How should patients and the public be involved in evidence synthesis and systematic reviews?

What support do people need to get involved?

Help us understand more and inform Cochrane’s next Patient and Public Involvement Strategy by completing the survey and sharing:

forms.office.com/e/bQq6Z8BCid

It's been a great experience attending the Cochrane Leadership meeting in Lisbon, alongside my colleagues from the Patient and Public Network Executive. As Co-Chair, it's really exciting to see the attention that patient & public involvement in evidence synthesis is getting. #evidence @cochrane.org

Improved data about political and other influences on science is required: "safeguards from the politicisation of citizen-led research are needed"

doi.org/10.1101/2025.08.13.670232

#CitSciOz25 #science #misinformation #disinformation #transparency #data #politics

"lawmakers could either reframe protests relating to scientific data as a legal form of scientific research translation and dissemination, or as ‘illegal protest’."

doi.org/10.1101/2025.08.13.670232

#CitSciOz25 #science #law #protest #slapps

How do we improve citizen science? I'm presenting at the Australian Citizen Science Association conference about how we co-created 10 recommendations with researchers and the public.

You can read our discussion paper pre-print here:

doi.org/10.1101/2025.08.13.670232

#CitSciOz25

"Improving citizen science: Co-creating recommendations with researchers and the public"

A pre-print about an exciting project with Science for All, supported by the Australian Citizen Science Association & the Australian Academy of Science

doi.org/10.1101/2025...
#citizenscience #public #science

We're excited to share the details for the online launch of the Core Outcome Measures for Improving Care (COM-IC).

Join us online this Monday 29th September, 9am AEST:

uqz.zoom.us/j/82827279556

I'm pleased to share that I'm now a Co-Chair of the Cochrane Patient and Public Involvement Network Executive.

Cochrane will no longer use the term ‘consumer’ to represent patients and the public.

Learn more here:

www.cochrane.org/news/cochran...
#public #involvement #research #evidence

"you have to show that the preservation of the planet and of life is not a frantic duty. It’s a pleasure"

Alan Watts

www.organism.earth/library/docu...

#environment #politics #conservation #preservation #AlanWatts

Great to hear Dr Fiona Russo present about involvement in research, including the Involve Australia Guidelines for Community Involvement in Genomic Research:

www.australiangenomics.org.au/projects/inv...

STARDIT is suggested by these guidelines:

stardit.wikimedia.org.au/wiki/0202312...

#HSR24

Great to hear Dr Fiona Russo present about involvement in research, including the Involve Australia Guidelines for Community Involvement in Genomic Research.

www.australiangenomics.org.au/projects/inv...

STARDIT is suggested by these guidelines:

stardit.wikimedia.org.au/wiki/0202312...
#HSR24

Excited to be presenting today about a project to improve the lives of people living with dementia by involving them and other stakeholders in developing outcome measures for care.

STARDIT report here:
stardit.wikimedia.org.au/wiki/0202208...

@scienceforall.bsky.social
@hsraanz.bsky.social
#HSR24

Humanity faces multiple simultaneous crises.

"To understand these crises, we need reliable and trusted information"

Read more in our 'World Evidence Based Healthcare Day' blog:

worldebhcday.org/blog/2024/wh...

#research #evidence #WorldEBHCDay #scienceforall