I know my bsky posts are just crossposts rn but I don't have the energy to uniquely tailor things between sites rn & twits still my main site rn. so... ye.

if anyone wants to explain to me why other forms of overextension don't hit me this hard but writing always does - I'll accept it because I dont know how to live with the idea that I may never be able to write ever again. an explanation would at least band aid a bit.

the cognitive fysfunction is what's been killer since I've got covid 2 years ago. theirs been nothing else like it - I couldn't comprehend TV shows when in acute infection stage - forcing myself to write just triggers insomnia so bad I don't know when it'll end. I can't win.

in some ways bluesky is a premium way to follow me (until I learn otherwise) cause my twit is fully private 90% of the time rn but this is fully free to gawk at whenever chosen.

*breaking out into.

it started last month right before my period, went away, but now it's back. it's getting worse on overextension/screen use but I have almost 0% help so not a lot of options to stop doing the screen times rn. ant advice would be good I guess.

if the stream ever goes down for more than a day then be concerned - i cant use my phone while streaming so it wont be 24/7 right now…

hope i can change that soon.

yet i need them?? to get medical help?? to leave my home??? what is it about THIS DISEASE that makes even other disabled people and orgs hate us that they discard us, instead of offering proper accomodations. im so tired of pleading. of fighting. i just wanna rest and be silly. but i cant.

the combination of MCAS, very severe ME/CFS, gut issues from
LC and dysautonomia all going untreated are making me sicker. dr afrin can change that by at least helping my allergic reactions to medications. so if you can help me out, id so greatly appreciate it. thank you.

pills hit my stomach too harshly from the combination of digestion, MCAS and ME currently. my stomach is in shreds and i need to get at least one thing under control, even if its the medication reactions, to help me try and take some pills to relieve my other symptoms.

i get anaphylaxis from medications and am allergic to most dyes and pill coatings. they make my rhr worse which is *already* super sensitive, and could trigger even worse ME baseline, leaving me untreated for my current PEM inducing digestion. dr afrin would help these issues.

first post wild on here but im flailing floundering flopping; my mom keeps track of nothing and they refuse to accommodate me. i need someone to take the reigns. im going to lose myself soon if someone doesn’t fucking *help* me.