Our #SMA Data Coordinator Aleks (and our mascot Reggie 🦁) are promoting our #NMD #Patient #Registries at the @mdukcharity.bsky.social Awareness Day in Birmingham today.

Come for a chat, or learn more about how we support #MuscularDystrophy communities online: linktr.ee/jwmdrcregistries

Great opening talks by @derm-scientist.bsky.social on the Rare Disease landscape at Newcastle. Looking forward to all the talks today at the Genetics Matters 2025.

We have a new social media account on BlueSky alongside our previous accounts, so please follow us for updates on the translational research we do that brings diagnosis, care and therapy to people living with neuromuscular diseases! 🙌

We are celebrating a publication describing the efficacy of a new MRI sequence call sodium MRI to detect early damage in skeletal muscle of individuals after an exercise.

This is a collaboration between MRI centre & JWMDRC funded by Jain Foundation through the COS study. 🙌

bit.ly/4gviylW

The FSHD North East & Cumbria Engagement Day on November 29th was a great opportunity to connect with the FSHD community and share updates on clinical and research efforts at JWMDRC.

A heartfelt thank you to everyone who attended and contributed to this important event.

I'm glad to take part on the JWMDRC 10-year anniversary. It's impressive to see the impact the centre had during this decade, and I'm positive there's much more to come.