A beautiful, sad and loving piece of writing
The most important and personal thing I've ever written.
Our beautiful baby daughter Holly was recently diagnosed with an extremely rare genetic disorder called GRIN2B. Thank you to the @inews.co.uk for letting me tell her story and what our family now face.
inews.co.uk/inews-lifest...
Our beautiful baby daughter Holly was recently diagnosed with an extremely rare genetic disorder called GRIN2B. Thank you to the @inews.co.uk for letting me tell her story and what our family now face.
inews.co.uk/inews-lifest...
My gorgeous baby has a rare, genetic condition - no one knows what to say to us
Richard James' daughter Holly has GRIN2B, a disorder so rare that not even their GP had heard of it. He explains how the diagnosis has irrevocably changed his life and that of his family
inews.co.uk
December 23, 2024 at 9:48 PM
A beautiful, sad and loving piece of writing