Ros J
flossydotscake.bsky.social
Ros J
@flossydotscake.bsky.social
Music, art and nature is my happy place. Chronic blood cancer has changed my life in so many ways.
A and B?
November 6, 2025 at 10:56 PM
53
September 6, 2025 at 8:40 PM
Also, don’t let nausea take hold, get meds and try to control before it gets bad.
May 5, 2025 at 9:53 PM
How long ago was sct? Typically taste is changed, and nausea can be an issue. Keep hydrated and eat whatever foods you like for a few months until things settle. Move around for small amounts frequently rather than a walk if walking is difficult. Anything seems wrong, check with his treatment team.
May 5, 2025 at 9:52 PM
I had a stem cell transplant in Jan 22. I was very scared leading up to it reading people’s experiences. I got lucky, no major issues and out of hospital in 13 days. Make sure hubby sucks on ice before,during and after the melphalan to reduce mucositis. Drink plenty of water/fluids.
January 5, 2025 at 9:02 PM
I’m living with multiple myeloma, favourite icecream flavour would be salted caramel. Best thing this year is the trial I’m on (Linker) is going really well, thought I was “circling the drain” in August. I’m about to move to a new place with my adult kids tomorrow, just as fabulous!
December 5, 2024 at 4:21 AM
Dormant until it gathers enough cells to be active on tests again. If you’re one of the lucky ones it stays at low levels for a long time. I’ve been on active treatment or maintenance since diagnosis for over 3 years, on my third line of treatment, never experienced a period of dormancy.
November 25, 2024 at 7:56 PM
I am, thanks! Everything crossed for a great recovery for you.
November 22, 2024 at 5:49 AM
I’ve had one, I remember the real fear beforehand. I kept telling myself they wouldn’t do it unless they thought it would work. Some really hard days around day 8-12 for me, but I got there. Wishing you all the best.
November 22, 2024 at 5:41 AM
Beautiful
November 10, 2024 at 8:53 AM