jessamyn-ann.bsky.social
@jessamyn-ann.bsky.social
Nah, I’m good.
The left instance, you can see the blood flow to my head (white) nearly colliding w/ my HR (blue). This was me getting out of bed.
The right instance is after Liquid IV. See how much further apart the “streams” are from each other in these instances? This is hydration in action.
#pots #wearlumia
August 6, 2025 at 9:08 PM
Morning Contemplations
June 17, 2025 at 6:27 PM
Good morning SoCal! I think this has been revised down to a 5.2-ish now.
April 14, 2025 at 5:37 PM
My blood flow and heart rate conspired to draw a cute little cow’s head for me today. Aww. 🤦‍♀️
At 5ish I was trying to catch my breath…had carried 3 bags of groceries about 5 feet from car to house. Then I slow-mo crumpled.
#wearlumia #pots #dysautonomia #mecfs #longcovid #neisvoid
March 8, 2025 at 6:13 AM
This is what a flare looks like for me with Lumia. Blue is HR, white is blood flow. Each time the lines meet is when I stood up. I guess it’s time for me to start taking something for these palpitations, too. 😢
*Lumia is not a medical device.
#pots #mecfs #dysautonomia #chronicillness #wearlumia
February 22, 2025 at 6:19 AM
Here I’m doing a live demonstration of what it’s like to live with POTS (or other forms of OI) using my Lumia. We look fine on the outside, but this is what’s happening inside. Remember blue is my HR and gray is blood flow to my head. Note: Lumia is not a medical device.
#wearlumia #pots #mecfs
February 18, 2025 at 7:21 PM
I was diagnosed with Dysautonomia/POTS via a tilt table test w/ my cardiologist, but I had never done a “5 Minute Stand Test” at home. 5 minutes laying, then 5 minutes standing, then 5 minutes laying. Proof is in the pudding, as they say. Textbook POTS right here.
#dysautonomia #pots #wearlumia
February 11, 2025 at 9:40 PM
Daily dog! My fav pic of baby Tango.
February 10, 2025 at 5:51 AM
Back when the big kid was a baby big kid. ❤️
February 7, 2025 at 6:27 AM
Ice cream is life.
February 6, 2025 at 6:47 AM
Tango and her ball
February 3, 2025 at 7:10 PM
Learning all about electrolyte supplements and how they affect my body. Remember, blue line is HR, white is cerebral blood flow. Pic A is my body on Trioral. Pic B is my body on Liquid IV. Lumia allows me to see in real time how these products work for me. Fascinating! #wearlumia #pots #mecfs
February 3, 2025 at 6:06 AM
Ever feel dizzy in the shower? Here’s why. White line is cerebral blood flow and blue line is my heart rate. Those two lines should never cross. Showers are brutal for blood flow.
#wearlumia #dysautonomia #pots #mecfs
January 31, 2025 at 1:57 AM
January 26, 2025 at 6:31 AM
Lost in memories today. ❤️💔
January 21, 2025 at 6:39 AM
Masha and Tango have landed on BlueSky. Get ready for some adventures!
January 20, 2025 at 5:08 AM