ac.uk/news/show.ph...
NCRM News | Revisiting access and inclusion in research methods
As a part of the Wellcome Anti-Ableist Research Cultures (WAARC) project at the University of Sheffield, we have been exploring ways of making research more inclusive and accessible, and considering
www.ncrm.ac.uk
June 23, 2025 at 7:56 AM
Reposted by Julie Ellis
crippingbreath.bsky.social
...these are conversations we cannot & do not want to avoid [...] we need to find a way to sensitively consider proximity to death and the fragility of life as a reality in our work' - Julie Ellis

www.sheffield.ac.uk/cripping-bre...

@pathfindersnma.bsky.social @cripticarts.bsky.social
Blog post #10 ‘Sitting’ with sadness: death and loss in research
By Julie Ellis
www.sheffield.ac.uk
June 17, 2025 at 12:01 PM
Reposted by Julie Ellis
crippingbreath.bsky.social
Don't forget - we are recruiting Artist Collaborators! Learn more about this fabulous opportunity here!

These artists will participate in a collaborative residency alongside Artist-in-Residence Dr Louise Atkinson.

www.sheffield.ac.uk/cripping-bre...
Artist Collaborator Recruitment
Cripping Breath is recruiting three disabled, chronically ill, and ventilated contemporary artists.
www.sheffield.ac.uk
June 18, 2025 at 9:05 AM