intro!
name: jordan
age: 21
recently diagnosed with Ehlers-Danlos syndrome, Postural orthostatic tachycardia syndrome, and some sort of mast cell disorder.
mobility aid user
i love making friends!

took a small cleaning break because i wanted to try popping a wheelie (ive heard its an important skill for getting over bumps and curbs and stuff!) so far im able to do enough to get iver small bumps, but i dont think id get over a curb lol

currently cleaning my room to make it more accessible with my wheelchair, i want to start building up arm strength so on my bad days i dont need someone to push me! im also doing small arm and shoulder workouts to target those muscles! im hoping ti get PT soon but this will do until then!

figured id update here since this is like a mini journal for my health stuff

i was diagnosed with EDS, mast cell issues (he specifically said mast cell disorder, idk if thats a specific thing or a group though), and he confirmed my POTS diagnosis. lots of new meds, hopefully they help!

Hi im Jordan!
an intro for a pinned
21
BIG swiftie
this is mostly to talk about chronic illness and my life
im getting diagnosed, but the running theory from my dr is EDS, POTS, possibly a GI issue but it comes and goes so unsure rn
happy to make friends! 🫶🫶🫶

making progress on the room! ive gotta move the furniture back and forth until my big fan can dry the whole rug, so its gonna take at least the rest of the night and tomorrow, but im hoping to get as much done tonight as possible.

cleaning up my room from all the rain and all the moving around is making my joints hurt so bad rip