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jojomcp.bsky.social
Jo McPherson
@jojomcp.bsky.social
21 followers 18 following 24 posts
Partnerships & Community Manager for Medics For Rare Disease. This is my personal account and my views are my own. Let’s make #Raresky a thing
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jojomcp.bsky.social
Such a great day! Such amazing stories shared… @loomoomahoo.bsky.social
medicsforrare.bsky.social Medics for Rare Disease @medicsforrare.bsky.social · Mar 10
Lucy and Jo had a great day out in Stoke-on-Trent attending the Living Well symposium hosted by the fabulous Kirsty Hoyle and the Metabolic Support team!

Also in attendance were three of Medics for Rare Disease’s ambassadors Beth Meek, Zoe Morrison and Sophie-Mira R! #LivingWell
March 10, 2025 at 6:48 PM
jojomcp.bsky.social
@helenmaginnis.bsky.social hellllloooooo. You can join the cool gang that is me and @loomoomahoo.bsky.social 😎
March 6, 2025 at 6:57 PM
jojomcp.bsky.social
Last Friday was amazing! So many stripes on show! #ShowYourStripes @medicsforrare.bsky.social
March 6, 2025 at 6:56 PM
jojomcp.bsky.social
Let’s turn @bsky.app stripey today! #ShowYourStripes for #RareDiseaseDay @medicsforrare.bsky.social #RareSky
February 28, 2025 at 1:23 PM
jojomcp.bsky.social
Are you ready to #ShowYourStripes for Rare Disease Day? Check out ideas on how to get involved at www.m4rd.org/rarediseased... and let’s turn #BlueSky stripey on the 28th!
@medicsforrare.bsky.social #RareSky
February 21, 2025 at 1:57 PM
jojomcp.bsky.social
I needed a new toy and a #papertablet was calling my name!! I cannot wait for my ReMarkable 2 to arrive so i can join the cool kids gang with @loomoomahoo.bsky.social
February 20, 2025 at 5:03 PM
jojomcp.bsky.social
Showing off your fancy animation skills @loomoomahoo.bsky.social ! Love it!! #showyourstripes #RareSky
loomoomahoo.bsky.social Lucy McKay @loomoomahoo.bsky.social · Feb 18
Tick Tock Tick Tock. Only 10 days until #RareDiseaseDay so get your socks ready to #ShowYourStripes Show support of 350 million people living worldwide with a rare condition on 28th Feb @medicsforrare.bsky.social
February 19, 2025 at 10:39 AM
jojomcp.bsky.social
Tonight my husband and I attempted a romantic valentines meal. This was our 7-year old son’s contribution #legoflower ❤️
February 14, 2025 at 7:34 PM
jojomcp.bsky.social
A colleague called me tenacious today for stirring up some sibling rivalry among my eldest kids to see who could best promote @medicsforrare.bsky.social #ShowYourStripes in their work place by contacting the Senior Publicity Manager @paramountpictures.bsky.social UK. I’m taking it as a compliment 🤔
February 12, 2025 at 8:09 PM
jojomcp.bsky.social
Calling all those in the #RareSky community… get ready to #ShowYourStripes for Rare Disease Day @medicsforrare.bsky.social @loomoomahoo.bsky.social
February 6, 2025 at 6:59 PM
jojomcp.bsky.social
You heard ‘em… go go go! @medicsforrare.bsky.social @loomoomahoo.bsky.social #RareSky #ShowYourStripes
medicsforrare.bsky.social Medics for Rare Disease @medicsforrare.bsky.social · Feb 6
It's your LAST CHANCE to submit your interest for bulk sock orders for our #ShowYourStripes campaign. The deadline date is the 10th of February (this Monday!) 🧦🦓 Go go go!

us17.list-manage.com/survey?u=364...
February 6, 2025 at 6:44 PM
jojomcp.bsky.social
Amazing work @iiamaish.bsky.social #RareSky
medicsforrare.bsky.social Medics for Rare Disease @medicsforrare.bsky.social · Feb 5
Last week our ambassador Aisha spoke with a local #mentalhealth organisation in Leicester - Jamilas Legacy! Aisha spoke about her lived experience and our upcoming #RareDisease #ShowYourStripes campaign with a group of women who attended the session!
February 5, 2025 at 12:56 PM
jojomcp.bsky.social
Had to try them out!! Getting ready for #RareDiseaseDay #ShowYourStripes @medicsforrare.bsky.social #ThinkRare #RareSky
February 5, 2025 at 9:04 AM
jojomcp.bsky.social
Come and join us ahead of Rare Disease Day and be educated about #RareDisease at this online training with @medicsforrare.bsky.social on 25th Feb #Genetics #Genomics #RD101 #ThinkRare #RareSky
medicsforrare.bsky.social Medics for Rare Disease @medicsforrare.bsky.social · Jan 27
We're holding this fantastic webinar on February 25th! Join us for an engaging and impactful Rare Disease 101 online training session, reimagined with updated content and a fresh new look. Sign up now! 7pm - 9pm.

www.m4rd.org/event/rare-d...
February 4, 2025 at 8:45 PM
jojomcp.bsky.social
I’m proud to be the Partnerships & Community Manager for @medicsforrare.bsky.social Our vision is equitable healthcare for everyone. Our mission is to shape a medical profession that can provide a timely diagnosis and excellent care to people living with rare conditions #RareSky
medicsforrare.bsky.social Medics for Rare Disease @medicsforrare.bsky.social · Jan 23
Hey everyone! We are new to @bsky.app. We are Medics For Rare Disease and our vision is a world in which there is equitable healthcare for everyone 💙

Check out how far we have come in our brand reveal vid!

www.youtube.com/watch?v=LS-m...
How our charity has GROWN over the years!
YouTube video by Medics for Rare Disease
www.youtube.com
January 30, 2025 at 3:56 PM
jojomcp.bsky.social
Yes to #Raresky @loomoomahoo.bsky.social @aaronblocker.com
loomoomahoo.bsky.social Lucy McKay @loomoomahoo.bsky.social · Jan 15
@aaronblocker.com let's try to make #Raresky big before Rare Disease Day on 28th Feb 👌 #RareDisease
January 30, 2025 at 3:50 PM
jojomcp.bsky.social
@medicsforrare.bsky.social official #ShowYourStripes for Rare Disease Day 2025 campaign page is now live!! 🧦 🦓

Go check out their fantastic new assets and get your stripe on ready to raise awareness now: www.m4rd.org/rarediseased...

#ShowYourStripes
#MedicsForRare
January 30, 2025 at 3:02 PM