Freya Elise
freyaelise.bsky.social
Freya Elise
@freyaelise.bsky.social
Autistic researcher @ UCL
🏳️‍🌈
We have another paper on autistic people without ID (Irvine et al. 2024). Different methods were needed & in general few qual studies communicate directly with ppl with ID which was super important to me to be doing. AKA it's across spectrum not related to intellectual ability.
December 4, 2024 at 10:05 PM
Thank you!!!
December 1, 2024 at 2:54 PM
Thank you so much for all your input! You are Queen proof reader and wrangler of references when Zotero fails!
November 29, 2024 at 7:04 PM
Check out >>>
@craeioe.bsky.social
soon for a summary of our findings about the perceptual experiences of both groups... I'm slightly too excited & so so thankful to everyone involved especially
@annaremington.bsky.social
and the consultants with lived experience 🎉
November 29, 2024 at 11:38 AM
Guided by autistic people with LD and ppl with WS we used a range of adaptations such as this research passport osf.io/wq43f/ ...but a lot of things were purely being flexible, they weren't complex or high cost.
Research Passport
A Research Passport designed for use with autistic adults with or without learning disabilities Hosted on the Open Science Framework
osf.io
November 29, 2024 at 11:38 AM
This is my 1st first author paper & I'm so grateful to the SUPER team @craeioe.bsky.social
for allowing me to do this work & being 100% behind importance of adapting research methods to include #autistic people with LD & people with #WilliamsSyndrome.
November 29, 2024 at 11:38 AM
(Essentially they want me to evidence knowledge of current policy and research gaps then design a study for that question. But I'm stuck on the fact policy doesn't exist in a functioning MH system!!!)
November 27, 2024 at 12:26 PM