EURORDIS-Rare Diseases Europe
@eurordis.bsky.social
An alliance of non-profit organisations working across borders and diseases to improve the lives of all people living with rare diseases.
📣 Deadline extended!
POV: When you thought you missed the #RareBarometer survey… but it’s now open until 14 December 😮👇
Don’t wait, we want to hear from you!
👉 Take the survey now: http://tiny.cc/RB-MH
POV: When you thought you missed the #RareBarometer survey… but it’s now open until 14 December 😮👇
Don’t wait, we want to hear from you!
👉 Take the survey now: http://tiny.cc/RB-MH
November 19, 2025 at 8:01 AM
📣 Deadline extended!
POV: When you thought you missed the #RareBarometer survey… but it’s now open until 14 December 😮👇
Don’t wait, we want to hear from you!
👉 Take the survey now: http://tiny.cc/RB-MH
POV: When you thought you missed the #RareBarometer survey… but it’s now open until 14 December 😮👇
Don’t wait, we want to hear from you!
👉 Take the survey now: http://tiny.cc/RB-MH