#buildhopeMPN #MPNsm
🌐 gmpnsf.org
🎤 Dr. Joseph Shatzel
💬 Angela Valentine, MPN patient voice.
Topic: Essential Thrombocythemia (ET) and everyday life with MPNs.
📅 Feb 17, 2026
🕘 9AM PST | 12PM EST | 6PM CET
📍 Zoom
👉 Register: https://www.gmpnsf.org/post/what-are-micronutrients
#MPNsm
🎤 Dr. Joseph Shatzel
💬 Angela Valentine, MPN patient voice.
Topic: Essential Thrombocythemia (ET) and everyday life with MPNs.
📅 Feb 17, 2026
🕘 9AM PST | 12PM EST | 6PM CET
📍 Zoom
👉 Register: https://www.gmpnsf.org/post/what-are-micronutrients
#MPNsm
People living with Polycythemia Vera (PV), Essential Thrombocythemia (ET) and Myelofibrosis (MF) face daily:
😮💨 fatigue
🧠 brain fog
😣 pain
🔥 itching
At GMPNSF we support people living with PV, ET and MF worldwide 🌍
👉 Donate: https://www.gmpnsf.org/donate
#MPNsm
People living with Polycythemia Vera (PV), Essential Thrombocythemia (ET) and Myelofibrosis (MF) face daily:
😮💨 fatigue
🧠 brain fog
😣 pain
🔥 itching
At GMPNSF we support people living with PV, ET and MF worldwide 🌍
👉 Donate: https://www.gmpnsf.org/donate
#MPNsm
New diet diary by GMPNSF and Carla Not, registered nutritionist, to support healthy habits in a practical way.
Simple and realistic food ideas for people living with MPN.
👉 https://www.gmpnsf.org/dietary
#MPNsm
New diet diary by GMPNSF and Carla Not, registered nutritionist, to support healthy habits in a practical way.
Simple and realistic food ideas for people living with MPN.
👉 https://www.gmpnsf.org/dietary
#MPNsm
@mpnjournal.bsky.social, an anonymous tool created by patients and supported by Prof. @rubenmesamd.bsky.social, shows the importance daily tracking.
🎥 https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-exzwy25527" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-exzwy25527
#MPNsm
@mpnjournal.bsky.social, an anonymous tool created by patients and supported by Prof. @rubenmesamd.bsky.social, shows the importance daily tracking.
🎥 https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-exzwy25527" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-exzwy25527
#MPNsm
📅 Thu, Jan 29 | 🕒 18:30–20:00 CET
✅ FREE for MPN patients & caregivers
🌍 Online | EN + ES
@gmpnsf + MPN Spain
👉 Register: https://www.gmpnsf.org/post/january-a-journey-toward-a-better-version-of-you
#MPNsm
📅 Thu, Jan 29 | 🕒 18:30–20:00 CET
✅ FREE for MPN patients & caregivers
🌍 Online | EN + ES
@gmpnsf + MPN Spain
👉 Register: https://www.gmpnsf.org/post/january-a-journey-toward-a-better-version-of-you
#MPNsm
Gabriela Aguirre (MPN Nurse Specialist, @hospitaldelmar.bsky.social) shares how nurse support helps patients understand treatment, and feel supported
👉 https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-vytah15502" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-vytah15502
#MPNsm
Gabriela Aguirre (MPN Nurse Specialist, @hospitaldelmar.bsky.social) shares how nurse support helps patients understand treatment, and feel supported
👉 https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-vytah15502" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-vytah15502
#MPNsm
🌍 MPNs in the USA
Dr. Joseph Shatzel + US patients on daily life with MPNs
🔹 Fatigue & symptoms
🔹 Insurance challenges
👉 Link: https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-x80jq14096" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-x80jq14096
#MPNsm
🌍 MPNs in the USA
Dr. Joseph Shatzel + US patients on daily life with MPNs
🔹 Fatigue & symptoms
🔹 Insurance challenges
👉 Link: https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-x80jq14096" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-x80jq14096
#MPNsm
Patients & caregivers sharing real experiences.
🎥 Soon video available in our YouTube channel: https://www.youtube.com/channel/UC0uErCR08ZR9lQAl9MUd7hQ
#MPNsm
Patients & caregivers sharing real experiences.
🎥 Soon video available in our YouTube channel: https://www.youtube.com/channel/UC0uErCR08ZR9lQAl9MUd7hQ
#MPNsm
MPNs in Saudi Arabia
🎥 Care, access & collaboration
🌍 One doctor, one patient, one global reality
👉 Watch here:
https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-r8y4l8584" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-r8y4l8584
#MPNsm
MPNs in Saudi Arabia
🎥 Care, access & collaboration
🌍 One doctor, one patient, one global reality
👉 Watch here:
https://www.gmpnsf.org/post/one-mpn-family-youtube-videos-summary-highlights-from-the-5th-mpn-spring-symposium<a href="/hashtag/viewer-r8y4l8584" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#viewer-r8y4l8584
#MPNsm
Meet Tania, personal trainer & occupational therapist, now part of our Wellbeing Project 💪
🔗 gmpnsf.org/wellbeing
#MPNsm
Meet Tania, personal trainer & occupational therapist, now part of our Wellbeing Project 💪
🔗 gmpnsf.org/wellbeing
#MPNsm
We are starting a new video series from the 5th MPN Spring Symposium (Barcelona 2025).
This week’s video opens with POIESIS, a clinical trial for Myelofibrosis, explained by Prof. Serge Verstovsek.
Watch more:
👉 www.gmpnsf.org/post/one-mpn...
#MPNsm
We are starting a new video series from the 5th MPN Spring Symposium (Barcelona 2025).
This week’s video opens with POIESIS, a clinical trial for Myelofibrosis, explained by Prof. Serge Verstovsek.
Watch more:
👉 www.gmpnsf.org/post/one-mpn...
#MPNsm