Today’s panel will explore:
✔️ What this rubric means for quality measurement
✔️ How it can guide clinical practice
✔️ Implications for policy

The IIDDEAL project brought together 200+ stakeholders—
👥 People with #IDD
👩‍👩‍👧 Caregivers
👩‍⚕️ Clinicians
📊 Researchers
🏥 Payers
🏛️ Policymakers

Together, they developed a quality rubric rooted in what matters most to people with IDD.

People with Intellectual & Developmental Disabilities (#IDD) face persistent health inequities:
▪️ Higher #COVID risk
▪️ Higher maternal mortality
▪️ More chronic conditions & preventable injuries
▪️ Greater mental health challenges

In 2024, IEC's IDD Advocate Corps tripled in size from 30 to 90 members. This growing group of self-advocates, care partners, and healthcare professionals is helping to drive real change by sharing lived experience, building trust, and shaping solutions from the inside out.

The Roadmap was shaped by 192 individuals and organizations, including self-advocates, family members, clinicians, researchers, and policymakers. All of whom came together to outline our vision for a better healthcare system.

Learn more in our 2024 Impact Report: www.ie-care.org/making-healt...

✅ Launched the National Roadmap for Disability-Inclusive Healthcare
✅ Developed the Always Uniquely Me app to support self-advocacy in ERs
✅ Created a new 90-minute continuing education course
✅ Expanded the IDD Advocate Corps from 30 to 90 members
✅ Published national IDD health goals in @jama.com

The episode explores the intersections of gender equity, health policy, and care for people with IDD. Dr. Pham shares powerful personal stories, hard-earned lessons, and a call to action for future leaders.

#IDD #HealthEquity #Podcast #WomenInMedicine

In this engaging conversation, Dr. Pham shares her unexpected path to medicine, her powerful advocacy for inclusive reproductive health, and why centering people with intellectual and developmental disabilities (IDD) must be a priority in health policy.

Read the full story here:

cbs6albany.com/news/local/a...

As hundreds gathered to reflect on decades of progress, BJ reminded us all that the fight for disability rights is far from over. Recent federal legislation threatens significant cuts to Medicaid and SNAP benefits, which are lifelines for millions of people with disabilities and their families.

IEC President and CEO Dr. Mai Pham shared the following:

"To all those people with disabilities who are scared about their future today: We hear you. We see you. You are not alone. Whatever challenges come next, we'll face them together."

For Pride Month, we’re sharing 3 helpful resources to inform us how the trans community often overlaps with disability and healthcare. These resources were selected with everyone in mind, but especially allies who are looking to learn more about the basics of offering meaningful support.

The letter makes it clear: these changes would result in coverage losses, hurt healthcare providers, and make it harder for people who do qualify to get care. We continue to urge Congress to protect Medicaid and the people who rely on it.

These proposed cuts would result in millions of people losing access to healthcare, including people with intellectual and/or developmental disabilities (IDD) who already face major barriers to quality care.

Whether you're learning the basics or seeking to make change, this guide puts the best resources at your fingertips.

This guide was developed by IEC’s Research & Learning Committee on the IDD Advocate Corps. Please check it out and share with your network!

The guide includes information to help you:
1️⃣ Understand your rights and the system
2️⃣ Prepare for a healthcare visit
3️⃣ Advocate for change
4️⃣ Support sexual and reproductive health
5️⃣ Organize inclusive programs or events
6️⃣ Review the research