The Hibbs Lupus Trust
@hibbslupustrust.bsky.social
Whatever lupus throws your way, we’re right there with you. We are dedicated to transforming lives touched by lupus. We’re here to support, educate, & advocate.
www.hibbslupustrust.org
www.hibbslupustrust.org
Thank you to everyone who made the Big Bird 5K 2025 so special. From runners to volunteers to our amazing partners — you’ve helped us make a real difference for people living with lupus.
www.hibbslupustrust.org/big-bird-5k-2025-a-morning-of-community-support-and-extraordinary-generosity/
www.hibbslupustrust.org/big-bird-5k-2025-a-morning-of-community-support-and-extraordinary-generosity/
Big Bird 5K 2025: A Morning of Community, Support and Extraordinary Generosity - The Hibbs Lupus Trust
We were truly overwhelmed to see so many people come together — running, walking, cheering and volunteering — all in support of those living with lupus.
www.hibbslupustrust.org
November 23, 2025 at 4:59 PM
Thank you to everyone who made the Big Bird 5K 2025 so special. From runners to volunteers to our amazing partners — you’ve helped us make a real difference for people living with lupus.
www.hibbslupustrust.org/big-bird-5k-2025-a-morning-of-community-support-and-extraordinary-generosity/
www.hibbslupustrust.org/big-bird-5k-2025-a-morning-of-community-support-and-extraordinary-generosity/
Living with lupus means learning to manage the unpredictable. Some days are easier than others, and sometimes symptoms return without warning
www.hibbslupustrust.org/understanding-lupus-flares-what-they-are-and-how-to-manage-them/
www.hibbslupustrust.org/understanding-lupus-flares-what-they-are-and-how-to-manage-them/
Understanding Lupus Flares — What They Are and How to Manage Them - The Hibbs Lupus Trust
Learning to recognise and manage flares is an important part of living well with lupus. We explore what a lupus flare is and the common triggers.
www.hibbslupustrust.org
November 15, 2025 at 7:10 PM
Living with lupus means learning to manage the unpredictable. Some days are easier than others, and sometimes symptoms return without warning
www.hibbslupustrust.org/understanding-lupus-flares-what-they-are-and-how-to-manage-them/
www.hibbslupustrust.org/understanding-lupus-flares-what-they-are-and-how-to-manage-them/
Small actions create big change.
Join thousands of supporters receiving updates, stories of strength, and insight into our work. Sign up today 💜
🔗 www.hibbslupustrust.org/newsletter/
Join thousands of supporters receiving updates, stories of strength, and insight into our work. Sign up today 💜
🔗 www.hibbslupustrust.org/newsletter/
Newsletter Sign Up - The Hibbs Lupus Trust
Join The Hibbs Lupus Trust community! Sign up for our newsletter to receive the latest updates, and ways to support those living with lupus.
www.hibbslupustrust.org
November 15, 2025 at 3:00 PM
Small actions create big change.
Join thousands of supporters receiving updates, stories of strength, and insight into our work. Sign up today 💜
🔗 www.hibbslupustrust.org/newsletter/
Join thousands of supporters receiving updates, stories of strength, and insight into our work. Sign up today 💜
🔗 www.hibbslupustrust.org/newsletter/
Happy Friday from The Hibbs Lupus Trust!
We hope your weekend brings moments of joy, comfort, and well-deserved rest.
To everyone living with lupus: you inspire us every single day. 💜
www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
We hope your weekend brings moments of joy, comfort, and well-deserved rest.
To everyone living with lupus: you inspire us every single day. 💜
www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
The Reality of Living with Lupus: A Daily Struggle Many Don’t See - The Hibbs Lupus Trust
But living well with lupus isn’t just about medication or management—it’s about being seen, heard, and understood.
www.hibbslupustrust.org
November 14, 2025 at 7:39 PM
Happy Friday from The Hibbs Lupus Trust!
We hope your weekend brings moments of joy, comfort, and well-deserved rest.
To everyone living with lupus: you inspire us every single day. 💜
www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
We hope your weekend brings moments of joy, comfort, and well-deserved rest.
To everyone living with lupus: you inspire us every single day. 💜
www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
Early diagnosis is key to managing lupus effectively. If you’re experiencing symptoms or have concerns, don’t hesitate to seek medical advice.
www.hibbslupustrust.org/understanding-lupus-recognising-symptoms-and-navigating-the-nhs-diagnosis-process/
www.hibbslupustrust.org/understanding-lupus-recognising-symptoms-and-navigating-the-nhs-diagnosis-process/
Understanding Lupus: Recognising Symptoms and Navigating the NHS Diagnosis Process - The Hibbs Lupus Trust
The Hibbs Lupus Trus aims to raise awareness about lupus and support individuals in seeking timely diagnosis and care within the NHS.
www.hibbslupustrust.org
October 14, 2025 at 5:44 AM
Early diagnosis is key to managing lupus effectively. If you’re experiencing symptoms or have concerns, don’t hesitate to seek medical advice.
www.hibbslupustrust.org/understanding-lupus-recognising-symptoms-and-navigating-the-nhs-diagnosis-process/
www.hibbslupustrust.org/understanding-lupus-recognising-symptoms-and-navigating-the-nhs-diagnosis-process/
Today is #WorldLupusDay. Lupus isn’t always visible, but its impact is profound. Discover the daily challenges faced by those living with lupus in our latest article. Let’s make lupus visible. 💜
👉 www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
👉 www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
The Reality of Living with Lupus: A Daily Struggle Many Don’t See - The Hibbs Lupus Trust
But living well with lupus isn’t just about medication or management—it’s about being seen, heard, and understood.
www.hibbslupustrust.org
May 10, 2025 at 2:46 PM
Today is #WorldLupusDay. Lupus isn’t always visible, but its impact is profound. Discover the daily challenges faced by those living with lupus in our latest article. Let’s make lupus visible. 💜
👉 www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
👉 www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
We can’t cure lupus yet — but we can ease its burden.
Reach out. Send a message. Make a call.
Connection matters. Empathy matters. Love matters.
We’re here. Join us. #WorldLupusDay
www.hibbslupustrust.org/world-lupus-day-reach-out-show-up-stand-together/
Reach out. Send a message. Make a call.
Connection matters. Empathy matters. Love matters.
We’re here. Join us. #WorldLupusDay
www.hibbslupustrust.org/world-lupus-day-reach-out-show-up-stand-together/
World Lupus Day: Reach Out, Show Up, Stand Together - The Hibbs Lupus Trust
Today, on World Lupus Day, we open our hearts to the thousands of people across the UK — and the millions around the world — who are quietly, courageously living with lupus. For many, lupus is a life ...
www.hibbslupustrust.org
May 10, 2025 at 1:39 PM
We can’t cure lupus yet — but we can ease its burden.
Reach out. Send a message. Make a call.
Connection matters. Empathy matters. Love matters.
We’re here. Join us. #WorldLupusDay
www.hibbslupustrust.org/world-lupus-day-reach-out-show-up-stand-together/
Reach out. Send a message. Make a call.
Connection matters. Empathy matters. Love matters.
We’re here. Join us. #WorldLupusDay
www.hibbslupustrust.org/world-lupus-day-reach-out-show-up-stand-together/
Unraveling the Mystery: Common Questions About Lupus.
Here, we delve into some of the most common questions about lupus, providing you with a better understanding of this chronic illness.
www.hibbslupustrust.org/lupus-questions-and-answers/
Here, we delve into some of the most common questions about lupus, providing you with a better understanding of this chronic illness.
www.hibbslupustrust.org/lupus-questions-and-answers/
Unraveling the Mystery: Common Questions About Lupus - The Hibbs Lupus Trust
At The Hibbs Lupus Trust, we believe in the power of information. Today, we address some of the most commonly asked questions about lupus.
www.hibbslupustrust.org
May 10, 2025 at 9:59 AM
Unraveling the Mystery: Common Questions About Lupus.
Here, we delve into some of the most common questions about lupus, providing you with a better understanding of this chronic illness.
www.hibbslupustrust.org/lupus-questions-and-answers/
Here, we delve into some of the most common questions about lupus, providing you with a better understanding of this chronic illness.
www.hibbslupustrust.org/lupus-questions-and-answers/
How You Can Help This World Lupus Day:
•Wear purple
•Share our posts
•Make a donation
•Host a fundraiser
Every action, no matter how small, makes a difference.
www.hibbslupustrust.org/celebrating-world-lupus-day/
#SupportLupus #PurpleForLupus #TheHibbsLupusTrust #WorldLupusDay
•Wear purple
•Share our posts
•Make a donation
•Host a fundraiser
Every action, no matter how small, makes a difference.
www.hibbslupustrust.org/celebrating-world-lupus-day/
#SupportLupus #PurpleForLupus #TheHibbsLupusTrust #WorldLupusDay
Celebrating World Lupus Day - The Hibbs Lupus Trust
It's time to Go Purple & celebrate World Lupus Day and we’d love for you to join in! Download our World Lupus Day poster here!
www.hibbslupustrust.org
May 8, 2025 at 5:36 AM
How You Can Help This World Lupus Day:
•Wear purple
•Share our posts
•Make a donation
•Host a fundraiser
Every action, no matter how small, makes a difference.
www.hibbslupustrust.org/celebrating-world-lupus-day/
#SupportLupus #PurpleForLupus #TheHibbsLupusTrust #WorldLupusDay
•Wear purple
•Share our posts
•Make a donation
•Host a fundraiser
Every action, no matter how small, makes a difference.
www.hibbslupustrust.org/celebrating-world-lupus-day/
#SupportLupus #PurpleForLupus #TheHibbsLupusTrust #WorldLupusDay
Lupus Doesn’t Look the Same for Everyone.
It’s often called the ‘invisible illness’ – many people with lupus don’t look unwell, but face daily battles with pain, fatigue, and fear.
www.hibbslupustrust.org
#InvisibleIllness #LupusWarrior #TheHibbsLupusTrust #WorldLupusDay
It’s often called the ‘invisible illness’ – many people with lupus don’t look unwell, but face daily battles with pain, fatigue, and fear.
www.hibbslupustrust.org
#InvisibleIllness #LupusWarrior #TheHibbsLupusTrust #WorldLupusDay
The Hibbs Lupus Trust
Our mission is driven by compassion, fuelled by generosity, and bound by a shared determination to fight lupus.
www.hibbslupustrust.org
May 7, 2025 at 7:59 PM
Lupus Doesn’t Look the Same for Everyone.
It’s often called the ‘invisible illness’ – many people with lupus don’t look unwell, but face daily battles with pain, fatigue, and fear.
www.hibbslupustrust.org
#InvisibleIllness #LupusWarrior #TheHibbsLupusTrust #WorldLupusDay
It’s often called the ‘invisible illness’ – many people with lupus don’t look unwell, but face daily battles with pain, fatigue, and fear.
www.hibbslupustrust.org
#InvisibleIllness #LupusWarrior #TheHibbsLupusTrust #WorldLupusDay
Want the latest updates from The Hibbs Lupus Trust? Sign up for our newsletter to hear about events, #lupus support resources, and ways you can make a difference.
www.hibbslupustrust.org/newsletter/
www.hibbslupustrust.org/newsletter/
Newsletter Sign Up - The Hibbs Lupus Trust
Join The Hibbs Lupus Trust community! Sign up for our newsletter to receive the latest updates, and ways to support those living with lupus.
www.hibbslupustrust.org
April 23, 2025 at 12:59 PM
Want the latest updates from The Hibbs Lupus Trust? Sign up for our newsletter to hear about events, #lupus support resources, and ways you can make a difference.
www.hibbslupustrust.org/newsletter/
www.hibbslupustrust.org/newsletter/
World Lupus Day, observed annually on May 10th, is a global initiative aimed at educating the public, advocating for better healthcare policies, and supporting those living with lupus.
www.hibbslupustrust.org/world-lupus-day/
www.hibbslupustrust.org/world-lupus-day/
https://www.hibbslupustrust.org/world-lupus-day/
April 22, 2025 at 11:45 AM
World Lupus Day, observed annually on May 10th, is a global initiative aimed at educating the public, advocating for better healthcare policies, and supporting those living with lupus.
www.hibbslupustrust.org/world-lupus-day/
www.hibbslupustrust.org/world-lupus-day/
Misconceptions about lupus not only add to the physical burden of the disease but can also create unnecessary emotional challenges for those living with it.
www.hibbslupustrust.org/breaking-stigmas-what-lupus-patients-wish-you-knew/
www.hibbslupustrust.org/breaking-stigmas-what-lupus-patients-wish-you-knew/
Breaking Stigmas: What Lupus Patients Wish You Knew - The Hibbs Lupus Trust
Breaking Stigmas: By addressing these myths and promoting understanding, we can create a more supportive environment for lupus patients.
www.hibbslupustrust.org
April 21, 2025 at 6:25 PM
Misconceptions about lupus not only add to the physical burden of the disease but can also create unnecessary emotional challenges for those living with it.
www.hibbslupustrust.org/breaking-stigmas-what-lupus-patients-wish-you-knew/
www.hibbslupustrust.org/breaking-stigmas-what-lupus-patients-wish-you-knew/
The Reality of Living with Lupus: A Daily Struggle Many Don’t See:
www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
The Reality of Living with Lupus: A Daily Struggle Many Don’t See - The Hibbs Lupus Trust
But living well with lupus isn’t just about medication or management—it’s about being seen, heard, and understood.
www.hibbslupustrust.org
March 25, 2025 at 10:08 AM
The Reality of Living with Lupus: A Daily Struggle Many Don’t See:
www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
www.hibbslupustrust.org/the-reality-of-living-with-lupus-a-daily-struggle-many-dont-see/
Breaking Stigmas: By addressing these myths and promoting understanding, we can create a more supportive environment for lupus patients.
www.hibbslupustrust.org/breaking-stigmas-what-lupus-patients-wish-you-knew/
www.hibbslupustrust.org/breaking-stigmas-what-lupus-patients-wish-you-knew/
www.hibbslupustrust.org
March 7, 2025 at 10:56 AM
Breaking Stigmas: By addressing these myths and promoting understanding, we can create a more supportive environment for lupus patients.
www.hibbslupustrust.org/breaking-stigmas-what-lupus-patients-wish-you-knew/
www.hibbslupustrust.org/breaking-stigmas-what-lupus-patients-wish-you-knew/
The daily struggles with pain, fatigue, and uncertainty can take a toll on your mental well-being. It’s crucial to prioritise self-care and find ways to relax. One of the most effective ways to pause and reset is through deep breathing.
www.hibbslupustrust.org/deep-breathing-meditation-for-lupus/
www.hibbslupustrust.org/deep-breathing-meditation-for-lupus/
Take a Moment of Relaxation: Deep Breathing & Meditation for Lupus Warriors - The Hibbs Lupus Trust
Taking time to pause, breathe, and meditate can make a significant difference in your daily life as a lupus warrior.
www.hibbslupustrust.org
February 24, 2025 at 7:44 AM
The daily struggles with pain, fatigue, and uncertainty can take a toll on your mental well-being. It’s crucial to prioritise self-care and find ways to relax. One of the most effective ways to pause and reset is through deep breathing.
www.hibbslupustrust.org/deep-breathing-meditation-for-lupus/
www.hibbslupustrust.org/deep-breathing-meditation-for-lupus/
Our work centres on providing practical support, trusted information, and a compassionate community for anyone living with or concerned about #lupus.
www.hibbslupustrust.org/about/work/
www.hibbslupustrust.org/about/work/
Our Work - The Hibbs Lupus Trust
Advocacy is at the heart of what we do. We champion the needs of lupus patients, striving to make their voices heard.
www.hibbslupustrust.org
January 22, 2025 at 9:33 AM
Our work centres on providing practical support, trusted information, and a compassionate community for anyone living with or concerned about #lupus.
www.hibbslupustrust.org/about/work/
www.hibbslupustrust.org/about/work/
Born from a personal journey with lupus, The Hibbs Lupus Trust is dedicated to creating meaningful change and supporting those affected by this life-altering condition. Discover our story: www.hibbslupustrust.org/about/
About Us - The Hibbs Lupus Trust
The Hibbs Lupus Trust is a UK based charity dedicated to transforming the lives of those affected by lupus.
www.hibbslupustrust.org
January 7, 2025 at 7:16 PM
Born from a personal journey with lupus, The Hibbs Lupus Trust is dedicated to creating meaningful change and supporting those affected by this life-altering condition. Discover our story: www.hibbslupustrust.org/about/
If you’re looking for a thoughtful, last-minute gift idea, don’t forget about our Christmas eCards! Not only are they a wonderful way to send festive cheer, but every card helps support our work. To send an eCard, visit #Lupus Christmas eCards - www.hibbslupustrust.org/ecards/
eCards - The Hibbs Lupus Trust
Brighten someone's day by sending them a Hibbs Lupus Trust charity eCard. Just pick a design, add your message and donation.
www.hibbslupustrust.org
December 21, 2024 at 11:40 AM
If you’re looking for a thoughtful, last-minute gift idea, don’t forget about our Christmas eCards! Not only are they a wonderful way to send festive cheer, but every card helps support our work. To send an eCard, visit #Lupus Christmas eCards - www.hibbslupustrust.org/ecards/
Lupus is a condition that impacts every facet of life, physically, emotionally, and mentally. Yet, even in the face of such adversity, there is a powerful story that unfolds—one of resilience, courage, and unyielding hope.
www.hibbslupustrust.org/together-we-share-hope-for-a-brighter-future/
www.hibbslupustrust.org/together-we-share-hope-for-a-brighter-future/
Together, We Share Hope for a Brighter Future - The Hibbs Lupus Trust
We’ve raised awareness in spaces where lupus was once unheard of. We’ve supported individuals and families during their darkest days.
www.hibbslupustrust.org
December 15, 2024 at 4:28 PM
Lupus is a condition that impacts every facet of life, physically, emotionally, and mentally. Yet, even in the face of such adversity, there is a powerful story that unfolds—one of resilience, courage, and unyielding hope.
www.hibbslupustrust.org/together-we-share-hope-for-a-brighter-future/
www.hibbslupustrust.org/together-we-share-hope-for-a-brighter-future/
🎄 Send festive cheer with The Hibbs Lupus Trust eCards!
Eco-friendly, heartfelt, & supporting #lupus awareness.
Spread love & make a difference this Christmas. 💜
Get yours here: www.hibbslupustrust.org/ecards/
Eco-friendly, heartfelt, & supporting #lupus awareness.
Spread love & make a difference this Christmas. 💜
Get yours here: www.hibbslupustrust.org/ecards/
eCards - The Hibbs Lupus Trust
Brighten someone's day by sending them a Hibbs Lupus Trust charity eCard. Just pick a design, add your message and donation.
www.hibbslupustrust.org
December 7, 2024 at 10:38 AM
🎄 Send festive cheer with The Hibbs Lupus Trust eCards!
Eco-friendly, heartfelt, & supporting #lupus awareness.
Spread love & make a difference this Christmas. 💜
Get yours here: www.hibbslupustrust.org/ecards/
Eco-friendly, heartfelt, & supporting #lupus awareness.
Spread love & make a difference this Christmas. 💜
Get yours here: www.hibbslupustrust.org/ecards/
🎄 This Christmas, it’s okay to say no.
Living with lupus means prioritising your health and setting boundaries—and that’s nothing to feel guilty about.
👉 www.hibbslupustrust.org/prioritising-self-care-at-christmas-empowering-lupus-patients-to-say-no/
Living with lupus means prioritising your health and setting boundaries—and that’s nothing to feel guilty about.
👉 www.hibbslupustrust.org/prioritising-self-care-at-christmas-empowering-lupus-patients-to-say-no/
Prioritising Self-Care at Christmas: Empowering Lupus Patients to Say "No" - The Hibbs Lupus Trust
We want to remind everyone living with lupus that it’s okay to prioritise yourself—and that includes saying “no” to plans that don’t serve your well-being.
www.hibbslupustrust.org
December 7, 2024 at 9:13 AM
🎄 This Christmas, it’s okay to say no.
Living with lupus means prioritising your health and setting boundaries—and that’s nothing to feel guilty about.
👉 www.hibbslupustrust.org/prioritising-self-care-at-christmas-empowering-lupus-patients-to-say-no/
Living with lupus means prioritising your health and setting boundaries—and that’s nothing to feel guilty about.
👉 www.hibbslupustrust.org/prioritising-self-care-at-christmas-empowering-lupus-patients-to-say-no/
The festive season is a time of joy, connection, and celebration, but for lupus patients, it can also be a season of overwhelming demands and expectations.
www.hibbslupustrust.org/prioritising-self-care-at-christmas-empowering-lupus-patients-to-say-no/
www.hibbslupustrust.org/prioritising-self-care-at-christmas-empowering-lupus-patients-to-say-no/
Prioritising Self-Care at Christmas: Empowering Lupus Patients to Say "No" - The Hibbs Lupus Trust
We want to remind everyone living with lupus that it’s okay to prioritise yourself—and that includes saying “no” to plans that don’t serve your well-being.
www.hibbslupustrust.org
December 6, 2024 at 8:23 PM
The festive season is a time of joy, connection, and celebration, but for lupus patients, it can also be a season of overwhelming demands and expectations.
www.hibbslupustrust.org/prioritising-self-care-at-christmas-empowering-lupus-patients-to-say-no/
www.hibbslupustrust.org/prioritising-self-care-at-christmas-empowering-lupus-patients-to-say-no/
Pregnancy can be a beautiful yet challenging time, especially for women living with #lupus. Our latest blog post provides valuable insights to help women understand and prepare for this unique journey.
www.hibbslupustrust.org/lupus-in-pregnancy/
www.hibbslupustrust.org/lupus-in-pregnancy/
Lupus in Pregnancy - The Hibbs Lupus Trust
Every year, many women diagnosed with lupus become pregnant and go on to have a healthy baby. However, lupus increases the chances of problems.
www.hibbslupustrust.org
December 4, 2024 at 7:34 AM
Pregnancy can be a beautiful yet challenging time, especially for women living with #lupus. Our latest blog post provides valuable insights to help women understand and prepare for this unique journey.
www.hibbslupustrust.org/lupus-in-pregnancy/
www.hibbslupustrust.org/lupus-in-pregnancy/
What three words would you use to describe lupu breakfast
December 4, 2024 at 6:45 AM
What three words would you use to describe lupu breakfast