Heather
@hshorten.bsky.social
I was diagnosed with Pompe Disease in 2010 and have since been dedicated to advocating for issues related to rare disease. I founded Pompe Alliance in 2018, an organization that provides services to Pompe patients and their families.
Today is International Pompe Awareness Day and I would like to thank Fernando in Bogota Columbia for sharing what it’s like for him to live with Pompe Disease. #PompeAlliance #PompeAwarenessDay International Pompe Association (IPA)
April 15, 2025 at 1:44 PM
Today is International Pompe Awareness Day and I would like to thank Fernando in Bogota Columbia for sharing what it’s like for him to live with Pompe Disease. #PompeAlliance #PompeAwarenessDay International Pompe Association (IPA)