I feel like somewhere in this is that those in power can’t allow anything signaling virtue that would show an alternative to the world of vice they are promoting. They can’t let people strive for good or noble things publicly that might invoke hope or change.

Added this to my Christmas wish list yesterday and look forward to reading it (and maybe throwing it across the room)!

Why was this the first thing I thought too 😆

Why are they allowed to keep their medical licenses?! Ignoring scientific standards should be grounds for revocation.

Just did a similar quote post. The fact that salaries have not kept pace with costs is infuriating.

I should specify - a genetic marker for hEDS, as some exist for other subtypes.

That is something I wonder - how much new diagnoses are truly EDS and how much is just the impact of repeat COVID infections causing similar symptoms like hypermobility. A genetic marker for EDS would be so helpful!

I did an event with Novo Nordisk reps a few weeks back and asked them about this; they had no idea if GLP-1s were being studied for LC or not. Glad to see more research in this area is indeed being done!

And apparently some of their offices are closed today so they don’t have to hear from their angry constituents 🤬

Glad I’m not the only one! 😭