Fiona Robinson, PhD
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fionarobinsonphd.bsky.social
Fiona Robinson, PhD
@fionarobinsonphd.bsky.social
Consultant, Medical Writing and Editing
ETK: Empowerment Through Knowledge
Areas of specialisation: inheritable bleeding disorders, education and research that centres lived experience experts
Based in Montréal, Québec, Canada
TODAY! 2PM ET
Add your voice to those of our medical, health access, and lived experience experts in the discussion of who is left out of bleeding disorders care.
Who Is Left Out of Bleeding Disorders Care?
In this week's NBDF @htrstoday.bsky.social Research Journal Club medical, health access, and lived experience experts discuss health equity.
Bring your questions to advance this important conversation
Nov 5, 2PM ET
Pre-register (free): bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
November 5, 2025 at 4:45 PM
Who Is Left Out of Bleeding Disorders Care?
In this week's NBDF @htrstoday.bsky.social Research Journal Club medical, health access, and lived experience experts discuss health equity.
Bring your questions to advance this important conversation
Nov 5, 2PM ET
Pre-register (free): bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
November 3, 2025 at 3:16 PM
Access to care too often depends on who you are or where you live
Wed Nov 5 2PM ET
The NBDF @htrstoday.bsky.social Research Journal Club will discuss these challenges in bleeding disorders care with health access, clinical care, and lived experience experts.
Pre-register (free): bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
October 29, 2025 at 5:54 PM
TODAY! 2PM ET
In this week's NBDF Wednesday Webinar we will
Discover a Treatment Option from HEMA Biologics for the Hemophilia Community with Dr Guy Young.
www.bleeding.org/events/disco...
Discover a Treatment Option from HEMA Biologics for the Hemophilia Community | NBDF
Speakers: Guy Young, MDDescription: Join Dr. Young, speaking on behalf of HEMA Biologics, for an informative conversation about a treatment option for hemophilia A or B with inhibitors. This session w...
www.bleeding.org
October 15, 2025 at 3:23 PM
TODAY 2PM ET
Don't miss this rare opportunity to learn about an ultra-rare bleeding disorder from lived experience and medical experts!
Next week's NBDF Wednesday Webinar offers a unique opportunity to learn about The Odyssey of FX: Voices, Symptoms, and the Evolution of Care from medical and lived experience experts.
Wed, Oct 8
2PM ET
Pre-register (free): www.bleeding.org/events/the-o...
#FactorX
#Ultrarare
#BleedingDisorder
#LEE
The Odyssey of FX: Voices, Symptoms, and the Evolution of Care | NBDF
Speakers: Brian Branchford, MD; Ariel Loraine
www.bleeding.org
October 8, 2025 at 3:35 PM
Next week's NBDF Wednesday Webinar offers a unique opportunity to learn about The Odyssey of FX: Voices, Symptoms, and the Evolution of Care from medical and lived experience experts.
Wed, Oct 8
2PM ET
Pre-register (free): www.bleeding.org/events/the-o...
#FactorX
#Ultrarare
#BleedingDisorder
#LEE
The Odyssey of FX: Voices, Symptoms, and the Evolution of Care | NBDF
Speakers: Brian Branchford, MD; Ariel Loraine
www.bleeding.org
October 3, 2025 at 4:24 PM
TODAY!
2PM ET
It's not too late to pre-register (free) at the link below!
Big changes are coming to insurance plans. In next week's NBDF Wednesday Webinar a whole team of experts will walk you through what's on the horizon for Marketplace and employer-sponsored plans, so you're ready for Open Enrollment.
2PM ET, Oct 1
Don't miss the live Q&A
Register: bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
October 1, 2025 at 12:37 PM
Reposted by Fiona Robinson, PhD
Big changes are coming to insurance plans. In next week's NBDF Wednesday Webinar a whole team of experts will walk you through what's on the horizon for Marketplace and employer-sponsored plans, so you're ready for Open Enrollment.
2PM ET, Oct 1
Don't miss the live Q&A
Register: bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
September 26, 2025 at 5:51 PM
Big changes are coming to insurance plans. In next week's NBDF Wednesday Webinar a whole team of experts will walk you through what's on the horizon for Marketplace and employer-sponsored plans, so you're ready for Open Enrollment.
2PM ET, Oct 1
Don't miss the live Q&A
Register: bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
September 26, 2025 at 5:51 PM
TODAY!
2PM ET
It's not too late to pre-register (free) at the link below.
NBDF Wednesday Webinars are back!
Join me Sept 10, 2PM ET
as Dr Guy Young provides helpful insights to better understand the HEMA Biologics treatment option for hemophilia A or B with inhibitors.
www.bleeding.org/events/disco...
Discover a Treatment Option from HEMA Biologics for the Hemophilia Community | NBDF
Learn about a treatment option for hemophilia A or B with inhibitors in this insightful talk with Dr. Young.
www.bleeding.org
September 10, 2025 at 2:14 PM
NBDF Wednesday Webinars are back!
Join me Sept 10, 2PM ET
as Dr Guy Young provides helpful insights to better understand the HEMA Biologics treatment option for hemophilia A or B with inhibitors.
www.bleeding.org/events/disco...
Discover a Treatment Option from HEMA Biologics for the Hemophilia Community | NBDF
Learn about a treatment option for hemophilia A or B with inhibitors in this insightful talk with Dr. Young.
www.bleeding.org
September 8, 2025 at 1:53 PM
TODAY 2PM ET!
In the NBDF Wednesday Webinar we learn from medical research and lived experience experts about research into why some people with severe hemophilia A develop inhibitors, and others do not.
Bring your questions for the live Q&A!
Pre-register (free): bleeding.org/events
August 13, 2025 at 2:15 PM
Why do some people with severe hemophilia A develop inhibitors and not others? In the next National Bleeding Disorders Foundation Wednesday Webinar lived experience and medical experts explain research into this question and the My Life, Our Future genetic database
Aug 13 2PM
bleeding.org/Events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
Bleeding.org
August 6, 2025 at 6:31 PM
TODAY 2PM ET!
Don't miss this chance to learn from Dr Tammuella Chrisentery-Singleton, about @HEMABiologics #treatment option for #hemophilia A and B with #inhibitors in the NBDF Wednesday Webinar.
Bring your questions for the live Q&A!
Pre-register (free): bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
July 30, 2025 at 3:05 PM
Do you know all the available #hemophilia #treatment products?
In next week's NBDF Wednesday Webinar we will hear all about HEMA Biologics' treatment option for the hemophilia community from one of the very best medical educators: Dr Tami Chrisentery-Singleton!
Pre-register (free): bit.ly/4mSA5cr
Welcome! You are invited to join a webinar series: NBDF Wednesday Webinars 2025. After registering, you will receive a confirmation email about joining the webinar.
Welcome to the National Bleeding Disorders Foundation Wednesday Webinars: a series of free weekly educational 1-hr webinars (40 min live presentation, followed by 20 min moderated Q&A) that aims to bring knowledge about the latest in research, breakthrough developments, and more to the inheritable bleeding and blood disorders community. The audience consists of healthcare professionals and lived experience experts (patients, families, caregivers) from around the world. Topics range from research into new therapies and diagnostics, to lived experiences of people with bleeding and blood disorders, and the latest advocacy and community organization news. Webinars are held on Wednesdays at 2PM ET. Your registration gives you access to all webinars in the series.
bit.ly
July 24, 2025 at 3:47 PM
For decades living with #hemophilia meant IV infusions for many people, but now some treatments are given by subcutaneous injection.
In tomorrow's NBDF Wednesday Webinar Dr Akshat Jain will tell us all about one of these!
July 23
2PM ET
Pre-register (free): www.bleeding.org/events/a-new...
A New Rebalancing Therapy Delivered by Subcutaneous Injection for Hemophilia A and B | NBDF
This presentation will cover the benefits and safety of this new treatment, as well as how to get started and what life could look like with this product.
www.bleeding.org
July 22, 2025 at 7:29 PM
TODAY!!
2PM ET
Can #BleedingDisorders #research benefit #children? What kind of research is being done? Are there special considerations for research with #youth?
Join me this Wednesday and ask medical and lived experience experts your questions about bleeding disorders research in children and adolescents!
July 16 2PM ET
In the 2nd @htrstoday.bsky.social NBDF Research Journal Club we will learn about research in children and adolescents with bleeding disorders from medical and lived experience experts.
Bring your questions for the live Q&A
Pre-register (free):
www.bleeding.org/events/resea...
July 16, 2025 at 2:03 PM
Can #BleedingDisorders #research benefit #children? What kind of research is being done? Are there special considerations for research with #youth?
Join me this Wednesday and ask medical and lived experience experts your questions about bleeding disorders research in children and adolescents!
July 14, 2025 at 4:01 PM
July 16 2PM ET
In the 2nd @htrstoday.bsky.social NBDF Research Journal Club we will learn about research in children and adolescents with bleeding disorders from medical and lived experience experts.
Bring your questions for the live Q&A
Pre-register (free):
www.bleeding.org/events/resea...
Research in Children and Adolescents with Inherited Bleeding Disorders | NBDF
This session explores the latest advances and challenges in research focused on children and adolescents with inherited bleeding disorders, such as hemophilia, von Willebrand disease, and other rare c...
www.bleeding.org
July 9, 2025 at 9:58 PM
TODAY! 2PM ET
In the National Bleeding Disorders Foundation Wednesday Webinar,
hear from medical and lived experience experts about people with VWD reshaping research and care.
Pre-register (free): bleeding.org/events

#VWD
#LivedExperienceExpertt
#ClinicalTrial
#PatientCentered
#Outcomes
June 4, 2025 at 1:49 PM
What if people with #VWD had a say in the outcomes #ClinicalTrials measure? Could they agree on outcomes to recommend?
In the June 4 NBDF Wednesday Webinar Mark Skinner, Elizabeth Clearfield, Baiba M. Ziemele, and Dr @james-paula.bsky.social explain how coreVWD did exactly this!
bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
May 28, 2025 at 9:17 PM
TODAY!! 2PM ET

Wearable neurostimulation to treat heavy menstrual bleeding and cramps - for real? Come find out!
May 28, 2025 at 1:42 PM
Reposted by Fiona Robinson, PhD
In the next National Bleeding Disorders Foundation Wednesday Webinar Dr Navid Khodaparast and Amy Gaston will tell us about a new wearable neurostimulation to address heavy menstrual bleeding and painful periods
May 28 2PM ET
Pre-register (free):
www.bleeding.org/events/a-new...
@ohmbody.bsky.social
A New Era in Menstrual Care: The Revolutionary Science of Wearable Neurostimulation | NBDF
Learn more about the clinical trial work and exciting results that demonstrate the potential of wearable neurostimulation to address heavy menstrual bleeding and painful periods. Be among the first to...
www.bleeding.org
May 22, 2025 at 8:12 PM
In the next National Bleeding Disorders Foundation Wednesday Webinar Dr Navid Khodaparast and Amy Gaston will tell us about a new wearable neurostimulation to address heavy menstrual bleeding and painful periods
May 28 2PM ET
Pre-register (free):
www.bleeding.org/events/a-new...
@ohmbody.bsky.social
A New Era in Menstrual Care: The Revolutionary Science of Wearable Neurostimulation | NBDF
Learn more about the clinical trial work and exciting results that demonstrate the potential of wearable neurostimulation to address heavy menstrual bleeding and painful periods. Be among the first to...
www.bleeding.org
May 22, 2025 at 8:12 PM
TODAY!
2PM ET
In tomorrow's National Bleeding Disorders Foundation Wednesday Webinar Bradley Schoenfeld from Pfizer will tell us all about recently approved marstacimab in the management of hemophilia.
Bring your questions for the live Q&A!
May 21, 2PM ET
Pre-register for free:
www.bleeding.org/events/under...
Understanding HYMPAVZI™ (marstacimab-hncq) | NBDF
If you would like to learn more about HYMPAVI (marstacimab-hncq), Pfizer’s new therapy for the treatment of hemophilia, this webinar will give you further insights. This webinar will cover some high-l...
www.bleeding.org
May 21, 2025 at 12:36 PM