jhgoforth ♿
@jhgoforth.bsky.social
♿Muscular dystrophy 筋ジストロフィー
Artist, writer, excess reader of all things history, fiction etc. general purpose smart arse. Lifetime St. Louis Cardinals fan.
Artist, writer, excess reader of all things history, fiction etc. general purpose smart arse. Lifetime St. Louis Cardinals fan.
Sometimes even being wheelchair bound isn't enough. There were plenty of time in my early 20s that I heard the "you don't look disabled" line.
December 4, 2025 at 9:22 AM
Sometimes even being wheelchair bound isn't enough. There were plenty of time in my early 20s that I heard the "you don't look disabled" line.
Still an idea germinating in my brain. The reality of making a comic is still very intimidating to me, particularly because of my health and disability issues, I worry that my ability to do art in a timely and detailed level might not withstand my need to get it done fast to see results.
November 30, 2025 at 4:29 PM
Still an idea germinating in my brain. The reality of making a comic is still very intimidating to me, particularly because of my health and disability issues, I worry that my ability to do art in a timely and detailed level might not withstand my need to get it done fast to see results.
Kind of person I'm ok wishing perpetual diarrhea on for forever.
November 27, 2025 at 11:36 AM
Kind of person I'm ok wishing perpetual diarrhea on for forever.
Saint Obi reclining in despair from lack of treats -- 2025, oils on canvas Jess Zafarris -- artist. $5000 for original.
November 27, 2025 at 5:50 AM
Saint Obi reclining in despair from lack of treats -- 2025, oils on canvas Jess Zafarris -- artist. $5000 for original.
As someone that takes a daily diuretic (to help battle edema), these drugs are no joke. Mine is furosemide and not a super high dosage. Even so, I know that after taking it I have to stay near a bathroom for up to 2hrs after. To do this to unsuspecting women, this guy is a twisted vermin.
November 27, 2025 at 5:44 AM
As someone that takes a daily diuretic (to help battle edema), these drugs are no joke. Mine is furosemide and not a super high dosage. Even so, I know that after taking it I have to stay near a bathroom for up to 2hrs after. To do this to unsuspecting women, this guy is a twisted vermin.
I grew up very rural myself. Northern AR. much more hilly there. All kinds of critters. From deer, turkey, raccoons, coyotes and bobcats. Recent years have even seen return of black bears and in some spots elk. I do miss it sometimes but outdoors aren't particularly power wheelchair accessible.
November 27, 2025 at 5:30 AM
I grew up very rural myself. Northern AR. much more hilly there. All kinds of critters. From deer, turkey, raccoons, coyotes and bobcats. Recent years have even seen return of black bears and in some spots elk. I do miss it sometimes but outdoors aren't particularly power wheelchair accessible.
Please be careful, you seem to be falling in scenic locations! 🤔
November 26, 2025 at 9:44 AM
Please be careful, you seem to be falling in scenic locations! 🤔
November 26, 2025 at 7:19 AM
Somehow I suspect the doggo. Seems innocent but something tells me there is a mischievous side...
November 25, 2025 at 6:34 AM
Somehow I suspect the doggo. Seems innocent but something tells me there is a mischievous side...
If I could I'd love to wander the countrysides of china so much.
November 24, 2025 at 6:54 AM
If I could I'd love to wander the countrysides of china so much.
I had to do a consolidation today in spare bedroom. Finally after ten years and bad health issues being the delay, got a proper desk to make art. Had to make room so I can maneuver power wheelchair around in there with it. Will be nice to have dedicated workspace again.
November 24, 2025 at 6:52 AM
I had to do a consolidation today in spare bedroom. Finally after ten years and bad health issues being the delay, got a proper desk to make art. Had to make room so I can maneuver power wheelchair around in there with it. Will be nice to have dedicated workspace again.
Even wilder if you grew up phys disabled in the Baptist south. People always wanting to lay hands to "heal" you. Hasn't worked so I guess I didn't believe enough so tinker bell, I mean Jesus, had the power to heal me. Thankfully I avoided this stuff until college.
November 24, 2025 at 6:48 AM
Even wilder if you grew up phys disabled in the Baptist south. People always wanting to lay hands to "heal" you. Hasn't worked so I guess I didn't believe enough so tinker bell, I mean Jesus, had the power to heal me. Thankfully I avoided this stuff until college.
And the look when you explain how it's on you as an individual to litigate these things.
November 24, 2025 at 6:42 AM
And the look when you explain how it's on you as an individual to litigate these things.
Yet more of these guys that failed at basic understanding of media. Probably took the wrong message out of fight club and starship troopers too
November 19, 2025 at 6:55 AM
Yet more of these guys that failed at basic understanding of media. Probably took the wrong message out of fight club and starship troopers too
So much water, do they take more bathroom breaks? Or are they all wearing catheters....
November 17, 2025 at 7:21 PM
So much water, do they take more bathroom breaks? Or are they all wearing catheters....
The nurses I have in home call it a nose. Known as HME, heat and moisture exchanger or also known as a swedish nose. It's basically for keeping balance in breathing air temp and moisture (I hate it as it makes stuffy) but can act as a basic masking for trachs. Not quite best mask but something.
November 17, 2025 at 10:29 AM
The nurses I have in home call it a nose. Known as HME, heat and moisture exchanger or also known as a swedish nose. It's basically for keeping balance in breathing air temp and moisture (I hate it as it makes stuffy) but can act as a basic masking for trachs. Not quite best mask but something.
septic pneumonia and that was what sent me into respiratory distress. I was lucky my mom who was still working as a nurse at the time stopped by to check on me since she knew I'd been feeling unwell. Otherwise I'd probably not have made it as I was unresponsive. No memory really till in ICU.
November 17, 2025 at 8:54 AM
septic pneumonia and that was what sent me into respiratory distress. I was lucky my mom who was still working as a nurse at the time stopped by to check on me since she knew I'd been feeling unwell. Otherwise I'd probably not have made it as I was unresponsive. No memory really till in ICU.
For me, it was probably the extra bile that is usually kept in gallbladder was not being stored so I'd get bad heartburn and bowel issues. Progressed to throwing up anything I ate or drank. Plus the edema. Combined with my muscular dystrophy, when sleeping I was getting stuff in lungs which lead to
November 17, 2025 at 8:54 AM
For me, it was probably the extra bile that is usually kept in gallbladder was not being stored so I'd get bad heartburn and bowel issues. Progressed to throwing up anything I ate or drank. Plus the edema. Combined with my muscular dystrophy, when sleeping I was getting stuff in lungs which lead to
I'd been to the doctor many times previously and most I'd got out of it was a strong diuretic prescription. Feels like gallbladder should be something tested for more often but what do I know.
November 17, 2025 at 8:37 AM
I'd been to the doctor many times previously and most I'd got out of it was a strong diuretic prescription. Feels like gallbladder should be something tested for more often but what do I know.
Nearly did kill me. I'd had symptoms of extreme edema and bowel issues. Got so bad I couldn't even keep water down. That was the point I decided something needed to be done. But...my transport required 2 business days to dr.On a Thursday. Friday my gallbladder nearly killed me. 3week ICU and trach
November 17, 2025 at 8:37 AM
Nearly did kill me. I'd had symptoms of extreme edema and bowel issues. Got so bad I couldn't even keep water down. That was the point I decided something needed to be done. But...my transport required 2 business days to dr.On a Thursday. Friday my gallbladder nearly killed me. 3week ICU and trach
I wear a filter on my trach but still try to keep my distance when possible even in hospital. Can't imagine dealing with this stuff as a 17yr old. Got mine in 2017, same year I turned 40.
November 17, 2025 at 8:30 AM
I wear a filter on my trach but still try to keep my distance when possible even in hospital. Can't imagine dealing with this stuff as a 17yr old. Got mine in 2017, same year I turned 40.
I understood, it's extra sad an infection is the cause rather than what we normally worry about. I'm constantly trying my best to avoid the smallest infections but you can only do so much.
November 16, 2025 at 8:37 PM
I understood, it's extra sad an infection is the cause rather than what we normally worry about. I'm constantly trying my best to avoid the smallest infections but you can only do so much.
As a person with a different form of muscular dystrophy than Alice's, we usually fear more about failure of respiratory or heart systems. To have something else be the cause is frustrating. (I too have a trach since 2017 due to complications of gallbladder trying to end me then)
November 16, 2025 at 7:54 PM
As a person with a different form of muscular dystrophy than Alice's, we usually fear more about failure of respiratory or heart systems. To have something else be the cause is frustrating. (I too have a trach since 2017 due to complications of gallbladder trying to end me then)
me the lessons as a child that you don't always get whatever you want. No matter how sad or angry I was, I just couldn't do what everyone else did. I had to figure out my own path forward. Had to relearn that a few times.
November 16, 2025 at 10:12 AM
me the lessons as a child that you don't always get whatever you want. No matter how sad or angry I was, I just couldn't do what everyone else did. I had to figure out my own path forward. Had to relearn that a few times.