• https://fabledfelts.carrd.co/ - ✉️, DM, Discord
• Animals / Fandom | pfp mcmadmissile
• Cure F.O.P ♿️ IFOPA.org ❌ 🥄 for Alt Text
— New ♿️ isn't fixed, it's worse.
— Old ♿️ 's software disabled in the process.
— New ♿️ back to workshop, getting reassembling again
Cool beans. /src
— New ♿️ isn't fixed, it's worse.
— Old ♿️ 's software disabled in the process.
— New ♿️ back to workshop, getting reassembling again
Cool beans. /src
The good news? There’s still time. You can give through September 30 — every dollar fuels research, accelerates the next breakthrough, & honors 35 years of fundraising progress.
The good news? There’s still time. You can give through September 30 — every dollar fuels research, accelerates the next breakthrough, & honors 35 years of fundraising progress.
🎉Incredible news: Thanks to YOU, we’ve met the $50,000 match, turning your gifts into more than $100,000 for the FOP community! 🙌
With Day of Giving today, every gift funds research that brings us closer to more treatments, and, one day, a cure ❤️
#FOP #Disability #Disabled #Charity
🎉Incredible news: Thanks to YOU, we’ve met the $50,000 match, turning your gifts into more than $100,000 for the FOP community! 🙌
With Day of Giving today, every gift funds research that brings us closer to more treatments, and, one day, a cure ❤️
#FOP #Disability #Disabled #Charity
Altered my brain chemistry.
Altered my brain chemistry.
The Aussie government (unlike UK) actually giving a shit about us is phenomenal. The news dropped this morning is priceless.
Folk need to not shun rare disease. We DO matter.
The Aussie government (unlike UK) actually giving a shit about us is phenomenal. The news dropped this morning is priceless.
Folk need to not shun rare disease. We DO matter.
1st September, Palovarotene will become the first treatment on the PBS!
This will enable subsidised 💰 supply to eligible 🇦🇺 patients!
1st September, Palovarotene will become the first treatment on the PBS!
This will enable subsidised 💰 supply to eligible 🇦🇺 patients!
He’s completing a 70.3-mile modified Ironman along the NC coast—while carrying a 35lb ruck sack 🎒
Let’s cheer him on as he swims 🏊🏻 1.2mi, bikes 🚴🏻♂️ 56mi & ruck-runs 🏃🏻♂️ 13.1mi for FOP research!
Con.👇🏻
#Disabled
He’s completing a 70.3-mile modified Ironman along the NC coast—while carrying a 35lb ruck sack 🎒
Let’s cheer him on as he swims 🏊🏻 1.2mi, bikes 🚴🏻♂️ 56mi & ruck-runs 🏃🏻♂️ 13.1mi for FOP research!
Con.👇🏻
#Disabled
⛳ From one family’s determination came momentum. Today, community fundraisers still fuel progress + hope.
#Disabled #Disability #charity #RareDisease
⛳ From one family’s determination came momentum. Today, community fundraisers still fuel progress + hope.
#Disabled #Disability #charity #RareDisease
With IFOPA’s support:
✅ 8 trials launched
✅ 3 completed
✅ 5 active
✅ 1 treatment approved
“Clinical trials are a bold step into the future […] Together, we will get there. That is our hope.” — Dr. Fred Kaplan
#Disability #Medicine
With IFOPA’s support:
✅ 8 trials launched
✅ 3 completed
✅ 5 active
✅ 1 treatment approved
“Clinical trials are a bold step into the future […] Together, we will get there. That is our hope.” — Dr. Fred Kaplan
#Disability #Medicine
Something something manufacturer delay replying something willing to offer walkthrough reassembling it something.
Not convinced it'll go fine. They broke my current chair years ago. Still no explanation.
They're only repair tech, not engineers.
Something something manufacturer delay replying something willing to offer walkthrough reassembling it something.
Not convinced it'll go fine. They broke my current chair years ago. Still no explanation.
They're only repair tech, not engineers.
“Being an ambassador means giving back and showing others they’re not alone," said Bernadette, who lives with FOP.
Join us to advance critical FOP research! 🧬
www.ifopa.org/curefop
#Disability #DisabledFur #DisabilitySky
“Being an ambassador means giving back and showing others they’re not alone," said Bernadette, who lives with FOP.
Join us to advance critical FOP research! 🧬
www.ifopa.org/curefop
#Disability #DisabledFur #DisabilitySky
⬖ Animal artdolls — wool & exotic fibres
⬖ Real & Imagined | Fandom & Original
⬖ Personal & Commissions
⬖ DMs/Messages welcomed ✨
⬖ Animal artdolls — wool & exotic fibres
⬖ Real & Imagined | Fandom & Original
⬖ Personal & Commissions
⬖ DMs/Messages welcomed ✨
I have FOP, I think my opinion matters more. I have yet to find someone who'd 'Don't google photos because it looks painful'
Con.
I have FOP, I think my opinion matters more. I have yet to find someone who'd 'Don't google photos because it looks painful'
Con.
Royal Darwin Show 2022, Third Place winner
▫️Italian wool
▫️Corriedale core
▫️Armature
▫️Plastic nose
▫️Glass eyes
▫️Sterling silver whiskers
▫️Taxidermy resin jawset
#NeedleFelt #FabledFeltsArt #ArtSky #FurryArt
Royal Darwin Show 2022, Third Place winner
▫️Italian wool
▫️Corriedale core
▫️Armature
▫️Plastic nose
▫️Glass eyes
▫️Sterling silver whiskers
▫️Taxidermy resin jawset
#NeedleFelt #FabledFeltsArt #ArtSky #FurryArt
The 2025 #InPursuitOfACure campaign launches today—a celebration of what the FOP community has built & a call to keep going 💙
📅 Join us September 16 for the Day of Giving
🎯 Goal: $500,000 for research
🎥 Watch:👇🏻
#Disabled #Fibrodysplasia #RareDisease #Disability
The 2025 #InPursuitOfACure campaign launches today—a celebration of what the FOP community has built & a call to keep going 💙
📅 Join us September 16 for the Day of Giving
🎯 Goal: $500,000 for research
🎥 Watch:👇🏻
#Disabled #Fibrodysplasia #RareDisease #Disability