UK Myotonic Dystrophy & FSHD Patient Registries Manager at JWMDRC.

Pls follow: @jwmdrc-registries.bsky.social / @jwmdrc.bsky.social

(she/her) *Views my own*

#neuromuscular #nmd #PatientRegistries #dm1 #dm2 #fshd #RareDisease #research #genetic