Chronically Curious
@hcsnemnenihcsam.bsky.social
Late Diagnosed Neurodivergent with Delayed Diagnosis Multiple Sclerosis. Twice Delayed! ... navigating late Neurodivergent and MS Diagnoses🧠♾️🧩♿🧡🦋
Under-represented Gender Power Imbalance
is not Equality #SuffragetteSpirt 2028 sites.google.com/view/centena... Its time for #EqualVoice sites.google.com/view/centena... #Votes4Women #Voice4Women = #EqualRepresentation in all political arenas 50% Seats in Parliament & Local Government = #EqualVoice
is not Equality #SuffragetteSpirt 2028 sites.google.com/view/centena... Its time for #EqualVoice sites.google.com/view/centena... #Votes4Women #Voice4Women = #EqualRepresentation in all political arenas 50% Seats in Parliament & Local Government = #EqualVoice
November 16, 2025 at 3:06 PM
Under-represented Gender Power Imbalance
is not Equality #SuffragetteSpirt 2028 sites.google.com/view/centena... Its time for #EqualVoice sites.google.com/view/centena... #Votes4Women #Voice4Women = #EqualRepresentation in all political arenas 50% Seats in Parliament & Local Government = #EqualVoice
is not Equality #SuffragetteSpirt 2028 sites.google.com/view/centena... Its time for #EqualVoice sites.google.com/view/centena... #Votes4Women #Voice4Women = #EqualRepresentation in all political arenas 50% Seats in Parliament & Local Government = #EqualVoice
Estimates for autism prevalence and the unemployment/economic inactivity rate for the 16-24 age group, demonstrates that the prevalence and unemployment rate are highest in this age bracket. Here is data on UK Autistic employment/economic inactivity committees.parliament.uk/writtenevide... #NEET
November 14, 2025 at 12:01 AM
Estimates for autism prevalence and the unemployment/economic inactivity rate for the 16-24 age group, demonstrates that the prevalence and unemployment rate are highest in this age bracket. Here is data on UK Autistic employment/economic inactivity committees.parliament.uk/writtenevide... #NEET
The consensus across all UK research is that the transition from education to employment for autistic young people is the most challenging transition point, resulting in a significantly increased likelihood of becoming NEET
youthfuturesfoundation.org/wp-content/u...
youthfuturesfoundation.org/wp-content/u...
November 13, 2025 at 11:54 PM
The consensus across all UK research is that the transition from education to employment for autistic young people is the most challenging transition point, resulting in a significantly increased likelihood of becoming NEET
youthfuturesfoundation.org/wp-content/u...
youthfuturesfoundation.org/wp-content/u...
I am more #Monotropic than about 63% of autistic people and about 97% of allistic people, interesting insights at monotropism.org
October 24, 2025 at 8:07 PM
I am more #Monotropic than about 63% of autistic people and about 97% of allistic people, interesting insights at monotropism.org
With proper assessment, customized colour filters can reduce glare, headaches, and fatigue….making reading and screen time so much easier and less painful irlen.com
October 15, 2025 at 7:12 PM
With proper assessment, customized colour filters can reduce glare, headaches, and fatigue….making reading and screen time so much easier and less painful irlen.com
The Uncanny Valley Effect of those starring eyes on my Tiny Tears doll made me actively dislike her, drawing on her face, in my attempts to transfer her into something I could understand or manage substack.com/home/post/p-...
October 11, 2025 at 12:24 PM
The Uncanny Valley Effect of those starring eyes on my Tiny Tears doll made me actively dislike her, drawing on her face, in my attempts to transfer her into something I could understand or manage substack.com/home/post/p-...
A poem I wrote about Drip Day
July 26, 2025 at 6:20 PM
A poem I wrote about Drip Day
My MS Diagnosis worldmsday.org/poster-maker... #MSAwarenessWeek #MSConversations #MSMakesMe #BringingUsCloser #WorldMSDay #MSFighter #MSWarrior #MS #MultipleSclerosis worldmsday.org
May 3, 2025 at 5:14 PM
World MS Day Map worldmsday.org/map/ #MSAwarenessWeek #MSConversations #MSMakesMe #BringingUsCloser #WorldMSDay #MSFighter #MSWarrior #MS #MultipleSclerosis worldmsday.org
May 3, 2025 at 5:11 PM
Explore MS toolkit worldmsday.org/tools/ #MSAwarenessWeek #MSConversations #MSMakesMe #BringingUsCloser #WorldMSDay #MSFighter #MSWarrior #MS #MultipleSclerosis worldmsday.org
May 3, 2025 at 5:08 PM
Watch the 'Testing for MS' series worldmsday.org/tests-for-ms/ #MSAwarenessWeek #MSConversations #MSMakesMe #BringingUsCloser #WorldMSDay #MSFighter #MSWarrior #MS
May 3, 2025 at 5:02 PM
Watch the 'Testing for MS' series worldmsday.org/tests-for-ms/ #MSAwarenessWeek #MSConversations #MSMakesMe #BringingUsCloser #WorldMSDay #MSFighter #MSWarrior #MS
I was diagnosed with multiple sclerosis and this is my story. The right diagnosis changes lives. Help support the #MyMSDiagnosis campaign this #WorldMSDay. If you have an MS Diagnosis story you can create a poster here: worldmsday.org/poster-maker...
April 21, 2025 at 7:36 PM
I was diagnosed with multiple sclerosis and this is my story. The right diagnosis changes lives. Help support the #MyMSDiagnosis campaign this #WorldMSDay. If you have an MS Diagnosis story you can create a poster here: worldmsday.org/poster-maker...
AI: A Prescription for Better Healthcare? UK Government Bets Big on AI in Medicine open.substack.com/pub/maschine... #AI #NHS
February 1, 2025 at 4:56 PM
AI: A Prescription for Better Healthcare? UK Government Bets Big on AI in Medicine open.substack.com/pub/maschine... #AI #NHS
Breaking the Cycle of Delayed #MultipleSclerosis #MS Diagnosis - The Need for Proactive #GP Education open.substack.com/pub/maschine...
January 17, 2025 at 7:56 PM
Breaking the Cycle of Delayed #MultipleSclerosis #MS Diagnosis - The Need for Proactive #GP Education open.substack.com/pub/maschine...
There are over 150,000 people with #MultipleSclerosis #MS in the UK, and that nearly 7,100 people are newly diagnosed each year www.mssociety.org.uk/what-we-do/o...
January 17, 2025 at 7:23 PM
There are over 150,000 people with #MultipleSclerosis #MS in the UK, and that nearly 7,100 people are newly diagnosed each year www.mssociety.org.uk/what-we-do/o...
When Words Fail You: typing inaccuracy is not the menopause - Recognizing the Neurological Symptoms of Multiple Sclerosis open.substack.com/pub/maschine...
January 11, 2025 at 11:34 AM
When Words Fail You: typing inaccuracy is not the menopause - Recognizing the Neurological Symptoms of Multiple Sclerosis open.substack.com/pub/maschine...
I have assured her that she has no neurological disease - Medical Gaslighting leads to delayed diagnosis and late-diagnosed Multiple sclerosis
open.substack.com/pub/maschine...
open.substack.com/pub/maschine...
January 9, 2025 at 10:58 PM
I have assured her that she has no neurological disease - Medical Gaslighting leads to delayed diagnosis and late-diagnosed Multiple sclerosis
open.substack.com/pub/maschine...
open.substack.com/pub/maschine...
Why must we be fighters? #MS Doesn't Quit, Neither Do We - Navigating the Relentless Battles of Living with Multiple Sclerosis open.substack.com/pub/maschine...
January 9, 2025 at 8:11 PM
Why must we be fighters? #MS Doesn't Quit, Neither Do We - Navigating the Relentless Battles of Living with Multiple Sclerosis open.substack.com/pub/maschine...
A Flawed System in Chronic Disease Management - #MS Patients have to chase Primary Care Service provider (#GP Practice) integration of Blood Test Results from Secondary Care Services (#hospitals) to be recorded on their NHS Medical Record open.substack.com/pub/maschine...
January 9, 2025 at 1:43 PM
A Flawed System in Chronic Disease Management - #MS Patients have to chase Primary Care Service provider (#GP Practice) integration of Blood Test Results from Secondary Care Services (#hospitals) to be recorded on their NHS Medical Record open.substack.com/pub/maschine...
I'm interested in the application of #AI-Empowered medicine and healthcare to help the 2.9 million people living with #MultipleSclerosis #MS worldwide to have AI-empowered management of this #ChronicDisease
January 9, 2025 at 12:29 PM
I'm interested in the application of #AI-Empowered medicine and healthcare to help the 2.9 million people living with #MultipleSclerosis #MS worldwide to have AI-empowered management of this #ChronicDisease
AI Innovations for Multiple Sclerosis care pathways - Healthcare systems must embrace #AI to help create a proactive, patient-centred care model that addresses both the physical and emotional dimensions of living with #MS
open.substack.com/pub/maschine...
open.substack.com/pub/maschine...
January 9, 2025 at 12:19 PM
AI Innovations for Multiple Sclerosis care pathways - Healthcare systems must embrace #AI to help create a proactive, patient-centred care model that addresses both the physical and emotional dimensions of living with #MS
open.substack.com/pub/maschine...
open.substack.com/pub/maschine...
Using AI to lead the earlier identification of the symptoms of Multiple Sclerosis - leverage AI capabilities to identify MS earlier and ensure its neurological symptoms are not overlooked, leading to quicker diagnosis and improved patient outcomes
open.substack.com/pub/maschine...
open.substack.com/pub/maschine...
January 8, 2025 at 11:21 PM
Using AI to lead the earlier identification of the symptoms of Multiple Sclerosis - leverage AI capabilities to identify MS earlier and ensure its neurological symptoms are not overlooked, leading to quicker diagnosis and improved patient outcomes
open.substack.com/pub/maschine...
open.substack.com/pub/maschine...
Has the #NHS told #GP’s and #Neurologists about improvements in the care of patients with MS, and do they care? Is it acceptable for patients to endlessly live with medically undiagnosed symptoms for over a decade … which actually were #MS?
open.substack.com/pub/maschine...
open.substack.com/pub/maschine...
January 8, 2025 at 11:06 PM
Has the #NHS told #GP’s and #Neurologists about improvements in the care of patients with MS, and do they care? Is it acceptable for patients to endlessly live with medically undiagnosed symptoms for over a decade … which actually were #MS?
open.substack.com/pub/maschine...
open.substack.com/pub/maschine...
It’s time to modernize and adopt tech systems that work for the patient, not against them - Leverage #AI technology to create a unified medical record accessible to all healthcare providers, to support patients with chronic diseases like #MS and #CKD open.substack.com/pub/maschine...
January 8, 2025 at 5:40 PM
It’s time to modernize and adopt tech systems that work for the patient, not against them - Leverage #AI technology to create a unified medical record accessible to all healthcare providers, to support patients with chronic diseases like #MS and #CKD open.substack.com/pub/maschine...