Jacy Sonne ♿️
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jacysonne.bsky.social
Jacy Sonne ♿️
@jacysonne.bsky.social
1.8K followers 1.3K following 3.3K posts
Disability Advocacy ♿️ #FMMECFS #Migraineur #POTS #Dystonia #Spoonie #MyotonicDystrophy
Rare brain tumor survivor
Too many med dx to list here
Domestic Violence and the Disabled
Pro: Science
LGBTQ
BIPOC
AAPI
Posts Replies Media Videos
jacysonne.bsky.social
#InvisibleIllnesses
#NEISvoid
You are not lazy. You are living with an illness that demands more from you than anyone can see. Vis themigrainenetwork
August 27, 2025 at 6:21 PM
jacysonne.bsky.social
#ChronicPain
#NEISvoid
A man standing next to empty medical file shelves. Caption: And here are the medical files of all the chronic pain patients who got better after forced tapers.
August 25, 2025 at 11:45 PM
jacysonne.bsky.social
Instead of The X Files, it's The Med-X Files.
Being chronically ill is just constantly having new conspiracy theories about what's happening in your own body. Via prettysicklupuschick
August 25, 2025 at 11:01 PM
jacysonne.bsky.social
And the chronic pain of it all.

#NEISvoid
Sending love to anyone who is tired of doctors' appointments,of being poked and prodded, of taking pill after pill, of the inevitable side effects of constantly dealing with chronic illness, and the mental load of it all. Your feelings are so valid. Via chronicloveclub
August 25, 2025 at 10:47 PM
jacysonne.bsky.social
And this...
Via the independent JD Vance's team ordered the water levels in Ohio to be raised so he would have ideal kayaking conditions.
August 24, 2025 at 9:15 PM
jacysonne.bsky.social
🤣
I will rise again, like a phoenix that tripped over an extension cord, hurt its shoulder, and then awkwardly stood up. Via sleeping with one leg out of the covers.
August 24, 2025 at 3:06 AM
jacysonne.bsky.social
August 23, 2025 at 12:37 AM
jacysonne.bsky.social
WA State rejected DOJ info sharing on private voter data.
August 23, 2025 at 12:37 AM
jacysonne.bsky.social
Explains WA AG joined OR AG in a lawsuit suing Trump administration to protect voters rights info from state to federal.
August 23, 2025 at 12:28 AM
jacysonne.bsky.social
Some people don't get to live soft lives. We get handed chaos, grief, betrayal, and we have to learn how to bloom anyway. We become the ones who carry others when their world falls apart because we remember what it was like when no one showed up for us. We're not here because it was easy. We're here because we didn't give up.
August 23, 2025 at 12:12 AM
jacysonne.bsky.social
True story...
Via scoobydouchbag on the dead bird app "Still punk as fuck," I whisper as I reach for my pill organize.
August 22, 2025 at 7:57 PM
jacysonne.bsky.social
Me at 4am.
#Painsomnia
#NEISvoid
#ChronicPain
Drawing of a frazzled woman in bed, unable to sleep. Painsomnia sucks! You are completely exhausted but in way too much pain to sleep.
August 21, 2025 at 11:08 AM
jacysonne.bsky.social
True story...the ad was for adult pacifiers and were wearing an adult diaper.
My FB post on how AI ads are ridiculous because they targeted me for an for ad for adult pacifiers and the adult was wearing a diaper.
August 20, 2025 at 8:59 PM
jacysonne.bsky.social
Nothing like going to FB to check on your fellow disabled friends, only to be bombarded with ridiculous ads. True story...
Recounting recent Facebook ads and I received an for adults pacifiers with someone in an adult diaper.
August 20, 2025 at 1:45 AM
jacysonne.bsky.social
Great clapbacks!
#NEISvoid

Via chronicillnrssmemes
Rude comments to the chronically ill: It's just a bad day, not a bad life! Babe, its been a bad decade. Let's not minimize the horror. Have you tried eating healthier? Yes, I'm now sick with kale. What's wrong with you now? Bold of you to assume it's a new problem and not the same one screaming louder. You should really try to be more active! I was. That's why I'm horizontal and rethinking everything. You were fine yesterday! Yeah, yesterday was my trial version of health, it expired. Must be nice to stay home all day! Yeah, it's great, I highly recommend chronic pain as a lifestyle choice.
August 19, 2025 at 1:59 AM
jacysonne.bsky.social
This is Talia Lavin's new book, I've only seen rave reviews on bsky.
Image Talia Lavin new book, Wild Faith, how the Christian right is taking over America
August 17, 2025 at 7:32 PM
jacysonne.bsky.social
#Painsomnia
#NEISvoid
Me: I want to sleep for like 30 hours. Friend: You know that's a coma, right?! Me: God, that sounds so refreshing. I could totally go for a light coma right now.
August 16, 2025 at 11:48 PM
jacysonne.bsky.social
Kimchi-jjiage
I've been so sick, and it's the ultimate comfort food.

www.maangchi.com/recipe/kimch...
Image of Kimchi-jjiage
August 16, 2025 at 11:22 PM
jacysonne.bsky.social
#HeatherHeyer
#Charlottesville
Heather Hyer's favorite color was purple. Do not forget what she stood for. She'll be remembered for being on the right side of history.
August 16, 2025 at 11:04 PM
jacysonne.bsky.social
Disabled technical difficulties.

#BrainFog #NEISvoid
Image of a one-eyed Muppet like character that says, when the brain fog hits mid-sentence and suddenly you've never had a thought in your life.
August 16, 2025 at 9:13 PM
jacysonne.bsky.social
Everyone with their not shocked face.
State Department papers left behind on Alaska hotel printer reveal sensitive Trump-Putin summit details.
August 16, 2025 at 8:43 PM
jacysonne.bsky.social
Felt that in my soul.
August 14, 2025 at 5:16 AM
jacysonne.bsky.social
I don't think it's just #POTS also, super scary.
Image showing high blood 178/94 pulse 130 Low of 69/55 pulse 99
August 14, 2025 at 2:00 AM
jacysonne.bsky.social
Consigned, every chronically ill patient.

#InvisibleIllnesses
#NEISvoid
#MedicalTrauma
Dave Berry quote "I'm a big believer in anesthesia. I think it should be used for every medical procedure, including routine physicals. I'd like to begin knocked out while I was still in the doctor's office waiting room and not regain consciousness until everything is over, ideally in my car, with no memory whatsoever of what happened."
August 12, 2025 at 8:55 PM
jacysonne.bsky.social
The original from 2009...it was in my memories on FB
August 9, 2025 at 7:15 PM