🌟 Thank you to everyone who joined our Aspergillosis Patient Conference 2025! Huge thanks to our speakers and the Aspergillosis Patient Advisory Group for making this first conference possible.

🎥 Session recordings will be available on the ELF website in 2 weeks.

🚨 Starting soon!

There is still time to join us for the ELF Aspergillosis Patient Conference. If you or someone you know is affected by aspergillosis, this is a great chance to hear from experts and ask questions.

👉 #/registrationistration" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky">https://us02web.zoom.us/webinar/register/WN_6WIGOpMnTrC6fKK8RBWVAw#/registration

As a partner in the SOLACE Project, during Lung Cancer Awareness Month, we are proud to share that the project recently launched a Knowledge Hub bringing together essential, evidence-based resources: https://hub.solacelung.eu/

#SOLACE #LungCancerAwarenessMonth

🎥 The recording of our webinar on the new European bronchiectasis guidelines is now live! Learn what is new, what care to expect and how patients can use the guidelines in practice.

https://europeanlung.org/en/get-involved/events/understanding-the-new-european-bronchiectasis-guidelines/

What really matters most in #PulmonaryFibrosis care?

People with #IPF and #PPF helped shape a new European standard for PF care. Join us on 15 December to hear new insights from the COCOS-IPF project.

Free webinar: #/registrationistration" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky">https://us06web.zoom.us/webinar/register/WN_6MqAFC1nTiC7UtfM1LWOYA#/registration

⭐ Who will you dedicate your festive star to?

Help us support people living with lung conditions by getting involved with the Festive Stars campaign! Donate any amount, one-off or monthly, and dedicate your star to someone with a message.

Get involved: https://europeanlung.org/en/festive-stars/

🚨 We have extended the deadline for our survey on patient experiences of breathing support devices used at home.

Share your views and help shape future care.

🔗 https://europeanlung.org/en/get-involved/surveys/share-your-experience-survey-for-people-using-breathing-support-devices-at-home/

💬Dominique Hamerlijnck said: “I still find it very strange how little attention is given to how we breathe. Your breathing itself can affect your emotions, and I feel that the term dysfunctional is good because there is no single cause for this breathing struggle."

💡That Is a wrap on the Severe Asthma Patient Conference 2025!

For our second session, we learnt more about new treatments in development, the SHARP project and how researchers are approaching patient care for people with severe asthma.

💬Severe Asthma patient Rikki Muller said: “Even people with the same diagnosis can experience their condition in many different ways, and what might work for one person won’t work for everyone... One of the key lessons I have learnt is that knowledge is power.”

💻Thank you to our speakers for the first session of the Severe Asthma Patient Conference 2025!

Professor Ramesh Kurukulaaratchy joined us to discuss the comorbidities that can occur with severe asthma and how they can affect people living with the condition.

The severe asthma patient conference is now live!

Our hosts Hilary Hodge and Dr. Stefania Principe opened the session and encouraged attendees to get involved with ELF activities and the upcoming Q&A.

Register: #/registrationistration" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky">https://us02web.zoom.us/webinar/register/WN_U2FcYpqRQemcuzxLhvNg3Q#/registration

💻 The Severe Asthma Patient Conference will start shortly!

You can still register for the event on the ELF website. This event is free to attend & will discuss living with severe and difficult-to-control asthma, with a focus on patient experiences and future care.

europeanlung.org/en/get-invol...

💙The November Patient Organisation Round Up is here!

Each month, ELF spotlights the latest news from the wonderful Patient Organisation Network. Find out how patient organisations around the world are raising awareness and fighting for better lung health.

🔗 europeanlung.org/en/news-and-...

Thank you to everyone who has already taken part in the ELF Festive Stars campaign. ⭐

So far, we have 9 stars shining on our festive wall. Each message reflects the strength of our community and the importance of patient voices.

Get involved: https://europeanlung.org/en/festive-stars/

💬 This #WorldCOPDDay, Mascha van Oers shares her experience of living with COPD, how she manages the condition and the importance of patient involvement in raising awareness and understanding.

🔗 europeanlung.org/en/news-and-...

#COPD #PatientPerspectives #LungHealth

💙19 November is World COPD Awareness Day.

ELF has a variety of accessible resources on COPD:

🫁Read summaries of the latest COPD research: https://europeanlung.org/en/news/

🫁Learn more about symptoms, prevention and treatment: https://europeanlung.org/en/information-hub/lung-conditions/copd/

Have you taken part in pulmonary rehabilitation in the past 12 months?
A short and anonymous survey is gathering experiences from people living with a lung condition to help improve future support: https://www.surveymonkey.com/r/ERSPulmonaryRehab

🕒 10 minutes
📅 Deadline: 31 January 2026

🦠18–24 November is World AMR Awareness Week.

AMR happens when germs that cause infections no longer respond to the medicines we use. This makes infections harder to treat.

Learn more: https://europeanlung.org/en/information-hub/living-with-a-lung-condition/antimicrobial-resistance-amr/

💻There is still time to register for our Severe Asthma Patient Conference taking place this Saturday!

This free online event will discuss living with severe and difficult-to-control asthma, with a focus on patient experiences and the future of care.

🔗 europeanlung.org/en/get-invol...

The ELF Festive Stars campaign is now live! ⭐

You can support people living with lung conditions by making a donation and sharing why you support ELF. Your message will appear as a shining star on our festive wall.

Learn more and get involved: https://europeanlung.org/en/festive-stars/

📢 New lay version of the ERS/ESTS guideline on fitness for lung cancer treatment, including:

➡️ What to expect before surgery
➡️ How prehab and quitting smoking can improve outcomes

📖 https://europeanlung.org/en/information-hub/guidelines/the-benefits-and-risks-of-lung-cancer-treatments/

🚭 Tobacco taxes save lives.

In support of Europe’s #BeatingCancerPlan, ELF and @europeanrespsoc.bsky.social outline 5 ways to make tobacco taxation stronger and fairer, helping protect young people and move towards a tobacco-free generation by 2040.

🔗 www.ersnet.org/news-and-fea...

💛 Many people with Alpha‑1 don’t know they have it. #Alpha1Awareness

Alpha-1 Antitrypsin Deficiency (#AATD) can affect the lungs and liver but early diagnosis can help reduce health risks.

Learn more: https://europeanlung.org/en/information-hub/lung-conditions/alpha-1-antitrypsin-deficiency/

💙 Today is World Pneumonia Day.

Pneumonia is caused by an infection in the lungs. It can affect anyone, but people with weaker immune systems or existing lung conditions are more at risk.

Learn more: https://europeanlung.org/en/information-hub/lung-conditions/pneumonia/