Centre of Genomics and Policy
@genomicsandpolicy.bsky.social
Centre of Genomics and Policy: Exploring the socio-ethical and legal issues in genomic health sciences.
www.genomicsandpolicy.org/
www.genomicsandpolicy.org/
Dr. Zohar Lederman (Emergency Medicine, University of Hong Kong) spoke about the Marburg outbreak in Rwanda 🦠🌍 While widely praised as a One Health & public health success, he highlighted key data gaps, limited attention to animal and environmental health and conflicting economic development goals.
October 17, 2025 at 7:48 PM
Dr. Zohar Lederman (Emergency Medicine, University of Hong Kong) spoke about the Marburg outbreak in Rwanda 🦠🌍 While widely praised as a One Health & public health success, he highlighted key data gaps, limited attention to animal and environmental health and conflicting economic development goals.
The CGP and @phgfoundation.bsky.social co-hosted an international think tank at Ayer’s Cliff, Canada, bringing together leading scholars, professionals and practitioners to reimagine the future of #genomics, #medicine, and global population #health in a data-driven world now through 2050.
September 25, 2025 at 5:06 PM
The CGP and @phgfoundation.bsky.social co-hosted an international think tank at Ayer’s Cliff, Canada, bringing together leading scholars, professionals and practitioners to reimagine the future of #genomics, #medicine, and global population #health in a data-driven world now through 2050.
Prof. Calvin W.L. Ho’s talk, “Polygenic Risk Scores and the Human Right to Science,” from the Annual Bartha Maria Knoppers Lecture, is now available for viewing! 🎤
Watch the recording on our YouTube channel: youtu.be/BRbpegQDF5A?...
Watch the recording on our YouTube channel: youtu.be/BRbpegQDF5A?...
September 10, 2025 at 2:21 PM
Prof. Calvin W.L. Ho’s talk, “Polygenic Risk Scores and the Human Right to Science,” from the Annual Bartha Maria Knoppers Lecture, is now available for viewing! 🎤
Watch the recording on our YouTube channel: youtu.be/BRbpegQDF5A?...
Watch the recording on our YouTube channel: youtu.be/BRbpegQDF5A?...
🎤 That’s a wrap on the 3rd Annual Bartha Maria Knoppers Lecture! Honoured to host Prof. Calvin W.L. Ho (@monashuniversity.bsky.social) for his talk, "Polygenic Risk Scores and the Human Right to Science," celebrating Knoppers' legacy in genomics and health law. Thanks to all who attended!
September 8, 2025 at 6:42 PM
🎤 That’s a wrap on the 3rd Annual Bartha Maria Knoppers Lecture! Honoured to host Prof. Calvin W.L. Ho (@monashuniversity.bsky.social) for his talk, "Polygenic Risk Scores and the Human Right to Science," celebrating Knoppers' legacy in genomics and health law. Thanks to all who attended!
Is it time to rethink ELSI? 💭
Last week at @mcgill.ca, our guest speaker Eric M. Meslin, global leader in bioethics and science policy and member of the CGP Advisory Committee member, sparked a vital convo on ELSI’s future in research & genomics—its roots, impact, and two diverging paths ahead.
Last week at @mcgill.ca, our guest speaker Eric M. Meslin, global leader in bioethics and science policy and member of the CGP Advisory Committee member, sparked a vital convo on ELSI’s future in research & genomics—its roots, impact, and two diverging paths ahead.
September 8, 2025 at 3:00 PM
Is it time to rethink ELSI? 💭
Last week at @mcgill.ca, our guest speaker Eric M. Meslin, global leader in bioethics and science policy and member of the CGP Advisory Committee member, sparked a vital convo on ELSI’s future in research & genomics—its roots, impact, and two diverging paths ahead.
Last week at @mcgill.ca, our guest speaker Eric M. Meslin, global leader in bioethics and science policy and member of the CGP Advisory Committee member, sparked a vital convo on ELSI’s future in research & genomics—its roots, impact, and two diverging paths ahead.
At the H2R conference at @ox.ac.uk, Terese Knoppers spoke about the barriers and bridges towards making healthcare data more accessible for childhood cancer survivors and families. The talk drew on ACCESS & CGP’s research project: Pan-Canadian Approaches to Data Sharing & Access.
🔗 bit.ly/47kscHi
🔗 bit.ly/47kscHi
August 29, 2025 at 7:22 PM
At the H2R conference at @ox.ac.uk, Terese Knoppers spoke about the barriers and bridges towards making healthcare data more accessible for childhood cancer survivors and families. The talk drew on ACCESS & CGP’s research project: Pan-Canadian Approaches to Data Sharing & Access.
🔗 bit.ly/47kscHi
🔗 bit.ly/47kscHi
📣 Upcoming conference on AI & biotech happening this week-end in Montreal!
CGP Academic Associate Maelenn Corfmat will be speaking on the “Bioethics in Action” panel at On the Verge, McGill iGEM’s annual biotech conference!
🔗 For more info & to register: igemontheverge.wixsite.com/home
CGP Academic Associate Maelenn Corfmat will be speaking on the “Bioethics in Action” panel at On the Verge, McGill iGEM’s annual biotech conference!
🔗 For more info & to register: igemontheverge.wixsite.com/home
August 29, 2025 at 6:10 PM
📣 Upcoming conference on AI & biotech happening this week-end in Montreal!
CGP Academic Associate Maelenn Corfmat will be speaking on the “Bioethics in Action” panel at On the Verge, McGill iGEM’s annual biotech conference!
🔗 For more info & to register: igemontheverge.wixsite.com/home
CGP Academic Associate Maelenn Corfmat will be speaking on the “Bioethics in Action” panel at On the Verge, McGill iGEM’s annual biotech conference!
🔗 For more info & to register: igemontheverge.wixsite.com/home
⏰ Just over 2 weeks away until the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! We are grateful to have Prof. Calvin Ho as this year’s speaker. Join us for an insightful talk on Polygenic Risk Scores & the Human Right to Science.
🧵More details: bit.ly/472cW1z
🧵More details: bit.ly/472cW1z
August 21, 2025 at 2:41 PM
⏰ Just over 2 weeks away until the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! We are grateful to have Prof. Calvin Ho as this year’s speaker. Join us for an insightful talk on Polygenic Risk Scores & the Human Right to Science.
🧵More details: bit.ly/472cW1z
🧵More details: bit.ly/472cW1z
📘 Guide (English): lnkd.in/ecRmQqrM
📘 Guide (French): lnkd.in/eDJ9AQra
🔗 Both guides are also available on our website:
lnkd.in/exJTMtSr
#IntersexHealth #HealthEquity #InclusiveCare #AffirmativePractice
📘 Guide (French): lnkd.in/eDJ9AQra
🔗 Both guides are also available on our website:
lnkd.in/exJTMtSr
#IntersexHealth #HealthEquity #InclusiveCare #AffirmativePractice
August 19, 2025 at 4:11 PM
📘 Guide (English): lnkd.in/ecRmQqrM
📘 Guide (French): lnkd.in/eDJ9AQra
🔗 Both guides are also available on our website:
lnkd.in/exJTMtSr
#IntersexHealth #HealthEquity #InclusiveCare #AffirmativePractice
📘 Guide (French): lnkd.in/eDJ9AQra
🔗 Both guides are also available on our website:
lnkd.in/exJTMtSr
#IntersexHealth #HealthEquity #InclusiveCare #AffirmativePractice
🚨Two NEW papers from our team!
Ecological Genome Project
🔗 doi.org/10.1111/bioe...
A bold vision for ecogenomics + One Health to guide ethical, interdisciplinary genomics.
Data Sharing in Genomics
🔗 doi.org/10.1186/s402...
New GA4GH lexicon to improve cross-border collaboration & data governance.
Ecological Genome Project
🔗 doi.org/10.1111/bioe...
A bold vision for ecogenomics + One Health to guide ethical, interdisciplinary genomics.
Data Sharing in Genomics
🔗 doi.org/10.1186/s402...
New GA4GH lexicon to improve cross-border collaboration & data governance.
August 13, 2025 at 1:22 PM
🚨Two NEW papers from our team!
Ecological Genome Project
🔗 doi.org/10.1111/bioe...
A bold vision for ecogenomics + One Health to guide ethical, interdisciplinary genomics.
Data Sharing in Genomics
🔗 doi.org/10.1186/s402...
New GA4GH lexicon to improve cross-border collaboration & data governance.
Ecological Genome Project
🔗 doi.org/10.1111/bioe...
A bold vision for ecogenomics + One Health to guide ethical, interdisciplinary genomics.
Data Sharing in Genomics
🔗 doi.org/10.1186/s402...
New GA4GH lexicon to improve cross-border collaboration & data governance.
We are elated to host the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! Our guest speaker Calvin Ho, Associate Professor (Faculty of Law, Monash University), will present on “Polygenic Risk Scores and the Human Right to Science.”
RSVP by Aug 28: bit.ly/4kPaLBC
RSVP by Aug 28: bit.ly/4kPaLBC
July 22, 2025 at 7:55 PM
We are elated to host the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! Our guest speaker Calvin Ho, Associate Professor (Faculty of Law, Monash University), will present on “Polygenic Risk Scores and the Human Right to Science.”
RSVP by Aug 28: bit.ly/4kPaLBC
RSVP by Aug 28: bit.ly/4kPaLBC
While #GenerativeAI helps make #GenomicResearch more productive and accessible, Academic Associate Maelenn Corfmat explores two key concerns in her HaploTalks presentation at the @mcgill.ca Victor Phillip Dahdaleh Institute of Genomic Medicine: #Privacy and #HumanAgency 🧬🤖💬
June 13, 2025 at 7:20 PM
While #GenerativeAI helps make #GenomicResearch more productive and accessible, Academic Associate Maelenn Corfmat explores two key concerns in her HaploTalks presentation at the @mcgill.ca Victor Phillip Dahdaleh Institute of Genomic Medicine: #Privacy and #HumanAgency 🧬🤖💬
Academic Associate Terese Knoppers shared the Centre’s latest research on improving intersex health communication with intersex adults in Canada at the Intersex Insights conference in Dublin, Ireland.
🔗 To learn more about the research: www.frontiersin.org/journals/pub...
🔗 To learn more about the research: www.frontiersin.org/journals/pub...
June 12, 2025 at 8:23 PM
Academic Associate Terese Knoppers shared the Centre’s latest research on improving intersex health communication with intersex adults in Canada at the Intersex Insights conference in Dublin, Ireland.
🔗 To learn more about the research: www.frontiersin.org/journals/pub...
🔗 To learn more about the research: www.frontiersin.org/journals/pub...
This week concludes the Global Health Law summer course led by CGP Director Yann Joly and Academic Associate Diya Uberoi, offered as part of the @mcgill.ca Summer Institute in Global Health Program. 🌎 🩺 ⚖️ Thank you to all who participated!
June 6, 2025 at 6:20 PM
This week concludes the Global Health Law summer course led by CGP Director Yann Joly and Academic Associate Diya Uberoi, offered as part of the @mcgill.ca Summer Institute in Global Health Program. 🌎 🩺 ⚖️ Thank you to all who participated!
We are elated to have CGP Academic Associate Diya Uberoi host this year’s summer course on Global Health Law at the McGill Summer Institutes in Global Health. 🌎 ⚖️
🔗 Register now while spots last!
www.mcgill.ca/summerinstit...
#GlobalHealthLaw
🔗 Register now while spots last!
www.mcgill.ca/summerinstit...
#GlobalHealthLaw
May 28, 2025 at 3:38 PM
We are elated to have CGP Academic Associate Diya Uberoi host this year’s summer course on Global Health Law at the McGill Summer Institutes in Global Health. 🌎 ⚖️
🔗 Register now while spots last!
www.mcgill.ca/summerinstit...
#GlobalHealthLaw
🔗 Register now while spots last!
www.mcgill.ca/summerinstit...
#GlobalHealthLaw
Yann Joly will take part in the @d2rmcgill.bsky.social & AReNA symposium at the 92nd @acfas.ca congress! He will be joining a panel of experts to discuss ethics & equity in RNA-based therapies. 🧬🔬
📅 May 5, 2025
⏰ 12:45 pm - 7:00 pm
💡Learn more: www.mcgill.ca/dna-to-rna/c...
#ACFAS8 #RNA
📅 May 5, 2025
⏰ 12:45 pm - 7:00 pm
💡Learn more: www.mcgill.ca/dna-to-rna/c...
#ACFAS8 #RNA
April 9, 2025 at 6:02 PM
Yann Joly will take part in the @d2rmcgill.bsky.social & AReNA symposium at the 92nd @acfas.ca congress! He will be joining a panel of experts to discuss ethics & equity in RNA-based therapies. 🧬🔬
📅 May 5, 2025
⏰ 12:45 pm - 7:00 pm
💡Learn more: www.mcgill.ca/dna-to-rna/c...
#ACFAS8 #RNA
📅 May 5, 2025
⏰ 12:45 pm - 7:00 pm
💡Learn more: www.mcgill.ca/dna-to-rna/c...
#ACFAS8 #RNA
That’s a wrap on the @ga4gh.org Connect Meeting at @broadinstitute.org! 🚀
🔬CGP chaired 3 key sessions on:
1. Improving REWS adoption across communities
2. Brainstorming #ClinicalDataSharing standards to guide institutional practices
3. REWS in Focus: Bridging regulatory & ethical gaps
🔬CGP chaired 3 key sessions on:
1. Improving REWS adoption across communities
2. Brainstorming #ClinicalDataSharing standards to guide institutional practices
3. REWS in Focus: Bridging regulatory & ethical gaps
April 7, 2025 at 8:13 PM
That’s a wrap on the @ga4gh.org Connect Meeting at @broadinstitute.org! 🚀
🔬CGP chaired 3 key sessions on:
1. Improving REWS adoption across communities
2. Brainstorming #ClinicalDataSharing standards to guide institutional practices
3. REWS in Focus: Bridging regulatory & ethical gaps
🔬CGP chaired 3 key sessions on:
1. Improving REWS adoption across communities
2. Brainstorming #ClinicalDataSharing standards to guide institutional practices
3. REWS in Focus: Bridging regulatory & ethical gaps
🎤 Productive session at GA4GH (@ga4gh.org) Connect on #datavisiting in #genomics research! Experts explored new models and discussed key challenges with Paul Esselaar, Yann Joly, Donrich Thaldar, & Robin Roehm.
Thanks for a great discussion! 👏
Thanks for a great discussion! 👏
April 3, 2025 at 6:18 PM
🎤 Productive session at GA4GH (@ga4gh.org) Connect on #datavisiting in #genomics research! Experts explored new models and discussed key challenges with Paul Esselaar, Yann Joly, Donrich Thaldar, & Robin Roehm.
Thanks for a great discussion! 👏
Thanks for a great discussion! 👏
Join us on April 10th for Prof. Donrich Thaldar's talk on "Technology, Reproductive Autonomy, and Its Limits: The South African Experience," hosted by the CGP and McGill RGHL.
Register by April 8th:
forms.gle/bTFLSnHJDTv9...
Please view the flyer for more information.
Register by April 8th:
forms.gle/bTFLSnHJDTv9...
Please view the flyer for more information.
March 27, 2025 at 3:24 PM
Join us on April 10th for Prof. Donrich Thaldar's talk on "Technology, Reproductive Autonomy, and Its Limits: The South African Experience," hosted by the CGP and McGill RGHL.
Register by April 8th:
forms.gle/bTFLSnHJDTv9...
Please view the flyer for more information.
Register by April 8th:
forms.gle/bTFLSnHJDTv9...
Please view the flyer for more information.
Visit our booth at the HGSS 2025 Conference hosted by @mcgill-hgss.bsky.social 🧬Join us as we explore the latest in #GenomicResearch and its real-world applications, network w/ experts, and discover #CGP opportunities!
🗓️ May 2 @ 8:30AM – 5PM | McGill Faculty Club, Montreal
Stay tuned for more info!
🗓️ May 2 @ 8:30AM – 5PM | McGill Faculty Club, Montreal
Stay tuned for more info!
March 10, 2025 at 8:34 PM
Visit our booth at the HGSS 2025 Conference hosted by @mcgill-hgss.bsky.social 🧬Join us as we explore the latest in #GenomicResearch and its real-world applications, network w/ experts, and discover #CGP opportunities!
🗓️ May 2 @ 8:30AM – 5PM | McGill Faculty Club, Montreal
Stay tuned for more info!
🗓️ May 2 @ 8:30AM – 5PM | McGill Faculty Club, Montreal
Stay tuned for more info!
📣 Appel de communications ‼️
Nous acceptons actuellement des soumissions pour une session à l’Acfas sur le droit à l’explication et l’intelligence artificielle dans le domaine de la santé.
📩 Veuillez soumettre vos propositions d'ici le 14 février 2025!
@mhzawati.bsky.social
Nous acceptons actuellement des soumissions pour une session à l’Acfas sur le droit à l’explication et l’intelligence artificielle dans le domaine de la santé.
📩 Veuillez soumettre vos propositions d'ici le 14 février 2025!
@mhzawati.bsky.social
February 7, 2025 at 8:39 PM
📣 Appel de communications ‼️
Nous acceptons actuellement des soumissions pour une session à l’Acfas sur le droit à l’explication et l’intelligence artificielle dans le domaine de la santé.
📩 Veuillez soumettre vos propositions d'ici le 14 février 2025!
@mhzawati.bsky.social
Nous acceptons actuellement des soumissions pour une session à l’Acfas sur le droit à l’explication et l’intelligence artificielle dans le domaine de la santé.
📩 Veuillez soumettre vos propositions d'ici le 14 février 2025!
@mhzawati.bsky.social
Diya Uberoi, Academic Associate of the Centre of Genomics and Policy (CGP) and Associate Director of the Genetic Discrimination Observatory (GDO), presented the GDO's most recent project on #GeneticDiscrimination in #pediatric #oncology at ACCESS-ACCES's Annual Conference 🩺 🧬
@dgenetique.bsky.social
@dgenetique.bsky.social
January 29, 2025 at 3:43 PM
Diya Uberoi, Academic Associate of the Centre of Genomics and Policy (CGP) and Associate Director of the Genetic Discrimination Observatory (GDO), presented the GDO's most recent project on #GeneticDiscrimination in #pediatric #oncology at ACCESS-ACCES's Annual Conference 🩺 🧬
@dgenetique.bsky.social
@dgenetique.bsky.social
CGP Academic Associate Maushumi Bhattacharjee presented her Doctoral Thesis Proposal at McGill University's Faculty of Law! 🎓 Her research, "Theorising a Caring Law for Healthcare Innovation - The Story of Psychedelics," explores #law, #healthcare, and #psychedelics. 🍄 Congratulations, Maushumi! 🌟
December 23, 2024 at 2:46 PM
CGP Academic Associate Maushumi Bhattacharjee presented her Doctoral Thesis Proposal at McGill University's Faculty of Law! 🎓 Her research, "Theorising a Caring Law for Healthcare Innovation - The Story of Psychedelics," explores #law, #healthcare, and #psychedelics. 🍄 Congratulations, Maushumi! 🌟
Last Thursday, Meng Weng (PhD candidate, University of Macau) discussed “Innovative Biotherapies and Patient Rights,” highlighting regulatory challenges and solutions in China's rapidly evolving biotherapy landscape.
December 13, 2024 at 9:00 PM
Last Thursday, Meng Weng (PhD candidate, University of Macau) discussed “Innovative Biotherapies and Patient Rights,” highlighting regulatory challenges and solutions in China's rapidly evolving biotherapy landscape.
Last week, CGP visiting scholar Mayumi Kusunose shared her research on “Benefit-Sharing in Japan: Public Attitudes and Pilot Framework.” Her talk explored a process-based approach to improve how benefits are determined aiming to make benefit-sharing more equitable.
#CGP #RIKEN #BenefitSharing
#CGP #RIKEN #BenefitSharing
December 5, 2024 at 3:06 PM
Last week, CGP visiting scholar Mayumi Kusunose shared her research on “Benefit-Sharing in Japan: Public Attitudes and Pilot Framework.” Her talk explored a process-based approach to improve how benefits are determined aiming to make benefit-sharing more equitable.
#CGP #RIKEN #BenefitSharing
#CGP #RIKEN #BenefitSharing