Gerry Tye
@gerrytye.bsky.social
DIPG Parent
Founder - DIPG Research
Founder - DIPG Research
Reposted by Gerry Tye
My daughter was almost 4 when diagnosed w/#DIPG (brainstem cancer). It’s the most lethal disease on earth (yes, really).
Pls help raise awareness & funding for more research. Esp. important now that🍊🤡 & 🧠🪱 gutted the #NCI & #NIH.
#ChildhoodCancerAwarenessMonth
Pls help raise awareness & funding for more research. Esp. important now that🍊🤡 & 🧠🪱 gutted the #NCI & #NIH.
#ChildhoodCancerAwarenessMonth
September 22, 2025 at 7:04 PM
My daughter was almost 4 when diagnosed w/#DIPG (brainstem cancer). It’s the most lethal disease on earth (yes, really).
Pls help raise awareness & funding for more research. Esp. important now that🍊🤡 & 🧠🪱 gutted the #NCI & #NIH.
#ChildhoodCancerAwarenessMonth
Pls help raise awareness & funding for more research. Esp. important now that🍊🤡 & 🧠🪱 gutted the #NCI & #NIH.
#ChildhoodCancerAwarenessMonth
Reposted by Gerry Tye
100% Fund Grant Competition: Call for applications in Diffuse Midline Glioma (DMG) / Diffuse Intrinsic Pontine Glioma (DIPG), and Rhabdomyosarcoma c17blog.wordpress.com/2025/09/25/1...
100% Fund Grant Competition
Call for applications in Diffuse Midline Glioma (DMG) / Diffuse Intrinsic Pontine Glioma (DIPG), and Rhabdomyosarcoma Nearly one in five children diagnosed with cancer will not survive. For childre…
c17blog.wordpress.com
September 25, 2025 at 3:07 PM
100% Fund Grant Competition: Call for applications in Diffuse Midline Glioma (DMG) / Diffuse Intrinsic Pontine Glioma (DIPG), and Rhabdomyosarcoma c17blog.wordpress.com/2025/09/25/1...
Reposted by Gerry Tye
Six-year-old Devin was diagnosed with #DIPG after collapsing during a snowboard lesson.
His family now honors his legacy by showing that hope is stronger than fear.
Read Devin’s story: https://braintumor.org/news/hope-is-stronger-than-fear-a-dipg-story/
#GoldforCCAM #CCAM
His family now honors his legacy by showing that hope is stronger than fear.
Read Devin’s story: https://braintumor.org/news/hope-is-stronger-than-fear-a-dipg-story/
#GoldforCCAM #CCAM
September 29, 2025 at 12:52 AM
Six-year-old Devin was diagnosed with #DIPG after collapsing during a snowboard lesson.
His family now honors his legacy by showing that hope is stronger than fear.
Read Devin’s story: https://braintumor.org/news/hope-is-stronger-than-fear-a-dipg-story/
#GoldforCCAM #CCAM
His family now honors his legacy by showing that hope is stronger than fear.
Read Devin’s story: https://braintumor.org/news/hope-is-stronger-than-fear-a-dipg-story/
#GoldforCCAM #CCAM
Reposted by Gerry Tye
September is also Childhood Cancer Awareness Month which is also dear to me as I lost my 11 y/o cousin to DIPG in March ‘24. Funding for research was already low, but is being cut further, thanks to this administration.
September 30, 2025 at 10:34 PM
September is also Childhood Cancer Awareness Month which is also dear to me as I lost my 11 y/o cousin to DIPG in March ‘24. Funding for research was already low, but is being cut further, thanks to this administration.
Reposted by Gerry Tye
Neuro-oncology with Aimee Sato:
Clinical implications of recent FDA approvals for diffuse midline glioma with H3K27 variation (dordaviprone) - studies EXCLUDED pontine diffuse glioma, so can we say it works for DIPG?
Clinical implications of recent FDA approvals for diffuse midline glioma with H3K27 variation (dordaviprone) - studies EXCLUDED pontine diffuse glioma, so can we say it works for DIPG?
October 11, 2025 at 10:00 PM
Neuro-oncology with Aimee Sato:
Clinical implications of recent FDA approvals for diffuse midline glioma with H3K27 variation (dordaviprone) - studies EXCLUDED pontine diffuse glioma, so can we say it works for DIPG?
Clinical implications of recent FDA approvals for diffuse midline glioma with H3K27 variation (dordaviprone) - studies EXCLUDED pontine diffuse glioma, so can we say it works for DIPG?
Reposted by Gerry Tye
ChadTough Defeat DIPG is a private organization started by families who lost their children to DIPG to fund research, spread awareness, and support DIPG families. With National Cancer Institute funding cut off, it is now the main source of funding for pediatric brain, cancer research and trials.
August 30, 2025 at 10:29 AM
ChadTough Defeat DIPG is a private organization started by families who lost their children to DIPG to fund research, spread awareness, and support DIPG families. With National Cancer Institute funding cut off, it is now the main source of funding for pediatric brain, cancer research and trials.
Reposted by Gerry Tye
When five-year-old Jacob M. was diagnosed with #DIPG, his stuffed cat Mr. Puddles became his constant source of comfort.
After Jacob’s passing, his mom Mia formed “Team Jacob and Mr. Puddles” to honor his memory: braintumor.org/news/beloved-stuffed-animal-provides-comfort-to-jacob-and-his-family
After Jacob’s passing, his mom Mia formed “Team Jacob and Mr. Puddles” to honor his memory: braintumor.org/news/beloved-stuffed-animal-provides-comfort-to-jacob-and-his-family
September 8, 2025 at 7:10 PM
When five-year-old Jacob M. was diagnosed with #DIPG, his stuffed cat Mr. Puddles became his constant source of comfort.
After Jacob’s passing, his mom Mia formed “Team Jacob and Mr. Puddles” to honor his memory: braintumor.org/news/beloved-stuffed-animal-provides-comfort-to-jacob-and-his-family
After Jacob’s passing, his mom Mia formed “Team Jacob and Mr. Puddles” to honor his memory: braintumor.org/news/beloved-stuffed-animal-provides-comfort-to-jacob-and-his-family
Reposted by Gerry Tye
Congratulations to Seattle Children’s Nicholas Vitanza, MD, on receiving a $1 million grant from @TheCureStartsNow Foundation and their partners, the DIPG/DMG Collaborative. Together, we’re working to create better treatment options and new hope for children and families. https://bit.ly/4m9TT9A
September 9, 2025 at 3:00 PM
Congratulations to Seattle Children’s Nicholas Vitanza, MD, on receiving a $1 million grant from @TheCureStartsNow Foundation and their partners, the DIPG/DMG Collaborative. Together, we’re working to create better treatment options and new hope for children and families. https://bit.ly/4m9TT9A
Reposted by Gerry Tye
🚨|Lucas Jemeljanova, niño belga con DIPG, recibió un tratamiento personalizado en Francia. Contra todo pronóstico, su tumor cerebral desapareció por completo, marcando un avance histórico en el tratamiento de este cáncer infantil agresivo. 👇
Te contamos su historia aquí:👇
Te contamos su historia aquí:👇
La historia de Lucas Jemeljanova, el niño belga que venció el cáncer y asombra a la ciencia
Cuando a Lucas Jemeljanova le diagnosticaron un tipo raro de tumor cerebral a la edad de seis años, no había ninguna duda sobre el pronóstico. Sin embargo, siete años después, Lucas tiene ya 13 años y...
cerebrodigital.net
September 12, 2025 at 4:21 PM
🚨|Lucas Jemeljanova, niño belga con DIPG, recibió un tratamiento personalizado en Francia. Contra todo pronóstico, su tumor cerebral desapareció por completo, marcando un avance histórico en el tratamiento de este cáncer infantil agresivo. 👇
Te contamos su historia aquí:👇
Te contamos su historia aquí:👇
Reposted by Gerry Tye
Big pharma greed is a factor in #ChildhoodCancer.💔 Most big pharmas don’t do childhood cancer research because it’s not profitable.
Now, the #NIH isn’t either, because🍊🤡.
Pls invest in pediatric cancer research. The kid you save may be your own.
#ChildhoodCancerAwarenessMonth #DIPG #braincancer
Now, the #NIH isn’t either, because🍊🤡.
Pls invest in pediatric cancer research. The kid you save may be your own.
#ChildhoodCancerAwarenessMonth #DIPG #braincancer
September 16, 2025 at 1:30 AM
Big pharma greed is a factor in #ChildhoodCancer.💔 Most big pharmas don’t do childhood cancer research because it’s not profitable.
Now, the #NIH isn’t either, because🍊🤡.
Pls invest in pediatric cancer research. The kid you save may be your own.
#ChildhoodCancerAwarenessMonth #DIPG #braincancer
Now, the #NIH isn’t either, because🍊🤡.
Pls invest in pediatric cancer research. The kid you save may be your own.
#ChildhoodCancerAwarenessMonth #DIPG #braincancer
Reposted by Gerry Tye
Bill Alert!
US Senate Bill SRES 303 - A resolution expressing support for the designation of May 17, 2025, as "DIPG Pediatric Brain Cancer Awareness Day" to raise awareness of, and encourage research on, diffuse intrinsic pontine glioma tumors and pediatric cancers in general.
https://hozzl.com/p...
US Senate Bill SRES 303 - A resolution expressing support for the designation of May 17, 2025, as "DIPG Pediatric Brain Cancer Awareness Day" to raise awareness of, and encourage research on, diffuse intrinsic pontine glioma tumors and pediatric cancers in general.
https://hozzl.com/p...
July 9, 2025 at 3:29 PM
Bill Alert!
US Senate Bill SRES 303 - A resolution expressing support for the designation of May 17, 2025, as "DIPG Pediatric Brain Cancer Awareness Day" to raise awareness of, and encourage research on, diffuse intrinsic pontine glioma tumors and pediatric cancers in general.
https://hozzl.com/p...
US Senate Bill SRES 303 - A resolution expressing support for the designation of May 17, 2025, as "DIPG Pediatric Brain Cancer Awareness Day" to raise awareness of, and encourage research on, diffuse intrinsic pontine glioma tumors and pediatric cancers in general.
https://hozzl.com/p...
Reposted by Gerry Tye
Stanford Medicine neuroscientist Michelle Monje MD, PhD, and researcher Julien Sage, PhD, found that brain tumors, including gliomas and lung cancer metastases, hijack neural circuits to fuel growth, revealing new treatment insights. #DIPG
Cancer Neuroscience: How cancer cells hijack our brains
Imagine that malignant brain tumors are not the unbridled chaos of unchecked growth we think they are, but they are actually communicating with brain cells i...
youtu.be
June 2, 2025 at 2:55 PM
Stanford Medicine neuroscientist Michelle Monje MD, PhD, and researcher Julien Sage, PhD, found that brain tumors, including gliomas and lung cancer metastases, hijack neural circuits to fuel growth, revealing new treatment insights. #DIPG
Reposted by Gerry Tye
📣 Youth4Kids 2025 🎗️ @r4knetwork.bsky.social
This morning, we had the pleasure to welcome Dr Clara Savary from @hmriaustralia.bsky.social.
She is currently working on deciphering the resistance mechanisms of ONC201 in DIPG.
Well done Clara and the whole team led by Dr Matt Dun. 👏
This morning, we had the pleasure to welcome Dr Clara Savary from @hmriaustralia.bsky.social.
She is currently working on deciphering the resistance mechanisms of ONC201 in DIPG.
Well done Clara and the whole team led by Dr Matt Dun. 👏
June 3, 2025 at 8:02 AM
📣 Youth4Kids 2025 🎗️ @r4knetwork.bsky.social
This morning, we had the pleasure to welcome Dr Clara Savary from @hmriaustralia.bsky.social.
She is currently working on deciphering the resistance mechanisms of ONC201 in DIPG.
Well done Clara and the whole team led by Dr Matt Dun. 👏
This morning, we had the pleasure to welcome Dr Clara Savary from @hmriaustralia.bsky.social.
She is currently working on deciphering the resistance mechanisms of ONC201 in DIPG.
Well done Clara and the whole team led by Dr Matt Dun. 👏
Reposted by Gerry Tye
My highlight of Day 2 of the #Youth4Kids congress organised by @r4knetwork.bsky.social: the inspiring talk by Dr Clara Savary from the University of Newcastle (#DunLab) on the mechanisms of resistance in #DIPG, a deadly form of pediatric brain cancer.
June 3, 2025 at 2:07 PM
My highlight of Day 2 of the #Youth4Kids congress organised by @r4knetwork.bsky.social: the inspiring talk by Dr Clara Savary from the University of Newcastle (#DunLab) on the mechanisms of resistance in #DIPG, a deadly form of pediatric brain cancer.
Reposted by Gerry Tye
@jessibean5.bsky.social attending #BACR25 in Edinburgh, and presenting exciting results using deuterium MRS to assess treatment-induced changes in the metabolism of orthotopic models of diffuse midline glioma.
#DIPG #MRI #Metabolism #PaediatricGlioma
@icr.ac.uk @cancerresearchuk.org
#DIPG #MRI #Metabolism #PaediatricGlioma
@icr.ac.uk @cancerresearchuk.org
June 4, 2025 at 10:22 PM
@jessibean5.bsky.social attending #BACR25 in Edinburgh, and presenting exciting results using deuterium MRS to assess treatment-induced changes in the metabolism of orthotopic models of diffuse midline glioma.
#DIPG #MRI #Metabolism #PaediatricGlioma
@icr.ac.uk @cancerresearchuk.org
#DIPG #MRI #Metabolism #PaediatricGlioma
@icr.ac.uk @cancerresearchuk.org
Reposted by Gerry Tye
DIPG is one of the most aggressive brain tumors, particularly devastating for children. Dr. Michelle Monje is leading innovative research in cancer neuroscience to combat these brain tumors. #CancerResearch #Neurology
Stopping cancer cells from infiltrating nervous system
Stanford Medicine scientists founded a new field of cancer biology by showing how cancer cells tap into the nervous system.
stanmed.stanford.edu
June 10, 2025 at 4:45 PM
DIPG is one of the most aggressive brain tumors, particularly devastating for children. Dr. Michelle Monje is leading innovative research in cancer neuroscience to combat these brain tumors. #CancerResearch #Neurology
Reposted by Gerry Tye
Our research is supported by ChadTough Defeat DIPG Foundation and families who lost their children to this intractable disease.
We are dedicated to work hard and advance this technology to humans.
www.media.mit.edu/posts/prof-d...
We are dedicated to work hard and advance this technology to humans.
www.media.mit.edu/posts/prof-d...
Prof. Deblina Sarkar’s Work on Nanoelectronics-Based Treatment of Deadly Brain Cancer Highlighted by ChadTough Defeat DIPG Foundation – MIT Media Lab
Prof. Sarkar’s nanoelectronic devices are poised to provide potentially life-saving treatment for Diffuse Intrinsic Pontine Glioma (DIPG)
www.media.mit.edu
June 28, 2025 at 2:22 AM
Our research is supported by ChadTough Defeat DIPG Foundation and families who lost their children to this intractable disease.
We are dedicated to work hard and advance this technology to humans.
www.media.mit.edu/posts/prof-d...
We are dedicated to work hard and advance this technology to humans.
www.media.mit.edu/posts/prof-d...
Reposted by Gerry Tye
Incredibly honoured to receive prestigious
@researchireland.ie funding to study developmental vulnerabilities in diffuse midline glioma (DIPG/DMG).
Huge thanks to my amazing mentor @jfcryan.bsky.social
Excited for what’s ahead!
@apcmicrobiomeirel.bsky.social @anatneuroucc.bsky.social
@researchireland.ie funding to study developmental vulnerabilities in diffuse midline glioma (DIPG/DMG).
Huge thanks to my amazing mentor @jfcryan.bsky.social
Excited for what’s ahead!
@apcmicrobiomeirel.bsky.social @anatneuroucc.bsky.social
June 26, 2025 at 6:24 AM
Incredibly honoured to receive prestigious
@researchireland.ie funding to study developmental vulnerabilities in diffuse midline glioma (DIPG/DMG).
Huge thanks to my amazing mentor @jfcryan.bsky.social
Excited for what’s ahead!
@apcmicrobiomeirel.bsky.social @anatneuroucc.bsky.social
@researchireland.ie funding to study developmental vulnerabilities in diffuse midline glioma (DIPG/DMG).
Huge thanks to my amazing mentor @jfcryan.bsky.social
Excited for what’s ahead!
@apcmicrobiomeirel.bsky.social @anatneuroucc.bsky.social
Reposted by Gerry Tye
In this week’s publication highlights, we picked this study just out @naturemedicine.bsky.social describing an innovative method for the rapid classification of brain tumors based on molecular profiling.
Congrats to all involved @dkfz.bsky.social and beyond 👏🏻
www.nature.com/articles/s41...
Congrats to all involved @dkfz.bsky.social and beyond 👏🏻
www.nature.com/articles/s41...
Prospective, multicenter validation of a platform for rapid molecular profiling of central nervous system tumors - Nature Medicine
Application of a nanopore sequencing workflow for real-time analysis of brain tumors results in molecular classification within a 30-minute intraoperative window, followed by comprehensive profiling w...
www.nature.com
March 31, 2025 at 7:10 AM
In this week’s publication highlights, we picked this study just out @naturemedicine.bsky.social describing an innovative method for the rapid classification of brain tumors based on molecular profiling.
Congrats to all involved @dkfz.bsky.social and beyond 👏🏻
www.nature.com/articles/s41...
Congrats to all involved @dkfz.bsky.social and beyond 👏🏻
www.nature.com/articles/s41...
Reposted by Gerry Tye
Clarifying: my lab is still here; we are stopping new expts to focus on analyzing + pub'ing what's on hand. Instability at the fed level makes it difficult for scientists like me to take risks on discovery + innov. This impacts what research q's we can ask; this directly impacts what work we can do
This is horrible to post, but I may as well post it. We are essentially shutting down research operations in my group, which is focused on treatments for pediatric brain cancer. I’m a well funded investigator, and there’s no choice. Science can’t function without the stability of NIH
March 17, 2025 at 8:37 PM
Clarifying: my lab is still here; we are stopping new expts to focus on analyzing + pub'ing what's on hand. Instability at the fed level makes it difficult for scientists like me to take risks on discovery + innov. This impacts what research q's we can ask; this directly impacts what work we can do
Reposted by Gerry Tye
This is horrible to post, but I may as well post it. We are essentially shutting down research operations in my group, which is focused on treatments for pediatric brain cancer. I’m a well funded investigator, and there’s no choice. Science can’t function without the stability of NIH
March 15, 2025 at 5:32 PM
This is horrible to post, but I may as well post it. We are essentially shutting down research operations in my group, which is focused on treatments for pediatric brain cancer. I’m a well funded investigator, and there’s no choice. Science can’t function without the stability of NIH
Reposted by Gerry Tye
In Montreal, 🇨🇦, my pal @exposfest.bsky.social has channeled the personal tragedy of losing a niece & his love of the Montreal Expos by hosting galas with former players and raising millions of dollars (so far!) for DIPG (pediatric brain cancer) research. The next gala is in late April. exposfest.com
March 16, 2025 at 4:16 PM
In Montreal, 🇨🇦, my pal @exposfest.bsky.social has channeled the personal tragedy of losing a niece & his love of the Montreal Expos by hosting galas with former players and raising millions of dollars (so far!) for DIPG (pediatric brain cancer) research. The next gala is in late April. exposfest.com
Reposted by Gerry Tye
LACHIE LOVE: SCHOOLBOY ‘HERO’ TICKING OFF BUCKET LIST DIES WITH RARE DIPG CANCER
The boy with DIPG was a special guest of Ed Sheeran and rode in a $500,000 supercar.
Read Article: https://xtra-two.vercel.app?c=6ua5Ch
The boy with DIPG was a special guest of Ed Sheeran and rode in a $500,000 supercar.
Read Article: https://xtra-two.vercel.app?c=6ua5Ch
March 20, 2025 at 6:45 PM
LACHIE LOVE: SCHOOLBOY ‘HERO’ TICKING OFF BUCKET LIST DIES WITH RARE DIPG CANCER
The boy with DIPG was a special guest of Ed Sheeran and rode in a $500,000 supercar.
Read Article: https://xtra-two.vercel.app?c=6ua5Ch
The boy with DIPG was a special guest of Ed Sheeran and rode in a $500,000 supercar.
Read Article: https://xtra-two.vercel.app?c=6ua5Ch
Reposted by Gerry Tye
Looking for something fun in #Denver #Colorado? Check out the First Annual 2221 Society Derby Party on May 3rd! It supports research of DIPG, a rare, aggressive brain tumor in children. Jen and I will be there—come say hi!
www.2221societyderbyparty.com#buy-tickets
www.2221societyderbyparty.com#buy-tickets
2221 Society Derby Party
www.2221societyderbyparty.com
March 23, 2025 at 6:11 PM
Looking for something fun in #Denver #Colorado? Check out the First Annual 2221 Society Derby Party on May 3rd! It supports research of DIPG, a rare, aggressive brain tumor in children. Jen and I will be there—come say hi!
www.2221societyderbyparty.com#buy-tickets
www.2221societyderbyparty.com#buy-tickets
Reposted by Gerry Tye
Since her death, Sunnie’s parents started the SunnieStrong Foundation. They help DIPG families after their child dies. They also donate to A Cure Starts Now, which funds clinical trials. Sunnie was an ambassador for them.
Read more about Sunnie’s story here: www.sunniestrong.org/about_us
Read more about Sunnie’s story here: www.sunniestrong.org/about_us
SUNNIE'S STORY | #SunnieStrong
www.sunniestrong.org
March 25, 2025 at 8:41 PM
Since her death, Sunnie’s parents started the SunnieStrong Foundation. They help DIPG families after their child dies. They also donate to A Cure Starts Now, which funds clinical trials. Sunnie was an ambassador for them.
Read more about Sunnie’s story here: www.sunniestrong.org/about_us
Read more about Sunnie’s story here: www.sunniestrong.org/about_us