ERKNet - European Reference Network for Rare Kidney Diseases
@erknet.bsky.social
ERKNet is devoted to improving the lives of patients with rare kidney diseases.
https://www.erknet.org
https://www.erknet.org
𝐎𝐧 𝐭𝐡𝐞 𝐑𝐨𝐚𝐝 𝐰𝐢𝐭𝐡 𝐄𝐑𝐊𝐑𝐞𝐠 🚙🇧🇪
At UZ Leuven, Yara spent multiple days supporting ERKReg data entry and exchanging ideas to improve the registry. Bedankt voor de geweldige samenwerking 🖤💛♥️
At UZ Leuven, Yara spent multiple days supporting ERKReg data entry and exchanging ideas to improve the registry. Bedankt voor de geweldige samenwerking 🖤💛♥️
November 10, 2025 at 3:03 PM
𝐎𝐧 𝐭𝐡𝐞 𝐑𝐨𝐚𝐝 𝐰𝐢𝐭𝐡 𝐄𝐑𝐊𝐑𝐞𝐠 🚙🇧🇪
At UZ Leuven, Yara spent multiple days supporting ERKReg data entry and exchanging ideas to improve the registry. Bedankt voor de geweldige samenwerking 🖤💛♥️
At UZ Leuven, Yara spent multiple days supporting ERKReg data entry and exchanging ideas to improve the registry. Bedankt voor de geweldige samenwerking 🖤💛♥️
𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐨𝐩𝐭𝐢𝐨𝐧𝐬 𝐚𝐫𝐞 𝐥𝐢𝐯𝐞 🔎
beyond our funded fellowships, we’re sharing extra self-funded projects you can still join. Today’s spotlight: DNAJB11.
Swipe for the teaser and check our website for how to get involved.
https://www.erknet.org/research/erknet-research-projects/projects-overview
beyond our funded fellowships, we’re sharing extra self-funded projects you can still join. Today’s spotlight: DNAJB11.
Swipe for the teaser and check our website for how to get involved.
https://www.erknet.org/research/erknet-research-projects/projects-overview
October 28, 2025 at 3:03 PM
𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐨𝐩𝐭𝐢𝐨𝐧𝐬 𝐚𝐫𝐞 𝐥𝐢𝐯𝐞 🔎
beyond our funded fellowships, we’re sharing extra self-funded projects you can still join. Today’s spotlight: DNAJB11.
Swipe for the teaser and check our website for how to get involved.
https://www.erknet.org/research/erknet-research-projects/projects-overview
beyond our funded fellowships, we’re sharing extra self-funded projects you can still join. Today’s spotlight: DNAJB11.
Swipe for the teaser and check our website for how to get involved.
https://www.erknet.org/research/erknet-research-projects/projects-overview
🌍✨ Applications now open for the ERKNet Clinical Exchange Programme!
A unique opportunity for junior healthcare professionals to gain hands-on experience in rare kidney diseases at ERKNet centres across Europe.
Swipe through for all the details and apply today!
A unique opportunity for junior healthcare professionals to gain hands-on experience in rare kidney diseases at ERKNet centres across Europe.
Swipe through for all the details and apply today!
October 22, 2025 at 4:03 PM
🌍✨ Applications now open for the ERKNet Clinical Exchange Programme!
A unique opportunity for junior healthcare professionals to gain hands-on experience in rare kidney diseases at ERKNet centres across Europe.
Swipe through for all the details and apply today!
A unique opportunity for junior healthcare professionals to gain hands-on experience in rare kidney diseases at ERKNet centres across Europe.
Swipe through for all the details and apply today!
Meet Carol Barahona Ponce - Project Manager 🌟
Check out how Carol’s expertise, competence, and contagious warmth contribute to our work and energize the ERKNet office every day 🇨🇱
Check out how Carol’s expertise, competence, and contagious warmth contribute to our work and energize the ERKNet office every day 🇨🇱
October 15, 2025 at 4:04 PM
Meet Carol Barahona Ponce - Project Manager 🌟
Check out how Carol’s expertise, competence, and contagious warmth contribute to our work and energize the ERKNet office every day 🇨🇱
Check out how Carol’s expertise, competence, and contagious warmth contribute to our work and energize the ERKNet office every day 🇨🇱
𝐎𝐧 𝐭𝐡𝐞 𝐑𝐨𝐚𝐝 𝐰𝐢𝐭𝐡 𝐄𝐑𝐊𝐑𝐞𝐠 🚙🇮🇹
At Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico in Milan, Franziska spent five days supporting ERKReg data entry and exchanging ideas to improve the registry.
Teamwork, hands-on support, and fresh ideas to make ERKReg even better.
See how the visit went! 👉
At Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico in Milan, Franziska spent five days supporting ERKReg data entry and exchanging ideas to improve the registry.
Teamwork, hands-on support, and fresh ideas to make ERKReg even better.
See how the visit went! 👉
October 10, 2025 at 6:02 PM
𝐎𝐧 𝐭𝐡𝐞 𝐑𝐨𝐚𝐝 𝐰𝐢𝐭𝐡 𝐄𝐑𝐊𝐑𝐞𝐠 🚙🇮🇹
At Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico in Milan, Franziska spent five days supporting ERKReg data entry and exchanging ideas to improve the registry.
Teamwork, hands-on support, and fresh ideas to make ERKReg even better.
See how the visit went! 👉
At Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico in Milan, Franziska spent five days supporting ERKReg data entry and exchanging ideas to improve the registry.
Teamwork, hands-on support, and fresh ideas to make ERKReg even better.
See how the visit went! 👉
𝐅𝐀𝐐: 𝐞𝐏𝐀𝐆 𝐫𝐞𝐩𝐫𝐞𝐬𝐞𝐧𝐭𝐚𝐭𝐢𝐯𝐞𝐬💡
What are ERKNet ePAGs and how are they shaping the future of rare kidney disease patients in Europe?
💬 Do you match the criteria and want to make a difference?
Join the ERKNet ePAGs and get involved!
🔗 https://www.erknet.org/patients/erknet-epags/patient-engagement-rules
What are ERKNet ePAGs and how are they shaping the future of rare kidney disease patients in Europe?
💬 Do you match the criteria and want to make a difference?
Join the ERKNet ePAGs and get involved!
🔗 https://www.erknet.org/patients/erknet-epags/patient-engagement-rules
September 22, 2025 at 2:03 PM
𝐅𝐀𝐐: 𝐞𝐏𝐀𝐆 𝐫𝐞𝐩𝐫𝐞𝐬𝐞𝐧𝐭𝐚𝐭𝐢𝐯𝐞𝐬💡
What are ERKNet ePAGs and how are they shaping the future of rare kidney disease patients in Europe?
💬 Do you match the criteria and want to make a difference?
Join the ERKNet ePAGs and get involved!
🔗 https://www.erknet.org/patients/erknet-epags/patient-engagement-rules
What are ERKNet ePAGs and how are they shaping the future of rare kidney disease patients in Europe?
💬 Do you match the criteria and want to make a difference?
Join the ERKNet ePAGs and get involved!
🔗 https://www.erknet.org/patients/erknet-epags/patient-engagement-rules
📢 𝐔𝐩𝐜𝐨𝐦𝐢𝐧𝐠 𝐄𝐑𝐊𝐍𝐞𝐭 𝐖𝐞𝐛𝐢𝐧𝐚𝐫!
Our Webinar September is coming to an end with our last session!
Topic: 𝐏𝐡𝐨𝐬𝐩𝐡𝐚𝐭𝐞 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬
Date: 30 September
Speaker: Carsten Wagner
Moderator: Jens König
👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: https://register.gotowebinar.com/register/2567953835042611545
Our Webinar September is coming to an end with our last session!
Topic: 𝐏𝐡𝐨𝐬𝐩𝐡𝐚𝐭𝐞 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬
Date: 30 September
Speaker: Carsten Wagner
Moderator: Jens König
👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: https://register.gotowebinar.com/register/2567953835042611545
September 19, 2025 at 9:02 AM
📢 𝐔𝐩𝐜𝐨𝐦𝐢𝐧𝐠 𝐄𝐑𝐊𝐍𝐞𝐭 𝐖𝐞𝐛𝐢𝐧𝐚𝐫!
Our Webinar September is coming to an end with our last session!
Topic: 𝐏𝐡𝐨𝐬𝐩𝐡𝐚𝐭𝐞 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬
Date: 30 September
Speaker: Carsten Wagner
Moderator: Jens König
👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: https://register.gotowebinar.com/register/2567953835042611545
Our Webinar September is coming to an end with our last session!
Topic: 𝐏𝐡𝐨𝐬𝐩𝐡𝐚𝐭𝐞 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬
Date: 30 September
Speaker: Carsten Wagner
Moderator: Jens König
👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: https://register.gotowebinar.com/register/2567953835042611545
Meet Anna - Project Manager🌟
Our team keep growing... Check out the slides and discover how Anna is contributing to rare kidney disease research within the ERKNet team.
Our team keep growing... Check out the slides and discover how Anna is contributing to rare kidney disease research within the ERKNet team.
September 18, 2025 at 4:03 PM
Meet Anna - Project Manager🌟
Our team keep growing... Check out the slides and discover how Anna is contributing to rare kidney disease research within the ERKNet team.
Our team keep growing... Check out the slides and discover how Anna is contributing to rare kidney disease research within the ERKNet team.
📚𝐑𝐞𝐠𝐢𝐬𝐭𝐫𝐚𝐭𝐢𝐨𝐧 𝐢𝐬 𝐨𝐩𝐞𝐧! ERKNet members only - Join the 3-year ERKNet Postgraduate Curriculum (Jan 15, 2026 – Dec 15, 2028) with webinars, interactive e-learning and clinical training—earn the European Specialist in Rare Kidney Diseases certificate
🗓️Apply by Oct 31, 2025 → https://tinyurl.com/2jxxfx8f
🗓️Apply by Oct 31, 2025 → https://tinyurl.com/2jxxfx8f
September 16, 2025 at 2:03 PM
📚𝐑𝐞𝐠𝐢𝐬𝐭𝐫𝐚𝐭𝐢𝐨𝐧 𝐢𝐬 𝐨𝐩𝐞𝐧! ERKNet members only - Join the 3-year ERKNet Postgraduate Curriculum (Jan 15, 2026 – Dec 15, 2028) with webinars, interactive e-learning and clinical training—earn the European Specialist in Rare Kidney Diseases certificate
🗓️Apply by Oct 31, 2025 → https://tinyurl.com/2jxxfx8f
🗓️Apply by Oct 31, 2025 → https://tinyurl.com/2jxxfx8f
📝𝐄𝐑𝐊𝐑𝐞𝐠 𝐁𝐚𝐬𝐢𝐜 𝐓𝐫𝐚𝐢𝐧𝐢𝐧𝐠 𝐒𝐞𝐬𝐬𝐢𝐨𝐧
On 𝐌𝐨𝐧𝐝𝐚𝐲, 𝐒𝐞𝐩𝐭𝐞𝐦𝐛𝐞𝐫 29𝐭𝐡, we have our next ERKReg basic training session📚
The session will be divided into 2 different parts:
40 min - Basic information about ERKReg
20 min - Q&A
🔗𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐫𝐢𝐠𝐡𝐭 𝐡𝐞𝐫𝐞: https://www.erknet.org/databases/erkreg-training-sessions
On 𝐌𝐨𝐧𝐝𝐚𝐲, 𝐒𝐞𝐩𝐭𝐞𝐦𝐛𝐞𝐫 29𝐭𝐡, we have our next ERKReg basic training session📚
The session will be divided into 2 different parts:
40 min - Basic information about ERKReg
20 min - Q&A
🔗𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐫𝐢𝐠𝐡𝐭 𝐡𝐞𝐫𝐞: https://www.erknet.org/databases/erkreg-training-sessions
September 12, 2025 at 6:02 PM
📝𝐄𝐑𝐊𝐑𝐞𝐠 𝐁𝐚𝐬𝐢𝐜 𝐓𝐫𝐚𝐢𝐧𝐢𝐧𝐠 𝐒𝐞𝐬𝐬𝐢𝐨𝐧
On 𝐌𝐨𝐧𝐝𝐚𝐲, 𝐒𝐞𝐩𝐭𝐞𝐦𝐛𝐞𝐫 29𝐭𝐡, we have our next ERKReg basic training session📚
The session will be divided into 2 different parts:
40 min - Basic information about ERKReg
20 min - Q&A
🔗𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐫𝐢𝐠𝐡𝐭 𝐡𝐞𝐫𝐞: https://www.erknet.org/databases/erkreg-training-sessions
On 𝐌𝐨𝐧𝐝𝐚𝐲, 𝐒𝐞𝐩𝐭𝐞𝐦𝐛𝐞𝐫 29𝐭𝐡, we have our next ERKReg basic training session📚
The session will be divided into 2 different parts:
40 min - Basic information about ERKReg
20 min - Q&A
🔗𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐫𝐢𝐠𝐡𝐭 𝐡𝐞𝐫𝐞: https://www.erknet.org/databases/erkreg-training-sessions
𝐎𝐧 𝐭𝐡𝐞 𝐑𝐨𝐚𝐝 𝐰𝐢𝐭𝐡 𝐄𝐑𝐊𝐑𝐞𝐠 🚙🇪🇸
At Hospital Universitario 12 de Octubre in Madrid, Jose spent three weeks supporting ERKReg data entry and exchanging ideas to improve the registry. Gracias por la cálida bienvenida, equipo de Madrid ♥️💛📊
At Hospital Universitario 12 de Octubre in Madrid, Jose spent three weeks supporting ERKReg data entry and exchanging ideas to improve the registry. Gracias por la cálida bienvenida, equipo de Madrid ♥️💛📊
September 11, 2025 at 4:03 PM
𝐎𝐧 𝐭𝐡𝐞 𝐑𝐨𝐚𝐝 𝐰𝐢𝐭𝐡 𝐄𝐑𝐊𝐑𝐞𝐠 🚙🇪🇸
At Hospital Universitario 12 de Octubre in Madrid, Jose spent three weeks supporting ERKReg data entry and exchanging ideas to improve the registry. Gracias por la cálida bienvenida, equipo de Madrid ♥️💛📊
At Hospital Universitario 12 de Octubre in Madrid, Jose spent three weeks supporting ERKReg data entry and exchanging ideas to improve the registry. Gracias por la cálida bienvenida, equipo de Madrid ♥️💛📊
🌍 Multi-stakeholder workshop: Prioritizing rare diseases for advanced therapies (ATMPs)
Day 2 today! Led by ERDERA, this workshop brings together stakeholders from across Europe to tackle a big question: how can we better prioritize rare diseases for advanced therapies?
Day 2 today! Led by ERDERA, this workshop brings together stakeholders from across Europe to tackle a big question: how can we better prioritize rare diseases for advanced therapies?
September 10, 2025 at 10:03 AM
🌍 Multi-stakeholder workshop: Prioritizing rare diseases for advanced therapies (ATMPs)
Day 2 today! Led by ERDERA, this workshop brings together stakeholders from across Europe to tackle a big question: how can we better prioritize rare diseases for advanced therapies?
Day 2 today! Led by ERDERA, this workshop brings together stakeholders from across Europe to tackle a big question: how can we better prioritize rare diseases for advanced therapies?
📢 Upcoming ERKNet Webinar!
📝 Topic: Membranous Nephropathy
🗓️ Date: September 16, 2025
👩⚕️ Speaker: Anne-Els van de Logt
👉 Register now: https://register.gotowebinar.com/register/1699152730290967637
📝 Topic: Membranous Nephropathy
🗓️ Date: September 16, 2025
👩⚕️ Speaker: Anne-Els van de Logt
👉 Register now: https://register.gotowebinar.com/register/1699152730290967637
September 9, 2025 at 9:02 AM
📢 Upcoming ERKNet Webinar!
📝 Topic: Membranous Nephropathy
🗓️ Date: September 16, 2025
👩⚕️ Speaker: Anne-Els van de Logt
👉 Register now: https://register.gotowebinar.com/register/1699152730290967637
📝 Topic: Membranous Nephropathy
🗓️ Date: September 16, 2025
👩⚕️ Speaker: Anne-Els van de Logt
👉 Register now: https://register.gotowebinar.com/register/1699152730290967637
🌐 N is for Network Structure!
ERKNet links 70+ expert centers, clinicians, researchers & patients across Europe. Together we build guidelines, drive research & share expertise to improve care in rare kidney diseases.
#ABCforRare #ERKNet #KidneyHealth
ERKNet links 70+ expert centers, clinicians, researchers & patients across Europe. Together we build guidelines, drive research & share expertise to improve care in rare kidney diseases.
#ABCforRare #ERKNet #KidneyHealth
September 2, 2025 at 3:02 PM
🌐 N is for Network Structure!
ERKNet links 70+ expert centers, clinicians, researchers & patients across Europe. Together we build guidelines, drive research & share expertise to improve care in rare kidney diseases.
#ABCforRare #ERKNet #KidneyHealth
ERKNet links 70+ expert centers, clinicians, researchers & patients across Europe. Together we build guidelines, drive research & share expertise to improve care in rare kidney diseases.
#ABCforRare #ERKNet #KidneyHealth
☀️September Webinars☀️
Join us for our Webinar packed September!
From diagnosis and treatment to the latest research developments 🔬 — there’s something for everyone.
No matter your background, our webinars are free and open to all 👥
🔗 https://www.erknet.org/education-training/next-webinars
Join us for our Webinar packed September!
From diagnosis and treatment to the latest research developments 🔬 — there’s something for everyone.
No matter your background, our webinars are free and open to all 👥
🔗 https://www.erknet.org/education-training/next-webinars
August 29, 2025 at 6:02 PM
☀️September Webinars☀️
Join us for our Webinar packed September!
From diagnosis and treatment to the latest research developments 🔬 — there’s something for everyone.
No matter your background, our webinars are free and open to all 👥
🔗 https://www.erknet.org/education-training/next-webinars
Join us for our Webinar packed September!
From diagnosis and treatment to the latest research developments 🔬 — there’s something for everyone.
No matter your background, our webinars are free and open to all 👥
🔗 https://www.erknet.org/education-training/next-webinars
On the Road with ERKReg 🚙🇫🇷
At Hôpital Necker in Paris, Yara spent two weeks supporting ERKReg data entry and exchanging ideas to improve the registry. Merci to the Paris team for the warm welcome, great teamwork, and valuable insights! 💙📊
#ERKNetOnTheRoad #RareKidneyDiseases #Paris #ERKReg
At Hôpital Necker in Paris, Yara spent two weeks supporting ERKReg data entry and exchanging ideas to improve the registry. Merci to the Paris team for the warm welcome, great teamwork, and valuable insights! 💙📊
#ERKNetOnTheRoad #RareKidneyDiseases #Paris #ERKReg
August 28, 2025 at 3:04 PM
On the Road with ERKReg 🚙🇫🇷
At Hôpital Necker in Paris, Yara spent two weeks supporting ERKReg data entry and exchanging ideas to improve the registry. Merci to the Paris team for the warm welcome, great teamwork, and valuable insights! 💙📊
#ERKNetOnTheRoad #RareKidneyDiseases #Paris #ERKReg
At Hôpital Necker in Paris, Yara spent two weeks supporting ERKReg data entry and exchanging ideas to improve the registry. Merci to the Paris team for the warm welcome, great teamwork, and valuable insights! 💙📊
#ERKNetOnTheRoad #RareKidneyDiseases #Paris #ERKReg
🧪 FAQ: ERKNet Patient-Initiated Research
Have a project idea on rare kidney disease? Patient reps & ePAG members can apply. ERKNet supports one meeting (≤6 people) to launch approved projects.
Apply: https://www.erknet.org/patients/research/research-proposals-from-patients
#ERKNet #RareDisease
Have a project idea on rare kidney disease? Patient reps & ePAG members can apply. ERKNet supports one meeting (≤6 people) to launch approved projects.
Apply: https://www.erknet.org/patients/research/research-proposals-from-patients
#ERKNet #RareDisease
August 27, 2025 at 2:03 PM
🧪 FAQ: ERKNet Patient-Initiated Research
Have a project idea on rare kidney disease? Patient reps & ePAG members can apply. ERKNet supports one meeting (≤6 people) to launch approved projects.
Apply: https://www.erknet.org/patients/research/research-proposals-from-patients
#ERKNet #RareDisease
Have a project idea on rare kidney disease? Patient reps & ePAG members can apply. ERKNet supports one meeting (≤6 people) to launch approved projects.
Apply: https://www.erknet.org/patients/research/research-proposals-from-patients
#ERKNet #RareDisease
🔍 ERKsplain – Kidney Structure Changes (Part II)
Quick look back: structural kidney differences can be present from birth or appear later. Some are harmless, others may affect function and need care. In this part, we cover more types.
Save & share for awareness!
#KidneyHealth #ERKsplain
Quick look back: structural kidney differences can be present from birth or appear later. Some are harmless, others may affect function and need care. In this part, we cover more types.
Save & share for awareness!
#KidneyHealth #ERKsplain
August 26, 2025 at 2:02 PM
🔍 ERKsplain – Kidney Structure Changes (Part II)
Quick look back: structural kidney differences can be present from birth or appear later. Some are harmless, others may affect function and need care. In this part, we cover more types.
Save & share for awareness!
#KidneyHealth #ERKsplain
Quick look back: structural kidney differences can be present from birth or appear later. Some are harmless, others may affect function and need care. In this part, we cover more types.
Save & share for awareness!
#KidneyHealth #ERKsplain
🌟Meet Sheila, our MSCA PhD Researcher🌟
Dive into her slides and explore the incredible contributions she’s making with the ERKNet team.
#MeetTheTeam #ERKNet #RareKidneyDiseases
Dive into her slides and explore the incredible contributions she’s making with the ERKNet team.
#MeetTheTeam #ERKNet #RareKidneyDiseases
August 22, 2025 at 10:02 AM
🌟Meet Sheila, our MSCA PhD Researcher🌟
Dive into her slides and explore the incredible contributions she’s making with the ERKNet team.
#MeetTheTeam #ERKNet #RareKidneyDiseases
Dive into her slides and explore the incredible contributions she’s making with the ERKNet team.
#MeetTheTeam #ERKNet #RareKidneyDiseases
📢 Upcoming ReCONNET Webinar!
📝 Topic: Microvascular Involvement in Antiphospholipid Syndrome (APS)
🗓️ Date: September 3, 2025
👩⚕️ Speaker: Savino Sciascia (Italy)
👉 Register now: https://us06web.zoom.us/webinar/register/WN_8cel9tnMTC6Blj14Fw9zmg<a href="/hashtag/%2Fregistration" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#/registration
📝 Topic: Microvascular Involvement in Antiphospholipid Syndrome (APS)
🗓️ Date: September 3, 2025
👩⚕️ Speaker: Savino Sciascia (Italy)
👉 Register now: https://us06web.zoom.us/webinar/register/WN_8cel9tnMTC6Blj14Fw9zmg<a href="/hashtag/%2Fregistration" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#/registration
August 21, 2025 at 10:02 AM
📢 Upcoming ReCONNET Webinar!
📝 Topic: Microvascular Involvement in Antiphospholipid Syndrome (APS)
🗓️ Date: September 3, 2025
👩⚕️ Speaker: Savino Sciascia (Italy)
👉 Register now: https://us06web.zoom.us/webinar/register/WN_8cel9tnMTC6Blj14Fw9zmg<a href="/hashtag/%2Fregistration" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#/registration
📝 Topic: Microvascular Involvement in Antiphospholipid Syndrome (APS)
🗓️ Date: September 3, 2025
👩⚕️ Speaker: Savino Sciascia (Italy)
👉 Register now: https://us06web.zoom.us/webinar/register/WN_8cel9tnMTC6Blj14Fw9zmg<a href="/hashtag/%2Fregistration" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#/registration
We’re back from ERKNet’s summer break! ☀️
Join our free expert-led webinars on rare kidney diseases 🔍
From diagnosis to cutting-edge research 🔬 — open to all 👥
More info: https://www.erknet.org/education-training/next-webinars
Join our free expert-led webinars on rare kidney diseases 🔍
From diagnosis to cutting-edge research 🔬 — open to all 👥
More info: https://www.erknet.org/education-training/next-webinars
August 18, 2025 at 10:02 AM
We’re back from ERKNet’s summer break! ☀️
Join our free expert-led webinars on rare kidney diseases 🔍
From diagnosis to cutting-edge research 🔬 — open to all 👥
More info: https://www.erknet.org/education-training/next-webinars
Join our free expert-led webinars on rare kidney diseases 🔍
From diagnosis to cutting-edge research 🔬 — open to all 👥
More info: https://www.erknet.org/education-training/next-webinars
On the Road with ERKReg 🚙🇫🇷
At Hôpital Femme Mère Enfant in Lyon, Yara spent a week supporting ERKReg data entry and exchanging ideas to improve the registry. Merci to the Lyon team for the warm welcome, great teamwork, and valuable insights! 💙📊
#ERKNetOnTheRoad #RareKidneyDiseases #Lyon #ERKReg
At Hôpital Femme Mère Enfant in Lyon, Yara spent a week supporting ERKReg data entry and exchanging ideas to improve the registry. Merci to the Lyon team for the warm welcome, great teamwork, and valuable insights! 💙📊
#ERKNetOnTheRoad #RareKidneyDiseases #Lyon #ERKReg
August 14, 2025 at 12:02 PM
On the Road with ERKReg 🚙🇫🇷
At Hôpital Femme Mère Enfant in Lyon, Yara spent a week supporting ERKReg data entry and exchanging ideas to improve the registry. Merci to the Lyon team for the warm welcome, great teamwork, and valuable insights! 💙📊
#ERKNetOnTheRoad #RareKidneyDiseases #Lyon #ERKReg
At Hôpital Femme Mère Enfant in Lyon, Yara spent a week supporting ERKReg data entry and exchanging ideas to improve the registry. Merci to the Lyon team for the warm welcome, great teamwork, and valuable insights! 💙📊
#ERKNetOnTheRoad #RareKidneyDiseases #Lyon #ERKReg
New in KI Reports: GDF-15 (serum) & uEGF (urine) independently associate with pediatric CKD progression; combined models perform best—validated in 4C & ESCAPE cohorts. Big collaborative effort by our network.
🔗 https://www.sciencedirect.com/science/article/pii/S2468024925004358?via%3Dihub
🔗 https://www.sciencedirect.com/science/article/pii/S2468024925004358?via%3Dihub
August 12, 2025 at 2:02 PM
New in KI Reports: GDF-15 (serum) & uEGF (urine) independently associate with pediatric CKD progression; combined models perform best—validated in 4C & ESCAPE cohorts. Big collaborative effort by our network.
🔗 https://www.sciencedirect.com/science/article/pii/S2468024925004358?via%3Dihub
🔗 https://www.sciencedirect.com/science/article/pii/S2468024925004358?via%3Dihub
📝ERKReg Basic Training Session
On Monday, August 25th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
On Monday, August 25th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
August 6, 2025 at 8:16 AM
📝ERKReg Basic Training Session
On Monday, August 25th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
On Monday, August 25th, we host our ERKReg training session again📚.
40 min - Basic information about ERKReg.
20 min - Questions and answers.
🔗Register right here: www.erknet.org/databases/er...
#ERKucation #rarekidneydisease #erknet #training #kidneydisease
📱 M is for Mobile App for Patients!
The NELIA App helps people with rare kidney diseases manage symptoms, track data & support research — all from their phones.
🔗 Learn more: nelia-rgd.com/uk
Download available for Android and Apple.
#ERKNet #NeliaApp #DigitalHealth #RareKidneyDiseases #ABCforRare
The NELIA App helps people with rare kidney diseases manage symptoms, track data & support research — all from their phones.
🔗 Learn more: nelia-rgd.com/uk
Download available for Android and Apple.
#ERKNet #NeliaApp #DigitalHealth #RareKidneyDiseases #ABCforRare
July 31, 2025 at 10:07 AM
📱 M is for Mobile App for Patients!
The NELIA App helps people with rare kidney diseases manage symptoms, track data & support research — all from their phones.
🔗 Learn more: nelia-rgd.com/uk
Download available for Android and Apple.
#ERKNet #NeliaApp #DigitalHealth #RareKidneyDiseases #ABCforRare
The NELIA App helps people with rare kidney diseases manage symptoms, track data & support research — all from their phones.
🔗 Learn more: nelia-rgd.com/uk
Download available for Android and Apple.
#ERKNet #NeliaApp #DigitalHealth #RareKidneyDiseases #ABCforRare