Jill Williams
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jillswilliams.bsky.social
Jill Williams
@jillswilliams.bsky.social
Science writer, patient advocate, mom, deputy director at the National Urea Cycle Disorders Foundation @nucdf.bsky.social All opinions are my own.
You can still submit comments until 11:59 pm ET on February 3, 2025. Details are the link above 👆🏻
December 12, 2024 at 9:34 PM
✅ Identifying subclinical seizures + background EEG abnormalities can = changes in care
✅ Asymmetry, focal slowing findings may help id patients w/ seizure risk
✅ Neuroimaging should be considered when 👆🏻
✅ EEG can help monitor for increased cranial pressure (3/3)
November 21, 2024 at 6:17 PM
✅ Early consultation w/ pediatric neurology team + neuromonitoring can improve outcomes
✅ EEG is useful even w/o clinical seizures
✅ Patients may need anti-seizure medication in the short term
✅ Older patients may be more likely to require ongoing seizure medication (2/3)
November 21, 2024 at 6:17 PM