Global MPN Scientifc Foundation
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gmpnsf.bsky.social
Global MPN Scientifc Foundation
@gmpnsf.bsky.social
We empower MPN patients worldwide by raising awareness, advocating for their needs and supporting research.🩸
#buildhopeMPN #MPNsm
🌐 gmpnsf.org
🇺🇸 USA webinar by @GMPNSF with OHSU.
🎤 Dr. Joseph Shatzel
💬 Angela Valentine, MPN patient voice.

Topic: Essential Thrombocythemia (ET) and everyday life with MPNs.

📅 Feb 17, 2026
🕘 9AM PST | 12PM EST | 6PM CET
📍 Zoom

👉 Register: https://www.gmpnsf.org/post/what-are-micronutrients

#MPNsm
February 12, 2026 at 11:53 AM
🩸 February 4 | #WorldCancerDay

People living with Polycythemia Vera (PV), Essential Thrombocythemia (ET) and Myelofibrosis (MF) face daily:

😮‍💨 fatigue
🧠 brain fog
😣 pain
🔥 itching

At GMPNSF we support people living with PV, ET and MF worldwide 🌍

👉 Donate: https://www.gmpnsf.org/donate

#MPNsm
February 4, 2026 at 11:27 AM
🥗 GMPNSF × Carla Not

New diet diary by GMPNSF and Carla Not, registered nutritionist, to support healthy habits in a practical way.
Simple and realistic food ideas for people living with MPN.

👉 https://www.gmpnsf.org/dietary

#MPNsm
January 31, 2026 at 7:30 PM
#5thMPNS 🌍
@mpnjournal.bsky.social, an anonymous tool created by patients and supported by Prof. @rubenmesamd.bsky.social, shows the importance daily tracking.

🎥 https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-exzwy25527" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-exzwy25527

#MPNsm
January 29, 2026 at 10:38 AM
✍️ NEW Writing Workshop with Puy Barral (MPN patient + facilitator)

📅 Thu, Jan 29 | 🕒 18:30–20:00 CET
✅ FREE for MPN patients & caregivers
🌍 Online | EN + ES
@gmpnsf + MPN Spain

👉 Register: https://www.gmpnsf.org/post/january-a-journey-toward-a-better-version-of-you

#MPNsm
January 26, 2026 at 10:15 AM
#5thMPNS

Gabriela Aguirre (MPN Nurse Specialist, @hospitaldelmar.bsky.social) shares how nurse support helps patients understand treatment, and feel supported

👉 https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-vytah15502" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-vytah15502

#MPNsm
January 18, 2026 at 1:01 PM
#5thMPNS
🌍 MPNs in the USA
Dr. Joseph Shatzel + US patients on daily life with MPNs
🔹 Fatigue & symptoms
🔹 Insurance challenges

👉 Link: https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-x80jq14096" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-x80jq14096

#MPNsm
January 15, 2026 at 10:02 AM
Our first Momelotinib Patient Roundtable of the year took place. 🤝
Patients & caregivers sharing real experiences.

🎥 Soon video available in our YouTube channel: https://www.youtube.com/channel/UC0uErCR08ZR9lQAl9MUd7hQ

#MPNsm
January 14, 2026 at 10:30 AM
#5thMPNS 🌍
MPNs in Saudi Arabia

🎥 Care, access & collaboration
🌍 One doctor, one patient, one global reality

👉 Watch here:
https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-r8y4l8584" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-r8y4l8584

#MPNsm
January 5, 2026 at 3:31 PM
From a daughter’s story to supporting the MPN community 🌿
Meet Tania, personal trainer & occupational therapist, now part of our Wellbeing Project 💪

🔗 gmpnsf.org/wellbeing

#MPNsm
December 16, 2025 at 6:57 AM
#5thMPNS
We are starting a new video series from the 5th MPN Spring Symposium (Barcelona 2025).

This week’s video opens with POIESIS, a clinical trial for Myelofibrosis, explained by Prof. Serge Verstovsek.

Watch more:
👉 www.gmpnsf.org/post/one-mpn...

#MPNsm
December 15, 2025 at 10:24 AM