Jean Walsh
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jeantw.bsky.social
Jean Walsh
@jeantw.bsky.social
#Raredisease patient (#FriedreichsAtaxia) and advocate
Happily married
Love to be outside and garden
Thanks!! I’ll find your post.
February 22, 2025 at 4:53 PM
Lauren, I just got an email that the NIH/FDA rare disease day is canceled. Is that for real? I get why it might be, but I hope it’s not canceled.
February 22, 2025 at 4:47 PM
You’ll be great
February 21, 2025 at 12:29 AM
All the best Lauren! I will be listening.
February 20, 2025 at 10:01 PM
Thanks Lori from one of your constituents with a #raredisease
February 17, 2025 at 12:07 AM
Thanks for sharing!!
February 11, 2025 at 9:39 PM
Thank you for standing against this! I stand (in MA) with the 30 million #RareDisease patients who need cures that NIH funded research drives.
February 11, 2025 at 12:45 AM