The Dystonia IMPACT team are recruiting children & young people with dystonia & their parents to take part in interviews to find out what matters most to them.

Register your interest: tinyurl.com/DystoniaIMPACT

Or contact the team at dystoniaimpact@qmul.ac.uk

📢 Calling all healthcare #hcp #ahp, #SocialCare, & #education-based professionals working with #children & #YoungPeople with hyperkinetic movement disorders #HMD including #Dystonia & dyskinetic/mixed #CerebralPalsy to take part in our Dystonia IMPACT survey:

➡️ tinyurl.com/532rxb9c

Excited to be presenting our poster from our work as part of the Dystonia IMPACT study on “Enabling people from underrepresented groups to take #PPI roles in #paediatric #dystonia research” today at #EACD2025 #IAACD2025 at 9:40am CEST at poster screen 7

The Theory of Change map developed explains the causal pathway for successful implementation of outcome measurement in #pedpc. We then consulted with a Young Person’s Advisory Group #PPI and study steering group to inform development of initial implementation strategies (3/8)

Excited to be with @digestingscience.bsky.social at the @mstrustuk.bsky.social conference and looking forward to presenting my poster on families experiences of attending a Digesting Science event to learn about #MultipleSclerosis later in the speed dating session #MS

If you didn’t get chance to join the webinar today but want to find out more about the development of the implementation plan for C-POS:UK, my systematic review and qualitative data analysis papers are published open access:
Review: doi.org/10.1186/s129...
Qual paper: doi.org/10.1177/0269...

Really excited to be presenting at today’s @pcrscommittee.bsky.social webinar on the work from my @arc-southlondon.bsky.social funded PhD!