Fair Treatment for the Women of Wales (FTWW)
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ftww.bsky.social
Fair Treatment for the Women of Wales (FTWW)
@ftww.bsky.social
260 followers 470 following 130 posts
The only patient-led charity in Wales dedicated to achieving health equality for women, girls, and people assigned female at birth. We Chair the #WomensHealthWales Coalition. Disabled People's Organisation.
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ftww.bsky.social
We hope that the days of dismissing this cruel illness will be confined to the past, and that further research, treatment options and cures will be developed in the future.

Visit ftww.org.uk/health-issue... for more info about ME, and be sure to follow our friends at @wamesmecfs.bsky.social too.
Find out more about ME on our website, where you’ll also find a downloadable bilingual information leaflet, and signposts to support available. A QR code has been added to the page, linking to the website.
August 8, 2025 at 12:21 PM
ftww.bsky.social
As part of #SevereMEWeek, we are cautiously optimistic that we may finally be turning a corner and have hope for the future.

@decodemestudy.bsky.social has published findings from their research, and WorldMEAlliance has released vital guidance to clinicians.
Eight genetic signals have been identified. As DNA doesn’t change with ME/CFS onset, these findings reflect causes rather than effects of ME/CFS. The signals discovered are involved in the immune and the nervous systems, indicating immunological and neurological causes to this poorly understood disease. At least two of the signals relate to the body’s response to infection. Other signals point to the nervous system, one of which researchers previously found in people experiencing chronic pain, reinforcing neurological contributions to ME/CFS. These signals align with how people with ME/CFS describe their illness. “Most of us with ME have had our symptoms and experiences minimised, dismissed, and questioned, by medical professionals, employers, and even those close to us. I personally feel vindicated and hopeful for future developments in diagnostic tests, treatments, and cures (which currently don't exist). Any doubters can now have this research put in front of them.” Dee - FTWW Engagement Coordinator and Volunteer ME Champion The World ME Alliance has also published new vital guidance for clinicians, designed to support self-advocacy when people with Severe ME may be too unwell to speak for themselves, and to guide healthcare professionals toward safer, more appropriate care. (a screenshot of the document)
August 8, 2025 at 12:21 PM
ftww.bsky.social
This opportunity was first shared in our Facebook group - if you are a female patient (or assigned female at birth) living in / accessing healthcare in Wales, please do join us! www.facebook.com/groups/ftww.... - please answer the joining questions and agree to the rules so as we can admit you.
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July 16, 2025 at 1:53 PM